National Institute on Disability and Rehabilitation Research-Disability and Rehabilitation Research Projects and Centers Program; Funding Priorities, 6318-6331 [06-1075]
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Federal Register / Vol. 71, No. 25 / Tuesday, February 7, 2006 / Notices
National Institute on Disability and
Rehabilitation Research—Disability
and Rehabilitation Research Projects
and Centers Program; Funding
Priorities
Office of Special Education and
Rehabilitative Services, Department of
Education.
ACTION: Notice of proposed priorities.
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AGENCY:
SUMMARY: The Assistant Secretary for
Special Education and Rehabilitative
Services proposes certain funding
priorities for the Disability and
Rehabilitation Research Projects and
Centers Program administered by the
National Institute on Disability and
Rehabilitation Research (NIDRR).
Specifically, this notice proposes
priorities for Disability Rehabilitation
Research Projects (DRRPs), including
Disability Business and Technical
Assistance Centers (DBTACs);
Rehabilitation Research and Training
Centers (RRTCs); and Rehabilitation
Engineering Research Centers (RERCs).
The Assistant Secretary may use these
priorities for competitions in fiscal year
(FY) 2006 and later years. We take this
action to focus research attention on
areas of national need. We intend these
priorities to improve rehabilitation
services and outcomes for individuals
with disabilities.
DATES: We must receive your comments
on or before March 9, 2006.
ADDRESSES: Address all comments about
these proposed priorities to Donna
Nangle, U.S. Department of Education,
400 Maryland Avenue, SW., room 6030,
Potomac Center Plaza, Washington, DC
20204–2700. If you prefer to send your
comments through the Internet, use one
of the following addresses:
donna.nangle@ed.gov.
You must include the term ‘‘Proposed
Priorities for DRRPs, RRTCs, and
RERCs’’ in the subject line of your
electronic message.
FOR FURTHER INFORMATION CONTACT:
Donna Nangle or Lynn Medley.
Telephone: (202) 245–7462 (Donna
Nangle) or (202) 245–7338 (Lynn
Medley).
If you use a telecommunications
device for the deaf (TDD), you may call
the Federal Relay Service (FRS) at 1–
800–877–8339.
Individuals with disabilities may
obtain this document in an alternative
format (e.g., Braille, large print,
audiotape, or computer diskette) on
request to the contact person listed
under FOR FURTHER INFORMATION
CONTACT.
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This
notice of proposed priorities is in
concert with President George W.
Bush’s New Freedom Initiative (NFI)
and NIDRR’s Proposed Long-Range Plan
for FY 2005–2009 (Plan). The NFI can
be accessed on the Internet at the
following site: https://
www.whitehouse.gov/infocus/
newfreedom. The Plan, which was
published in the Federal Register on
July 27, 2005 (70 FR 43522), can be
accessed on the Internet at the following
site: https://www.ed.gov/legislation/
FedRegister/other/2005–3/
072705d.html.
Through the implementation of the
NFI and the Plan, NIDRR seeks to: (1)
Improve the quality and utility of
disability and rehabilitation research;
(2) foster an exchange of expertise,
information, and training to facilitate
the advancement of knowledge and
understanding of the unique needs of
traditionally underserved populations;
(3) determine best strategies and
programs to improve rehabilitation
outcomes for underserved populations;
(4) identify research gaps; (5) identify
mechanisms of integrating research and
practice; and (6) disseminate findings.
One of the specific goals established
in the Plan is for NIDRR to publish all
of its proposed priorities, and following
public comment, final priorities,
annually, on a combined basis. Under
this approach, NIDRR’s constituents can
submit comments at one time rather
than at different times throughout the
year, and NIDRR can move toward a
fixed schedule for competitions and
more efficient grant-making operations.
This notice, which proposes priorities
NIDRR intends to use for DRRP, RRTC,
and RERC competitions in FY 2006 and
possibly later years, represents NIDRR’s
first step toward a notice of priorities
that will include its entire portfolio of
research and related activities for the
year. However, nothing precludes
NIDRR from publishing additional
priorities, if needed.
In addition to this notice, on
December 13, 2005, NIDRR published a
separate notice of proposed priorities for
Spinal Cord Injury Model Systems
(SCIMS) Centers and for SCIMS multisite research projects (70 FR 73738).
NIDRR also intends to publish a
separate notice of proposed priorities for
an additional DRRP with the focus on
Individuals Who are Blind and Visually
Impaired this year. Moreover, for FY
2006 competitions using priorities that
already have been established and for
which publication of a notice of
proposed priority is unnecessary (e.g.,
competitions for Field-Initiated Projects,
Advanced Rehabilitation Research
SUPPLEMENTARY INFORMATION:
DEPARTMENT OF EDUCATION
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Training Projects, Fellowships, and
Small Business Innovation Research
Projects), NIDRR has published or will
publish notices inviting applications.
More information on these other
projects and programs that NIDRR
intends to fund in FY 2006 can be found
on the Internet at the following site:
https://ed.gov/fund/grant/apply/nidrr/
priority-matrix.html.
Invitation to Comment
We invite you to submit comments
regarding these proposed priorities. To
ensure that your comments have
maximum effect in developing the
notice of final priorities, we urge you to
identify clearly the specific proposed
priority or topic that each comment
addresses.
We invite you to assist us in
complying with the specific
requirements of Executive Order 12866
and its overall requirement of reducing
regulatory burden that might result from
these proposed priorities. Please let us
know of any further opportunities we
should take to reduce potential costs or
increase potential benefits while
preserving the effective and efficient
administration of the program.
During and after the comment period,
you may inspect all public comments
about these proposed priorities in room
6030, 550 12th Street, SW., Potomac
Center Plaza, Washington, DC, between
the hours of 8:30 a.m. and 4 p.m.,
Eastern time, Monday through Friday of
each week except Federal holidays.
Assistance to Individuals With
Disabilities in Reviewing the
Rulemaking Record
On request, we will supply an
appropriate aid, such as a reader or
print magnifier, to an individual with a
disability who needs assistance to
review the comments or other
documents in the public rulemaking
record for these proposed priorities. If
you want to schedule an appointment
for this type of aid, please contact the
person listed under FOR FURTHER
INFORMATION CONTACT.
We will announce the final priorities
in one or more notices in the Federal
Register. We will determine the final
priorities after considering responses to
this notice and other information
available to the Department. This notice
does not preclude us from proposing or
using additional priorities, subject to
meeting applicable rulemaking
requirements.
Note: This notice does not solicit
applications. In any year in which we choose
to use these proposed priorities, we invite
applications through a notice in the Federal
Register. When inviting applications we
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designate the priorities as absolute,
competitive preference, or invitational. The
effect of each type of priority follows:
Absolute priority: Under an absolute
priority, we consider only applications that
meet the priority (34 CFR 75.105(c)(3)).
Competitive preference priority: Under a
competitive preference priority, we give
competitive preference to an application by
either (1) awarding additional points,
depending on how well or the extent to
which the application meets the competitive
preference priority (34 CFR 75.105(c)(2)(i));
or (2) selecting an application that meets the
competitive preference priority over an
application of comparable merit that does not
meet the priority (34 CFR 75.105(c)(2)(ii)).
Invitational priority: Under an invitational
priority, we are particularly interested in
applications that meet the invitational
priority. However, we do not give an
application that meets the invitational
priority a competitive or absolute preference
over other applications (34 CFR 75.105(c)(1)).
Priorities
In this notice, we are proposing 11
priorities for DRRPs (including 2
priorities for DBTACs), 1 priority for an
RRTC, and 3 priorities for RERCs.
For DRRPs, the proposed priorities
are:
• Priority 1—General DRRP
Requirements.
• Priority 2—National Data and
Statistical Center for the Spinal Cord
Injury (SCI) Model Systems.
• Priority 3—National Data and
Statistical Center for the Traumatic
Brain Injury (TBI) Model Systems.
• Priority 4—Rehabilitation of
Children with Traumatic Brain Injury
(TBI).
• Priority 5—Reducing Obesity and
Obesity-Related Secondary Conditions
in Adolescents and Adults with
Disabilities.
• Priority 6—Model Systems
Knowledge Translation Center
(MSKTC).
• Priority 7—Assistive Technology
(AT) Outcomes Research Project.
• Priority 8—Mobility Aids and
Wayfinding Technologies for
Individuals With Blindness and Low
Vision.
• Priority 9—Improving Employment
Outcomes for the Low Functioning Deaf
(LFD) Population.
• Priority 10—Disability Business
Technical Assistance Centers (DBTACs).
• Priority 11—Disability Business
Technical Assistance Centers (DBTAC)
Coordination, Outreach, and Research
Center.
For the RRTC, the proposed priority
is:
• Priority 12—Rehabilitation
Research and Training Center on
Effective Independent and Community
Living Solutions and Measures.
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For RERCs, the proposed priorities
are:
• Priority 13—RERC for Technologies
for Successful Aging.
• Priority 14—RERC for Wheelchair
Transportation Safety.
• Priority 15—RERC for Wireless
Technologies.
Disability and Rehabilitation Research
Projects (DRRP) Program
The purpose of the DRRP program is
to plan and conduct research,
demonstration projects, training, and
related activities to develop methods,
procedures, and rehabilitation
technology that maximize the full
inclusion and integration into society,
employment, independent living, family
support, and economic and social selfsufficiency of individuals with
disabilities, especially individuals with
the most severe disabilities, and to
improve the effectiveness of services
authorized under the Rehabilitation Act
of 1973, as amended. DRRPs carry out
one or more of the following types of
activities, as specified and defined in 34
CFR 350.13 through 350.19: research,
development, demonstration, training,
dissemination, utilization, and technical
assistance.
An applicant for assistance under this
program must demonstrate in its
application how it will address, in
whole or in part, the needs of
individuals with disabilities from
minority backgrounds (34 CFR
350.40(a)). The approaches an applicant
may take to meet this requirement are
found in 34 CFR 350.40(b).
Additional information on the DRRP
program can be found at: https://
www.ed.gov/rschstat/research/pubs/resprogram.html#DRRP.
Proposed Priorities
Priority 1—General Disability and
Rehabilitation Research Projects (DRRP)
Requirements
Background
NIDRR proposes the following
General DRRP Requirements priority
because it believes that the effectiveness
of any DRRP (including any DBTAC)
depends on, among other things, how
well the DRRP coordinates its research
efforts with the research of other
NIDRR-funded projects, involves
individuals with disabilities in its
activities, and identifies specific
anticipated outcomes that are linked to
its objectives in applying for DRRP
funding. Accordingly, NIDRR intends to
use proposed Priority 1—General DRRP
Requirements in conjunction with each
of the other DRRP priorities proposed in
this notice (i.e., priorities 2 through 11).
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Proposed Priority
To meet this priority, the Disability
and Rehabilitation Research Projects
(DRRP) must:
(a) Coordinate on research projects of
mutual interest with relevant NIDRRfunded projects, as identified through
consultation with the NIDRR project
officer;
(b) Involve individuals with
disabilities in planning and
implementing the DRRP’s research,
training, and dissemination activities,
and in evaluating its work; and
(c) Identify anticipated outcomes (i.e.,
advances in knowledge or changes and
improvements in policy, practice,
behavior, and system capacity) that are
linked to the applicant’s stated grant
objectives.
Priority 2—National Data and Statistical
Center for the Spinal Cord Injury (SCI)
Model Systems
Background
It is estimated that the number of
Americans living with traumatic spinal
cord injury (SCI) ranges from 222,000 to
285,000, with an incidence of
approximately 11,000 new cases each
year (Spinal Cord Injury: Facts and
Figures at a Glance, 2004).
NIDRR supports a variety of research
projects that focus on the wide range of
needs of individuals with SCI. These
projects include the SCI Model Systems
Centers funded through NIDRR’s Model
Systems Program. The SCI Model
Systems Centers establish and carry out
innovative projects for the delivery,
demonstration, and evaluation of
comprehensive medical, vocational, and
other rehabilitation services to meet the
wide range of needs of individuals with
SCI.
The SCI Model Systems Centers have
developed a national, longitudinal
database that contains information on
approximately 23,000 people injured
since 1973 (SCI Model Systems
Database). The SCI Model Systems
Database is the most extensive source of
information available about the
characteristics and life course of
individuals with SCI. The SCI Model
Systems Database contains a sample that
is demographically representative of all
cases that occur throughout the United
States, though the sample is not
population-based (DeVivo, Go, &
Jackson, 2002). The SCI Model Systems
Database also can be used to examine
specific outcomes of SCI. NIDRR seeks
to continue and build upon this
important source of data by funding a
National Data and Statistical Center for
the SCI Model Systems (National SCI
Model Systems Data Center) that will
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maintain the SCI Model Systems
Database and improve the quality of
information that is entered into it.
The SCI Model Systems Database is a
collaborative project in which all of the
SCI Model Systems Centers participate.
The data for the SCI Model Systems
Database are collected by the SCI Model
Systems Centers. The Directors of the
SCI Model System Centers, in
consultation with NIDRR, determine the
parameters of the SCI Model Systems
Database, including the number and
type of variables to be examined, and
the criteria for including Model Systems
patients in the database.
To maximize the external validity of
findings from the SCI Model Systems
Database, the SCI Model Systems
Centers must achieve and maintain high
rates of retention and successful followup with database participants.
Accordingly, the central role of the
National SCI Model Systems Data
Center will be to work with SCI Model
Systems Centers to increase follow-up
rates and to ensure data quality.
Since the creation of the SCI Model
Systems Database more than 30 years
ago, the proportion of database
participants from racial and ethnic
minority populations has grown steadily
(Jackson, Dijkers, DeVivo & Poczatek,
2004). This growth reflects the urban
location of many of the SCI Model
Systems Centers, as well as the growing
proportion of racial/ethnic minorities in
the general population. This growth in
the racial/ethnic diversity of the SCI
Model Systems population creates a
vital technical assistance role for the
National SCI Model Systems Data
Center. The National SCI Model
Systems Data Center will work with the
SCI Model Systems Centers to ensure
that the data collected from these
populations are of high quality and that
the data collection procedures used
reflect sufficient knowledge about the
cultural backgrounds of patient
populations and research participants.
The specifications of the SCI Model
Systems Database as it is currently
implemented can be obtained from the
National SCI Statistical Center at the
University of Alabama at Birmingham.
The National SCI Statistical Center may
be contacted on the World Wide Web at
https://www.spinalcord.uab.edu/
show.asp?durki=21446.
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References
DeVivo, M., Go, B., & Jackson, A. (2002).
Overview of the National Spinal Cord Injury
Statistical Center Database. The Journal of
Spinal Cord Medicine. 25(4): 335–338.
Jackson, A., Dijkers, M, DeVivo, M., &
Poczatek, R. (2004). A Demographic Profile of
New Traumatic Spinal Cord Injuries: Change
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and Stability Over 30 Years. Archives of
Physical Medicine and Rehabilitation. 85(11):
1740–1748.
Spinal Cord Injury: Facts and Figures at a
Glance. (2004). Retrieved July 6, 2005 from
the National Spinal Cord Injury Statistical
Center Web site: https://
www.spinalcord.uab.edu.
Proposed Priority
The Assistant Secretary for Special
Education and Rehabilitative Services
proposes a priority for the establishment
of a National SCI Model Systems Data
Center that advances medical
rehabilitation by increasing the rigor
and efficiency of scientific efforts to
longitudinally assess the experience of
individuals with SCI. To meet this
priority, the National SCI Model
Systems Data Center’s research and
technical assistance must be designed to
contribute to the following outcomes:
(a) Maintenance of a national
longitudinal database for data submitted
by each of the SCI Model Systems
Centers (SCI Model Systems Database).
This database must provide for
confidentiality, quality control, and
data-retrieval capabilities, using costeffective and user-friendly technology.
(b) High-quality, reliable data in the
SCI Model Systems Database. The
National SCI Model Systems Data
Center must contribute to this outcome
by providing training and technical
assistance to SCI Model Systems Centers
on subject retention and data collection
procedures, data entry methods, and
appropriate use of study instruments,
and by monitoring the quality of the
data submitted by the SCI Model
Systems Centers.
(c) High-quality data collected from
database participants of all racial/ethnic
backgrounds. The National SCI Model
Systems Data Center must contribute to
this outcome by providing knowledge,
training, and technical assistance to the
SCI Model Systems Centers on
culturally appropriate methods of
longitudinal data collection and
participant retention.
(d) Rigorous research conducted by
SCI Model Systems Centers and all
investigators who are analyzing data
from the SCI Model Systems Database.
The National SCI Model Systems Data
Center must contribute to this outcome
by making statistical and other
methodological consultation available
for research projects that use the SCI
Model Systems Database, as well as
center-specific and collaborative
projects of the SCI Model Systems
Program.
(e) Enhanced continuity of the SCI
Model Systems Database. The National
SCI Model Systems Data Center must
contribute to this outcome by
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establishing and implementing a
mechanism for continued collection of
follow-up data from individuals who
were enrolled by SCI Model Systems
Centers that no longer receive Model
Systems Program funding. This
mechanism must focus on continued
collection of data from up to four SCI
Model Systems Centers that were
funded during the most recent five-year
grant cycle, but that do not receive
subsequent funding under the Model
Systems Program.
(f) Improved quality and efficiency of
the SCI Model Systems Database
operations through collaboration with
the National Traumatic Brain Injury
Model Systems Data Center and the
National Burn Model Systems Data
Center.
Priority 3—National Data and Statistical
Center for the Traumatic Brain Injury
(TBI) Model Systems
Background
It is estimated that at least 5.3 million
Americans are living with disability as
a result of traumatic brain injury (TBI).
Approximately 1.4 million Americans
sustain a TBI each year, and 230,000 of
these injuries lead to hospitalization
(Traumatic Brain Injury: Facts and
Figures, 2005).
NIDRR supports a variety of research
projects that focus on the wide range of
needs of individuals with TBI. These
projects include the TBI Model Systems
Centers funded through NIDRR’s Model
Systems Program. The TBI Model
Systems Centers establish and carry out
innovative projects for the delivery,
demonstration, and evaluation of
comprehensive medical, vocational, and
other rehabilitation services to meet the
wide range of needs of individuals with
TBI.
The TBI Model Systems Centers have
developed a national, longitudinal
database of information about the
characteristics and life course of
individuals with TBI (TBI Model
Systems Database). The TBI Model
Systems Database also can be used to
examine specific outcomes of TBI.
NIDRR seeks to continue and build
upon this important source of data by
funding a National Data and Statistical
Center for the TBI Model Systems
(National TBI Model Systems Data
Center) that will maintain the TBI
Model Systems Database and improve
the quality of information that is entered
into it.
The TBI Model Systems Database is a
collaborative project in which all of the
TBI Model Systems Centers participate.
The data for the TBI Model Systems
Database are collected by the TBI Model
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Systems Centers. The Directors of the
TBI Model Systems Centers, in
consultation with NIDRR, determine the
parameters of the TBI Model Systems
Database, including the number and
type of variables to be examined, and
the criteria for including TBI Model
Systems patients in the database.
To maximize the external validity of
findings from the TBI Model Systems
Database, the TBI Model Systems
Centers must achieve and maintain high
rates of retention and successful followup with database participants.
Accordingly, the central role of the
National TBI Model Systems Data
Center will be to work with TBI Model
Systems Centers to increase follow-up
rates and ensure data quality.
The TBI Model Systems Database
contains a disproportional number of
participants from minority backgrounds,
relative to the general population
(Burnett et al. 2003). The
disproportional representation of racial/
ethnic minorities reflects the urban
location of many of the TBI Model
Systems Centers. The racial/ethnic
diversity of the TBI Model Systems
population creates a vital technical
assistance role for the National TBI
Model Systems Data Center. The
National TBI Model Systems Data
Center will work with the TBI Model
Systems Centers to ensure that the data
collected from these populations are of
high quality and that the data collection
procedures used reflect sufficient
knowledge about the cultural
backgrounds of patient populations and
research participants.
The specifications of the TBI Model
Systems Database as it is currently
implemented can be obtained from the
TBI National Data Center at the Kessler
Medical Rehabilitation Research and
Education Corporation (see https://
www.tbindc.org).
References
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Burnett, D., Kolakowsky-Hayner, S., Slater,
D., Stringer, A., Bushnik, T., Zafonte, R., and
Cifu, D. (2003). Ethnographic Analysis of
Traumatic Brain Injury Patients in the
National Model Systems Database. Archives
of Physical Medicine and Rehabilitation.
84(2): 263–267.
Traumatic Brain Injury: Facts and Figures
(2005). Retrieved July 6, 2005 from the
Traumatic Brain Injury National Data Center
Web site: https://www.tbindc.org/registry/pdf/
ff_winter2005.pdf.
Proposed Priority
The Assistant Secretary for Special
Education and Rehabilitative Services
proposes a priority for the establishment
of a National TBI Model Systems Data
Center that advances medical
rehabilitation by increasing the rigor
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and efficiency of scientific efforts to
longitudinally assess the experience of
individuals with TBI. To meet this
priority, the National TBI Model
Systems Data Center’s research and
technical assistance must be designed to
contribute to the following outcomes:
(a) Maintenance of a national
longitudinal database for data submitted
by each of the TBI Model Systems
Centers (TBI Model Systems Database).
This database must provide for
confidentiality, quality control, and
data-retrieval capabilities, using costeffective and user-friendly technology.
(b) High-quality, reliable data in the
TBI Model Systems Database. The
National TBI Model Systems Data
Center must contribute to this outcome
by providing training and technical
assistance to TBI Model Systems
Centers on subject retention and data
collection procedures, data entry
methods, and appropriate use of study
instruments, and by monitoring the
quality of the data submitted by the TBI
Model Systems Centers.
(c) High-quality data collected from
database participants of all racial/ethnic
backgrounds. The National TBI Model
Systems Data Center must contribute to
this outcome by providing knowledge,
training, and technical assistance to the
TBI Model Systems Centers on
culturally appropriate methods of
longitudinal data collection and
participant retention.
(d) Rigorous research conducted by
TBI Model Systems Centers and all
investigators who are analyzing data
from the TBI Model Systems Database.
The National TBI Model Systems Data
Center must contribute to this outcome
by making statistical and other
methodological consultation available
for research projects that use the TBI
Model Systems Database, as well as
center-specific and collaborative
projects of the TBI Model Systems
program.
(e) Enhanced continuity of the TBI
Model Systems Database. The National
TBI Model Systems Data Center must
contribute to this outcome by
establishing and implementing a
mechanism for continued collection of
follow-up data from individuals who
were enrolled by TBI Model Systems
Centers that no longer receive Model
Systems Program funding. This
mechanism must focus on continued
collection of data from up to four TBI
Model Systems Centers that were
funded during the most recent five-year
grant cycle, but that do not receive
subsequent funding under the Model
Systems Program.
(f) Improved quality and efficiency of
the TBI Model Systems Database
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operations through collaboration with
the National Spinal Cord Injury Model
Systems Data Center and the National
Burn Model Systems Data Center.
Priority 4—Rehabilitation of Children
with Traumatic Brain Injury (TBI)
Background
The Department’s regulations
implementing the Individuals with
Disabilities Education Act (IDEA) define
traumatic brain injury as ‘‘* * * an
acquired injury to the brain caused by
an external physical force, resulting in
total or partial functional disability or
psychosocial impairment, or both, that
adversely affects a child’s educational
performance’’ (34 CFR 300.7(c)(12)). The
Centers for Disease Control and
Prevention report that among children
up to 14 years of age, TBI results
annually in an estimated 2,685 deaths,
37,000 hospitalizations, and 435,000
emergency department visits (Langlois,
Rutland-Brown, & Thomas, 2004). These
estimates do not include children who
sustained a TBI and did not seek
medical care or were seen only in
private doctors’ offices. Because most
survivors of moderate to severe TBI
experience chronic, life-long disabilities
with varying degrees of dependence, the
costs of these disabilities in terms of
individual suffering, family burden, and
financial burden to society are quite
significant (Carney, Maynard, DavisO’Reilly, Zimmer-Gembeck, Krages, &
Helfand, 1999).
The effects of TBI can be pervasive,
but researchers who have begun to
document the functional outcomes in
children with TBI have encountered
several obstacles. For example,
assessments of injury characteristics
have rarely included measures of the
location, depth, or severity of brain
insult; environmental, family, and child
characteristics (including pre-injury
functioning) have received insufficient
attention; and follow-up assessments
have largely included outcomes of TBI
at only a single point in time several
years after injury (Taylor, 2004). These
and other limitations must be addressed
in order to better understand and
improve outcomes for children with
TBI.
There also is little high quality
evidence regarding the effectiveness of
rehabilitation interventions for children
with TBI (Carney, Maynard, DavisO’Reilly, Zimmer-Gembeck, Krages, &
Helfand, 1999; Chen, Heinemann, Bode,
Granger, & Mallinson, 2004). When
children who have sustained a TBI are
discharged from emergency and acute
care facilities, they may continue to
receive treatment, including medical
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services; physical, occupational, and
speech therapy; cognitive rehabilitation;
social and behavioral interventions; and
educational and family interventions.
These interventions, however, have
largely not been validated through
experimental design or in carefully
controlled observational studies.
Further, there is a well-documented and
unmet need for intensive, ongoing
services and supports for families and
school staff as children with TBI
transition from medical and
rehabilitation systems to community
and school systems (Ylvisaker et al,
2005).
In addition to the lack of
interventions research and limited
availability of family and school support
services, there is insufficient
information available to ensure the
appropriate identification of children
with TBI who are in need of special
education and related services. Many
children who have sustained a TBI and
reenter the school system fail to receive
the services that they need and that are
mandated by IDEA, in part, because
they fail to be identified or their needs
are not associated with the injury. In
fact, the number of children reported by
States to be receiving special education
and related services under the TBI label
is much lower than would be expected
based on the numbers of children who
sustain a TBI each year (Langlois &
Rutland-Brown, 2005). All of these
problems faced by children with TBI,
their families, and service providers
demonstrate the need for further studies
and research.
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References
Carney, N., Maynard, H., Davis-O’Reilly,
C., Zimmer-Gembeck, M, Krages, K. P., &
Helfand, M. (February, 1999). Supplement to
the evidence report on rehabilitation of
traumatic brain injury: Children and
adolescents (Contract 290–97–0018 to Oregon
Health Sciences University). Rockville, MD:
Agency for Health Care Policy and Research.
Chen, C.C., Heinemann, A.W., Bode, R.K.,
Granger, C.V., & Mallinson, T. (2004). Impact
of pediatric rehabilitation services on
children’s functional outcomes. American
Journal of Occupational Therapy, 58(1), 44–
53.
Langlois, J.A., & Rutland-Brown, W. (2005).
Traumatic brain injury in the United States:
The future of registries and data systems.
Atlanta, GA: Centers for Disease Control and
Prevention, National Center for Injury
Prevention and Control.
Langlois, J.A., Rutland-Brown W., &
Thomas K.E. (2004). Traumatic brain injury
in the United States: Emergency department
visits, hospitalizations, and deaths. Atlanta,
GA: Centers for Disease Control and
Prevention, National Center for Injury
Prevention and Control.
Taylor, G.H. (2004). Research on outcomes
of pediatric traumatic brain injury: Current
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advances and future directions.
Developmental Neuropsychology, 25(1–2),
199–225.
Ylvisaker, M., Adelson, P.D., Braga, L.W.,
Burnett, S.M., Glang, A., Feeney, T., Moore,
W., Rumney, P., & Todis, B. (2005).
Rehabilitation and ongoing support after
pediatric TBI: Twenty years of progress.
Journal of Health Trauma Rehabilitation,
20(1), 95–109.
Proposed Priority
The Assistant Secretary for Special
Education and Rehabilitative Services
proposes a priority for a Disability
Rehabilitation Research Project (DRRP)
on the Rehabilitation of Children with
Traumatic Brain Injury (TBI). Under this
priority, the DRRP must be designed to
contribute to the following outcomes:
(a) Improved physical, cognitive,
social/behavioral, family, educational,
or employment outcomes for children
with TBI by development or testing of
rehabilitation interventions.
(b) Improved transition of children
from health care facilities to school and
community by development or testing of
effective transition strategies.
(c) Improved TBI screening and
special education services for children
by development or testing of methods
and procedures for use in school
settings.
Priority 5—Reducing Obesity and
Obesity-Related Secondary Conditions
in Adolescents and Adults With
Disabilities
Background
Approximately two out of three adults
in the United States are classified as
overweight or obese, and obesity is now
the second leading cause of mortality in
this country (Flegal et al., 2002). As
disturbing as the obesity prevalence is
for the general U.S. population, rates of
obesity among adolescents and adults
with pre-existing disabilities are even
more alarming. A recent study based on
pooled self-report data from the 1994–
1995 National Health Interview Survey
(NHIS), the 1994–1995 Disability
Supplement (NHIS–D), and the 1995
Healthy People 2000 Supplement
reports a 66 percent higher rate of
obesity among people with disabilities
compared to the general population
(Weil et al., 2002). Similarly, a recent
regional study, based on actual
measurements of height and weight,
reported that extreme obesity (a body
mass index (BMI) of 40 or larger) was
approximately four times higher among
persons with disabilities compared to
the general population (Rimmer &
Wang, 2005).
Obesity has a profoundly negative
effect on the overall health status and
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quality of life of individuals with
disabilities. First, like the population at
large, for whom obesity is typically a
primary health condition, obesity
among individuals with disabilities
leads to higher-risks for cardiovascular
disease, type 2 diabetes, hypertension,
osteoarthritis, and certain cancers.
Second, for people with pre-existing
disabilities, obesity constitutes a
significant secondary condition leading
to new physical impairments and
increased mobility limitations, which in
turn further undermine an individual’s
functional abilities and negatively
impact opportunities for employment
and participation in the community
(Kinne, Patrick, & Doyle, 2004). There
also is growing evidence that many of
these chronic health problems and
functional impairments occur earlier
and with more severity among people
with existing disabilities than in the
general adult population (Campbell,
Sheets, & Strong, 1999).
Notwithstanding this information, there
remains a lack of knowledge about both
the antecedents to obesity in adults and
adolescents with disabilities and the
rehabilitation interventions that could
be successful in treating or preventing
this condition.
Lack of routine and timely screening
for obesity by medical providers also
contributes to the magnitude of the
obesity epidemic in this country,
particularly among adults with
disabilities who face well-documented
barriers to accessing primary health care
services (Iezzoni, McCarthy, Davis, &
Siebens, 2001). To address this problem,
the U.S. Preventive Services Task Force
(USPSTF) recently published guidelines
recommending that clinicians screen all
adult patients for obesity based on BMI
and offer appropriate behavioral
interventions and intensive counseling
to promote sustained weight loss for
those who are obese (‘‘Screening for
Obesity in Adults: Recommendations
and Rationale,’’ November 2003).
Further information, however, is needed
to assess the effectiveness of screening
and diagnostic procedures and the
interventions that medical providers are
recommending.
References
Campbell, M.L., Sheets, D., & Strong, P.S.
(1999). Secondary health conditions among
middle-aged individuals with chronic
physical disabilities: implications for unmet
needs for services. Assist Technology, 11(2),
105–122.
Flegal, K.M., Carroll, M.D., Ogden, C.L., &
Johnson, C.L. (2002). Prevalence and trends
in obesity among U.S. adults, 1999–2000.
Journal of the American Medical Association,
2888,1723–1727.
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Iezzoni, L.I., McCarthy, E.P., Davis, R.B., &
Siebens, H. (2001). Mobility impairments and
use of screening and preventive services.
American Journal of Public Health, 90, 955–
961.
Kinne, S., Patrick, D.L., & Doyle, D.L.
(2004). Prevalence of Secondary Conditions
Among People With Disabilities. American
Journal of Public Health, 94(3), 443–445.
Screening for Obesity in Adults:
Recommendations and Rationale (November
2003). U.S. Preventive Services Task Force.
Agency for Healthcare Research and Quality,
Rockville, MD. https://www.ahrq.gov/clinic/
3rduspstf/obesity/obesrr.htm.
Weil, E., Wachterman, M., McCarthy, E.,
Davis, R., Iezonni, L., & Wee, C. (2002).
Obesity among adults with disabling
conditions. Journal of the American Medical
Association, 228,1265–1268.
Proposed Priority
The Assistant Secretary for Special
Education and Rehabilitative Services
proposes a priority for a Disability
Rehabilitation Research Project (DRRP)
on Disability and Obesity: Reducing
Obesity and Obesity-Related Secondary
Conditions in Adolescents and Adults
with Disabilities. Under this priority,
the DRRP must be designed to
contribute to the following outcomes:
(a) Enhanced understanding of the
antecedents and consequences of
obesity as a secondary condition among
adolescents and adults with different
types of pre-existing physical, sensory,
cognitive, and behavioral-health
impairments.
(b) Improved obesity screening and
diagnosis among adolescents and adults
with different types of disabilities by
developing or testing effective screening
and diagnostic methods and procedures.
(c) Improved outcomes for
adolescents and adults with disabilities
with obesity by development or testing
of prevention strategies and treatments.
Priority 6—Model Systems Knowledge
Translation Center (MSKTC)
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Background
NIDRR’s Model Systems Programs
were originally developed to
demonstrate the value of a
comprehensive integrated continuum of
care for individuals with spinal cord
injury (SCI), traumatic brain injury
(TBI), and burn injury (Burn). Currently,
NIDRR’s Model Systems Programs
include 36 centers that conduct or
sponsor research activities designed to
improve rehabilitative and
pharmacological interventions that can
help optimize levels of community
participation, employment, and overall
quality of life for individuals with SCI,
TBI, and Burn. Research sponsored by
the Model Systems Programs has led to
a wealth of publicly available,
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retrievable information about SCI, TBI,
and Burn. Additionally, research
conducted by Model Systems Programs
grantees has advanced knowledge
regarding, and led to changes in, clinical
practice and policy in the fields of SCI,
TBI, and Burn.
The usefulness of NIDRR-funded SCI,
TBI, and Burn research and
development findings and products
depends on how well potential users
can assess the strength and relevance of
these findings and products, as applied
to their particular needs. End-users with
limited scientific training, in particular,
may need assistance in order to
understand competing research claims
or determine the relevance of particular
findings to their individual situations.
In addition, given the nature of
scientific study, practical information
often is based on cumulative
knowledge, not upon the results of any
one study.
The following proposed priority for
an MSKTC is intended to ensure that
information and products developed
and identified through NIDRR-funded
SCI, TBI, and Burn research are of high
quality, are based on scientifically
rigorous research and development, and
are disseminated effectively. To this
end, the proposed priority embraces a
newer concept, knowledge translation
(KT), to shape the effective
dissemination and utilization of
disability and rehabilitation research
results critical to achieving NIDRR’s
mission. KT encompasses the exchange,
synthesis, and ethically sound
application of knowledge within a
complex system of relationships among
researchers and users. See, for example,
the Knowledge Translation Overview of
Canadian Institutes of Health Research
Web site at: https://www.cihr-irsc.gc.ca/
e/7518.html.
Acting as a centralized resource
center, the proposed MSKTC would
establish coordinated, collaborative
relationships among the three Model
Systems Programs (i.e., SCI, TBI, and
Burn Model Systems Programs) to
identify effective dissemination
strategies and to help other Federal
agencies and national organizations use
new information and discoveries
emanating from NIDRR-funded SCI, TBI,
and Burn research.
References
Knowledge Translation Overview.
Canadian Institutes of Health Research. 2005,
from
https://www/cihr-irsc.gc.ca/e/7518.html.
Campbell Collaboration. 2005, from
https://www.campbellcollaboration.org/.
Cochrane Collaboration. 2005, from https://
www.cochrane.org/.
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Department of Education What Works
Clearinghouse from https://
www.whatworks.ed.gov/.
National Rehabilitation Information Center.
2005, from https://www.naric.com/.
National Center for the Dissemination of
Disability Research. 2005, https://
www.ncddr.org/.
Proposed Priority
The Assistant Secretary for Special
Education and Rehabilitative Services
proposes a priority for a Disability
Rehabilitation Research Project to serve
as the Model Systems Knowledge
Translation Center (MSKTC). Under this
priority, the MSKTC must be designed
to contribute to the following outcomes:
(a) Enhanced understanding of the
quality and relevance of NIDRR’s Spinal
Cord Injury (SCI), Traumatic Brain
Injury (TBI), and Burn Injury (Burn)
Model Systems Programs’ findings. The
MSKTC must contribute to this outcome
by identifying and applying appropriate
standards and methods for conducting
research syntheses. This will allow the
Model Systems Programs to bridge gaps
in evidence-based practice and research.
(b) Enhanced knowledge of advances
in SCI, TBI, and Burn research among
consumers, clinicians, and other end
users of such information. The MSKTC
must contribute to this outcome by (1)
identifying effective strategies for, and
guiding targeted dissemination of, SCI,
TBI, and Burn Model Systems Programs’
findings about available services and
interventions for individuals with SCI,
TBI, and Burn; and (2) developing
partnerships and collaborating with key
constituencies and groups conducting
similar work.
(c) Centralization of SCI, TBI, and
Burn Model Systems resources for
effective and uniform dissemination and
technical assistance. The MSKTC must
contribute to this outcome by serving as
a centralized resource for the SCI, TBI,
and Burn Model Systems Centers.
Priority 7—Assistive Technology (AT)
Outcomes Research Project
Background
The Assistive Technology Act of
1998, as amended (29 U.S.C. 3001 et
seq.), defines an assistive technology
(AT) device as ‘‘any item, piece of
equipment, or product system, whether
acquired commercially, modified, or
customized, that is used to increase,
maintain, or improve functional
capabilities of individuals with
disabilities’’ (29 U.S.C. 3001(3)(4)). AT
serves a broad and diverse range of
functional needs among people with an
expansive range of potentially disabling
conditions. AT devices and AT services
are provided in many contexts,
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including rehabilitation programs,
schools, employment programs, and
residential and independent living
programs.
Current NIDRR-sponsored AT
Outcomes Research Projects are creating
and classifying new outcomes measures
to help determine and describe the
impact that various AT devices and
services have on the lives of people with
disabilities (Jutai, Fuhrer, Demers,
Scherer, & DeRuyter, 2005). While the
ability to measure potential outcomes of
AT use is maturing through this NIDRRsponsored research, the ability to
measure key characteristics of AT
interventions is still in its infancy.
To advance AT outcomes research
beyond a collection of ad hoc
evaluations of specific products, it is
necessary to develop a commonly
shared means of classifying all aspects
of AT interventions. Standardization of
intervention measurement would
promote the replicability of AT
interventions that are shown by rigorous
research to be associated with positive
outcomes. A valid classification of AT
interventions would capture key
characteristics of the device or devicetype being provided, as well as
information about key characteristics of
AT provision, including setting,
assessment, fit/customization, user
training, and device maintenance
(Fuhrer, 2001; Edyburn, 2003).
In addition to the creation and
classification of new outcomes
measures, current AT Outcomes
Research Project grantees have
developed conceptual frameworks to
guide future AT outcomes research
(Fuhrer, Jutai, Scherer, & DeRuyter,
2003). These grantees have designed
sophisticated data-collection interfaces
to bring new efficiencies to the
collection of data on AT interventions,
key contextual factors, and outcomes.
To facilitate the development of
rigorous evidence-based knowledge in
the AT field, these conceptual
frameworks and data collection
technologies must be applied more
broadly and systematically. More
systematic application of these tools
would allow the AT field to move
beyond a series of limited ad hoc
evaluations of single AT products,
towards a scientific body of knowledge
regarding expected outcomes associated
with the delivery of a wide variety of
AT interventions.
References
Edyburn, D. (2003). Measuring Assistive
Technology Outcomes: Key Concepts. Journal
of Special Education Technology. 18(1): 53–
55.
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Fuhrer, M., Jutai, J., Scherer, M., &
DeRuyter, F. (2003). ‘‘A Framework for the
Conceptual Modeling of Assistive
Technology Device Outcomes.’’ Disability
and Rehabilitation. 25: 1243–1251.
Fuhrer, M. (2001). Assistive Technology
Outcomes Research: Challenges Met and Yet
Unmet. American Journal of Physical
Medicine and Rehabilitation. 80(7): 528–535.
Jutai, J., Fuhrer, M., Demers, L., Scherer,
M., & DeRuyter, F. (2005). Toward a
Taxonomy of Assistive Technology Device
Outcomes. American Journal of Physical
Medicine and Rehabilitation. 84(4): 294–302.
Proposed Priority
The Assistant Secretary for Special
Education and Rehabilitative Services
proposes a priority for a Disability
Rehabilitation Research Project (DRRP)
for an Assistive Technology (AT)
Outcomes Research Project. Under this
priority, the DRRP must be designed to
contribute to the following outcomes:
(a) Improvement of the AT field’s
ability to measure the impact of AT on
the lives of people with disabilities by
continuing to develop AT outcomes
measures and measurement systems.
(b) Improvement of the AT field’s
ability to measure the impact of AT on
the lives of people with disabilities by
developing validated methods for
measuring and classifying AT
interventions, including key
characteristics of both the AT device
and AT provision (e.g., setting,
assessment, fit/customization, usertraining, and device maintenance).
(c) Enhanced understanding of the
impact of AT on the lives of people with
disabilities by conducting at least one
research project that systematically
applies state-of-the-science measures of
AT interventions, outcomes, and data
collections mechanisms.
(d) Collaboration with the relevant
NIDRR-sponsored projects, such as the
Rehabilitation Research Training Center
on Measuring Rehabilitation Outcomes
and relevant projects within the
Rehabilitation Engineering Research
Center program, as identified through
consultation with the NIDRR project
officer.
Priority 8—Mobility Aids and
Wayfinding Technologies for
Individuals With Blindness and Low
Vision
Background
Three of the most challenging and
dangerous problems faced by
individuals with blindness and low
vision are travel related: (1) Negotiating
complex transit stations; (2) locating bus
and metro train stops; and (3) crossing
light-controlled intersections safely and
efficiently (Crandall, Bentzen, Myers, &
Brablyn, 2001). To address these
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challenges, the Transportation Equity
Act for the 21st Century requires that
transportation plans and projects
include, where appropriate,
consideration of pedestrian safety
issues, including installation of audible
traffic signals and signs at street
crossings (23 U.S.C. 217(g)(c)). Our
knowledge about the effectiveness of the
range of technology solutions developed
in response to this law and other
intervention strategies for safety, travel,
location, and mobility issues is limited,
particularly with regard to
subpopulations within the blind and
visually impaired community.
Navigation and travel related
challenges are most often addressed by
two primary approaches, orientation
and mobility (O&M) and wayfinding
technology solutions. O&M is the
conventional approach designed to
provide instruction and experience in
independent travel in the community,
including the use of public
transportation. Orientation refers to an
individual’s ability to monitor his or her
position in relation to the environment,
and mobility refers to an individual’s
ability to travel safely, detecting and
avoiding obstacles and other potential
hazards. Advanced technologies
designed to assist individuals with
blindness and low vision in attaining
the body of knowledge relative to the
location of spaces through which they
travel is known as wayfinding or
‘‘environmental literacy.’’ Whereas
many O&M tools, such as white canes,
are designed to address a traveler’s
mobility safety concerns, wayfinding or
environmental literacy tools, such as
talking signs located at street crossings,
are designed to provide a traveler with
orientation information. Some O&M
aids are worn on the body and often are
designed to detect and identify obstacle
features. Wayfinding or environmental
systems are technologies that are
typically embedded in the texture of
spaces and that provide ‘‘locationbased’’ information (access to some kind
of ‘‘knowledge sharing network’’ or
‘‘geographic data base’’)—for example,
manually activated audible pedestrian
signals embedded in intersection traffic
lights (Baldwin, D., 2005).
Although O&M and wayfinding
techniques are widely used by
individuals with vision loss, there is
ongoing controversy about whether
newly developed wayfinding
technologies should supplement rather
than supplant already accepted O&M
aids such as white canes and guide
dogs. Currently, no empirically based
studies examining or comparing
differences between outcomes for O&M
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users and outcomes for wayfinding
technology users exist.
There is a paucity of sound scientific
studies examining the effectiveness of
both O&M and wayfinding solutions
and intervention approaches in varied
situations, conditions, and functional
capacities, but the literature that is
available identifies specific problems
with existing technology and supports
the need for better wayfinding and O&M
solutions. For example, bird-call type
signals do not provide unambiguous
information about which crosswalk has
the walk interval. Signals comprised
only of a bird-call and bell do not
indicate the presence or location of a
pedestrian push button and, therefore,
do not solve one of the most important
problems associated with push buttons:
the difficulty in knowing whether
pedestrian action is required (Bentzen,
Barlow, & Franck, 2000). Although
advances have been made to address
some of these problems, there is no
consensus about whether available
solutions are adequate to address the
travel needs of individuals with
blindness and low vision. Research
leading to development of innovative
and effective solutions that will help
individuals with blindness and low
vision to safely and independently
navigate their surroundings, and a better
understanding of technology
applications would increase our
capacity to improve disability and
rehabilitation outcomes for these
individuals.
References
Baldwin, D. Navigational Technology
Textbook Current Wayfinding Technology.
Retrieved April 22, 2005, from https://
www.wayfinding.net/
iibnNECtextcurrent.htm.
Bentzen, B.L., Barlow, J.M., & Franck, L.,
2000. Addressing barriers to blind
pedestrians at signalized intersections.
Institute of Transportation Engineers, 70–9,
32–35.
Crandall, W., Bentzen, B.L., Myers, L., &
Brablyn, J. (2001). New orientation and
accessibility option for persons with visual
impairment: Transportation applications for
remote infrared audible signage. Clinical and
Experimental Optometry, 84:3 120–131.
National Eye Institute https://
www.nei.nih.gov/eyedata/ (2004).
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Proposed Priority
The Assistant Secretary for Special
Education and Rehabilitative Services
proposes a priority for a Disability
Rehabilitation Research Project (DRRP)
on Mobility Aids and Wayfinding
Technologies for Individuals With
Blindness and Low Vision. To meet this
priority, the DRRP must be designed to
contribute to the following outcomes:
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(a) Effective technology solutions and
intervention approaches that can enable
blind and low vision individuals to
safely and independently navigate their
surroundings. The DRRP must
contribute to this outcome by
identifying or developing and testing
methods, models, and measures that
will inform the technology solutions
and intervention approaches.
(b) Improved understanding about the
effectiveness of wayfinding technology
and orientation and mobility (O&M)
techniques for navigation and travel
problems. The DRRP must be designed
to contribute to this outcome by, at a
minimum, conducting comparative
analysis of outcomes for specific
subpopulations of individuals with
blindness and low vision who use O&M
techniques and wayfinding technology.
(c) Increased technical and scientific
knowledge about the applications of
navigation and travel technologies for
individuals with blindness and low
vision, leading to more effective use of
technologies and intervention strategies,
through the development of knowledge
translation and utilization activities.
(d) Coordination of research activities.
The DRRP must contribute to this
outcome by collaborating and
consulting with relevant Federal
agencies responsible for the
administration of public laws that
address access to and usability of
transportation and transit-related
systems and environmental structures
for individuals with disabilities, such as
the Architectural and Transportation
Barriers Compliance Board, the U.S.
Department of Transportation’s Federal
Highway Administration, Federal
Transit Administration and National
Highway Traffic Safety Administration,
and relevant NIDRR-funded research
projects as identified through
consultation with the NIDRR project
officer.
Priority 9—Improving Employment
Outcomes for the Low Functioning Deaf
(LFD) Population
Background
Current population estimates indicate
that there are approximately 53 million
individuals with disabilities in the
United States and an estimated 8
million of these individuals are deaf or
hard of hearing (McNeil, 1994; 1995).
The pervasiveness of a hearing problem
and its impact on every aspect of life,
including employment status, is well
documented (Stika, 1997; Hetu,
Lalonde, and Getty, 1994).
Within the population of individuals
who are deaf or hard of hearing there is
an even smaller sub-population,
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estimated at between 125,000 and
165,000 persons referred to as ‘‘low
functioning deaf’’ (LFD). While
individuals considered LFD share the
primary disability of hearing loss, as a
group, they also are compromised by a
combination of environmental risk
factors and a lack of appropriate
environmental and social supports.
Most LFD individuals have limited
communication skills, often are unable
to live independently, cannot obtain or
maintain employment, and exhibit
minimal social and emotional
competency.
Studies indicate that the functional
capacity of individuals who are LFD
present unique challenges and
complications at the individual and
systems levels. More specifically,
significant difficulty with all modes of
communication, including the limited
literacy proficiency that characterizes
the LFD population (Wheeler-Scruggs,
2002), is a potentially important factor
in disability and rehabilitation
outcomes across the lifespan and major
life domains for these individuals.
While several factors influence
employment outcomes for the general
population of individuals who are deaf
or hard of hearing, the LFD population
is at particular risk for being
underserved by rehabilitation and
vocational training systems. Most LFD
individuals are inadequately prepared
for workforce participation due to
limited communication abilities and
low literacy rates; often LFD adults read
below the second grade level and are
unable to complete high school.
Additionally, the majority of existing
social supports and services are targeted
to deaf and hard of hearing youth able
to participate in college and other
postsecondary vocational programs
where a certain level of academic
achievement is presumed (National
Association for the Deaf, 2004). Thus,
LFD individuals are at a distinct
disadvantage in their ability to access
and benefit from existing employment
and vocational services and supports.
Further, although the literature in this
field documents the impact of hearing
problems on functional outcomes, there
is limited understanding about the
unique employment needs of the LFD
population. Past research on LFD and
employment has not extensively
examined the various elements of job
readiness, job placement, and retention
in relation to the impact that programs
such as Supplemental Security Income,
Social Security Disability Insurance,
and welfare have on long-term
employment outcomes for individuals
who are LFD.
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The complexity of the employment
issues facing individuals who are LFD
presents a unique opportunity for
researchers to expand the current
knowledge base and facilitate
development of the most effective
methods, approaches, and intervention
strategies to improve employment
outcomes for the LFD population (Dew,
1999). Research is needed to inform
policy, program planning, and
development activities and to assist
with improving systems and individual
level outcomes for the LFD population.
References
Dew, Donald. Serving Individuals Who Are
Low Functioning Deaf. 25th Institute on
Rehabilitation Issues, The George
Washington University, Washington DC,
1999.
Hetu, R., Lalonde, M., & Getty, L. (1987).
Psychosocial disadvantages associated with
occupational hearing loss as experienced by
the family. Audiology, 26, 141–152.
McNeil J.M. ‘‘Americans with disabilities,
1994—95’’. Washington, DC: U.S.
Department of Commerce, Bureau of the
Census, 1997. (Current population reports;
series P70, no. 61).
National Association for the Deaf, 2004.
LFD Strategic Work Group (2004). A Model
for a National Collaborative Service Delivery
System: Position Paper. Washington DC.
Retrieved from NAD Web site: https://
www.nad.org/lfd.
Stika, C.J. (1997). Living with hearing
loss—focus group results: Family
relationships and social interactions. Hearing
Loss, September/October, November/
December.
Wheeler-Scruggs, K. Assessing the
employment and independence of people
who are deaf and low functioning. American
Annals of the Deaf, October, 2002.
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Proposed Priority
The Assistant Secretary for Special
Education and Rehabilitative Services
proposes a priority for a Disability
Rehabilitation Research Project (DRRP)
on Improving Employment Outcomes
for the Low Functioning Deaf (LFD)
Population. Under this priority, the
DRRP must be designed to contribute to
the following outcomes:
(a) Enhanced knowledge about the
unique functional and communication
characteristics of the LFD population
and the extent to which these
characteristics affect disability and
rehabilitation outcomes, including labor
force participation and employment
preparation. The DRRP must contribute
to this outcome by developing and
testing protocols that accurately
measure population characteristics; and
psychometrically sound instruments
that measure predictors of disability,
rehabilitation, and employment
outcomes.
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(b) Improved employment outcomes
and reduction of barriers to labor force
participation for individuals who are
LFD. The DRRP must contribute to this
outcome by developing theory-based
intervention strategies and methods that
help to enhance functional skills, social
interaction, communication and literacy
competencies, and scientifically-sound
approaches for identifying barriers to
labor force participation.
(c) Collaboration with NIDRRsponsored projects, including the
Rehabilitation Research and Training
Center (RRTC) on Measuring
Rehabilitation Outcomes and other
relevant projects within NIDRR’s RRTC
and Field Initiated programs.
Priority 10—Disability Business
Technical Assistance Centers (DBTACs)
Background
The Americans with Disabilities Act
of 1990, as amended, 42 U.S.C. 12101 et
seq. (ADA), prohibits discrimination
against individuals with disabilities in
employment, transportation, public
accommodations, State and local
government services, and
telecommunications. Since 1991, NIDRR
has supported 10 regional DBTACs that
have provided technical assistance and
training and disseminated information
on the requirements of the ADA to
entities covered by the law and
individuals with disabilities. The
current regional DBTACs provide
information and services on ADA issues
relating to employment, public services,
and public accommodations, and
communicate with businesses, public
organizations, architects, individuals
with disabilities, disability
organizations, and others on the law’s
requirements (see https://www.adata.org/
centers.htm for a current listing of the
DBTACs). Each DBTAC’s activities vary,
but all regional DBTACs provide
technical assistance and training,
disseminate materials, provide
information and referral services, build
public awareness, and work to build
local capacity to promote technical
assistance and training on the ADA.
DBTACs provide their services via
telephone calls (including toll-free
‘‘800’’ number calls), the World Wide
Web, workshops and other training
sessions. Services provided by DBTACs
in 2004 included providing training on
employment issues for State human
resource personnel; collaborating with a
State agency to develop an ADA
reference guide for agencies within the
State; providing training on accessible
Web design for city and State personnel;
assisting in the development of State
policies regarding the accessibility of
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information technology procured and
used by State agencies; providing
training to local health departments on
accessibility of medical services;
development of a training curriculum
on workplace accommodations for
employers; conducting Web casts for
public and private employers on
disability-related employment policies
and job accommodations; and surveying
polling places to determine
accessibility.
NIDRR is proposing this priority to
support the funding of 10 regional
DBTACs to provide technical assistance
on the ADA and other assistance
designed to improve employment
outcomes for individuals with
disabilities. Despite past attempts to
reduce unemployment rates and
increase workforce participation,
individuals with disabilities continue to
be employed at much lower rates than
individuals without disabilities. The
2003 American Community Survey, for
example, found that approximately 37.8
percent of adults age 21 to 64 with
disabilities were employed, compared to
approximately 77.5 percent of adults
without disabilities (U.S. Census
Bureau, 2003). Identifying strategies for
improving employment outcomes is
critical if such disparities are to be
reduced.
Knowledge gained from the DBTAC
program about the ADA, employers, and
employment issues suggests that
research and research-based information
are needed to help employers, State and
local governments, other public entities,
private entities, and postsecondary
institutions better achieve the objectives
of the ADA and improve outcomes for
individuals with disabilities. Through
this proposed priority, NIDRR seeks to
advance the DBTAC program beyond a
strict focus on compliance with the
ADA and expand the focus to include
assistance in identifying and
implementing a variety of more effective
intervention approaches and more costeffective strategies to help individuals
with a variety of disabilities reach their
full potential on the job. NIDRR also
intends that this proposed priority will
improve the research capacity of the
regional DBTACs so that the DBTACs
can identify areas where research is
warranted and conduct targeted
research and development that would
be of benefit to employers and to
individuals with disabilities.
We are proposing that each of the 10
regional DBTACs will provide technical
assistance to increase the capacity of
other organizations to provide technical
assistance; identify problematic areas
where research or informational
campaigns might aid in the avoidance of
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or solution to problems associated with
compliance with the ADA in their
region; and conduct research to inform
program planning, development, policy,
and practice.
Finally, in order to prevent
duplication of effort, NIDRR intends to
fund, under a separate priority, a center
that will be responsible for taking the
lead in making available, through a
central Web site, information about the
ADA that is of interest nationally and
would be useful across all regions. This
center, the DBTAC Coordination,
Outreach, and Research Center (DBTAC
CORC), will be expected to serve several
functions, including overall
coordination of activities among the
regional DBTACs, conducting research,
and facilitating research capacity
building and dissemination.
Reference
U.S. Census Bureau, American Community
Survey, 2003 Data Profile, https://
www.census.gov/acs/www/Products/Profiles/
Single/2003/ACS/Tabular/010/
01000US2.htm.
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Proposed Priority
The Assistant Secretary for Special
Education and Rehabilitative Services
proposes to fund, under its Disability
Rehabilitation Research Projects
program, 10 Disability and Business
Technical Assistance Centers (DBTACs),
1 within each of the 10 U.S. Department
of Education regions. Each DBTAC must
be designed to contribute to the
following outcomes:
(a) Improved understanding about
rights and responsibilities under the
Americans with Disabilities Act of 1990,
as amended, 42 U.S.C. 12101 et seq.
(ADA), as well as developments in case
law, policy, and implementation
through rigorous research and technical
assistance activities.
(b) Improved employment outcomes
for individuals with disabilities by
conducting activities that help to
increase accommodations, access to
technology, and supports in the
workplace, especially in high growth
industries.
(c) Enhanced ADA information
dissemination, awareness, and referral
activities by establishing effective,
coordinated local, regional, and national
resource networks. The DBTAC will
contribute to this outcome by, among
other activities, partnering with the
DBTAC Coordination, Outreach and
Research Center (DBTAC CORC) and
other regional DBTACs to develop,
implement and evaluate these networks.
(d) Enhanced capacity of entities at
the local and State levels and within
specific industries to provide technical
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assistance and training on the ADA
through dissemination of information
that promotes awareness of the ADA.
(e) Identification of impediments to
compliance with the ADA and
individuals’ access to technology,
postsecondary education, and the
workforce, and of tested solutions and
innovative approaches for eliminating
these impediments by conducting
targeted, rigorous research activities in
at least one of the following areas:
employment, technology and
postsecondary education, technology
and school-to-work transition, and
participation and community living.
(f) Enhanced quality and relevance of
information, and dissemination of
research-based information through
adherence to standards and guidelines
that are consistent with evidence-based
practices for research dissemination and
evaluation (see https://www.cebm.net,
https://www.cochrane.org, https://
www.campbellcollaboration.org/
guide.flow.pdf, https://www.ngc.gov,
https://www.science.gov/).
(g) Improved technical assistance and
research capacity through development
and application of effective
coordination strategies within the
network of relevant NIDRR
Rehabilitation Research and Training
Centers, Rehabilitation Engineering
Research Centers, Disability and
Rehabilitation Research Projects,
Assistive Technology and Outcomes
Research Projects, NIDRR-funded
knowledge translation and
dissemination centers, employers,
industries, and community entities.
(h) Improved research capacity
through scientifically sound data
collection and analysis leading to
identification of research topics and
submission of a preliminary research
proposal to the DBTAC CORC beginning
in the first year of the project period,
and conducting rigorous, high quality
research beginning in the second year of
the project period.
(i) Improved knowledge about the
provision of ADA and employmentrelated technical assistance,
implementation of the ADA, and
employment outcomes through
submission of region-specific
information and data to the DBTAC
CORC for analysis and reporting.
Proposed Priority 11—Disability
Business Technical Assistance Centers
(DBTAC) Coordination, Outreach, and
Research Center
Background
The Americans with Disabilities Act
of 1990, as amended, 42 U.S.C. 12101 et
seq. (ADA), prohibits discrimination
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against individuals with disabilities in
employment, transportation, public
accommodations, State and local
government services, and
telecommunications. Since 1991, NIDRR
has supported 10 regional Disability and
Business Technical Assistance Centers
(DBTACs) that have provided technical
assistance and training, and
disseminated information on the
requirements of the ADA to entities
covered by the law and individuals with
disabilities. (See the background
statement and priority for Proposed
Priority 10—Disability and Business
Technical Assistance Centers (DBTACs)
for additional information on DBTAC
activities.) Despite past efforts, however,
unemployment rates for individuals
with disabilities remain high. For that
reason, NIDRR seeks to advance the
DBTAC program beyond a strict focus
on compliance with the ADA and
expand the focus to include assistance
in identifying and implementing
research-based interventions.
NIDRR is proposing this priority to
support the funding of an entity to take
the lead in conducting activities to
improve the capacity of the regional
DBTACs to use research-based
information to help achieve the
objectives of the ADA and improve
employment outcomes for individuals
with disabilities. This entity, the
DBTAC Coordination, Outreach, and
Research Center (DBTAC CORC), will
serve several functions, including
overall coordination of activities among
the regional DBTACS, conducting
research, facilitating research capacity
building, and information
dissemination. The key goals of the
DBTAC CORC are improving ADA and
employment-related technical assistance
to employers, State and local
governments, and other public entities;
enhancing understanding and
knowledge about the ADA, employers,
and employment issues; and improving
research capacity related to the ADA
and employment. Accomplishing these
goals will require a coordinated effort to
facilitate partnerships and collaborative
research and development activities that
respond to the state of the science and
national needs. All 10 regional DBTACs
are expected to provide region-specific
information and contribute data to the
DBTAC CORC to support this effort.
The regional DBTACs and the DBTAC
CORC will share some responsibilities;
however, they each play a distinct role
within the DBTAC program. For
example, regional DBTACs provide
frontline technical assistance to help
with implementation of the ADA and
conduct research that leads to improved
employment outcomes for individuals
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with disabilities. While the DBTAC
CORC does not have oversight
responsibility for the regional DBTACs,
it provides technical assistance to the
regional DBTACs to increase their
research capacity and generate evidence
to inform practice, based on
scientifically-sound research.
The Department intends to have
substantial and sustained involvement
in the activities of the DBTAC CORC to
be funded through this proposed
priority, including by shaping the
grantee’s priorities, activities, and major
products to meet the purposes of this
program. The details and parameters of
the Department’s expectations and
involvement with the DBTAC CORC
will be included in the Department’s
cooperative agreement with the grantee
that receives an award under this
proposed priority. This project will
work closely with NIDRR through a
cooperative agreement.
Proposed Priority
The Assistant Secretary for Special
Education and Rehabilitative Services
proposes to provide funding, under its
Disability Rehabilitation Research
Projects program, for a DBTAC
Coordination, Outreach, and Research
Center (DBTAC CORC). The DBTAC
CORC must be designed to contribute to
the following outcomes:
(a) Improved public access to
information relating to the Americans
with Disabilities Act of 1990, as
amended, 42 U.S.C. 12101 et seq.
(ADA), through development and
maintenance of a public Web site that
includes relevant information that is of
interest nationally and that would be
useful across all DBTAC regions,
preparation of documents in a format
that meets a government or industryrecognized standard for accessibility,
and establishment of a DBTAC database
to support regional DBTAC activities.
(b) Improved technical assistance,
collaboration, information
dissemination, knowledge translation
and training materials through a
national, coordinated process for
developing materials to address topics
that are relevant across regions; and use
of a document review board to assist
with development and review of
collaborative products and research
activities.
(c) Increased research capacity
building and high quality research
through synthesis and analysis of ADA
information and data provided by the
regional DBTACs, and review of
literature and related information from
other sources, in order to produce
evidence reports, generate topics for the
regional DBTAC research activities,
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identify areas where additional research
is warranted, conduct relevant research,
and enhance understanding of ADA
compliance and implementation issues
on a national level.
(d) Enhanced capacity of regional
DBTACs to assist with improving
employment outcomes, workplace
supports and accommodations, and
ADA compliance by producing evidence
reports, conducting rigorous analyses of
regional DBTAC data, and evaluating
products and proposed publications.
The DBTAC CORC will contribute to
this outcome by (1) establishing a
document review board to review
regional DBTAC plans for new research
activities, products, and publications
and to conduct systematic reviews
linked to a set of evidence questions
based on scientific studies and
standards (see https://www.cebm.net,
https://www.cochrane.org, https://
www.campbellcollaboration.org/
guide.flow.pdf, https://www.ngc.gov,
https://www.science.gov/); (2)
establishing guidelines for submission
of information to the DBTAC CORC; and
(3) providing technical assistance to
regional DBTACs.
(e) Improved knowledge of and
contribution to the state of the science
within the subject areas covered by the
regional DBTACs by serving as a
consultant to regional DBTACs to
support research capacity building,
facilitating development of a
coordinated national research agenda,
and working cooperatively with regional
DBTAC grantees to assist with the
development of research topics and
activities.
(f) Enhanced coordination of
information dissemination on DBTAC
activities, research findings,
publications, products, and tools
through coordination of the network of
appropriate NIDRR research projects,
including Rehabilitation Research and
Training Centers, Disability and
Rehabilitation Research Projects, FieldInitiated Projects, Rehabilitation
Engineering Research Centers, and
NIDRR dissemination centers, including
the National Rehabilitation Information
Center (https://www.naric.com) and the
National Center for the Dissemination of
Disability Research (https://
www.ncddr.org).
(g) Increased use of DBTAC-generated
products and information by developing
strategies to promote the use of
developed products and improved
relevance and quality of the products
through assessment of their
effectiveness and impact on practice
and policy.
(h) Increased application of research
findings and products through
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translation of DBTAC evidence reports
into practice guidelines, quality
improvement products, and technical
assistance tools.
(i) Enhanced understanding about the
state of the science and improved
program planning, development and
evaluation by hosting a DBTAC
biannual program development and
planning meeting beginning in year one
of the project period; and an annual
conference leading to a report of
proceedings in years three through five
of the project period.
Rehabilitation Research and Training
Centers (RRTCs)
RRTCs conduct coordinated and
integrated advanced programs of
research targeted toward the production
of new knowledge to improve
rehabilitation methodology and service
delivery systems, alleviate or stabilize
disability conditions, or promote
maximum social and economic
independence for persons with
disabilities. Additional information on
the RRTC program can be found at:
https://www.ed.gov/rschstat/research/
pubs/res-program.html#RRTC.
General Requirements of RRTCs
RRTCs must:
• Carry out coordinated advanced
programs of rehabilitation research;
• Provide training, including
graduate, pre-service, and in-service
training, to help rehabilitation
personnel more effectively provide
rehabilitation services to individuals
with disabilities;
• Provide technical assistance to
individuals with disabilities, their
representatives, providers, and other
interested parties;
• Demonstrate in their applications
how they will address, in whole or in
part, the needs of individuals with
disabilities from minority backgrounds;
• Disseminate informational materials
to individuals with disabilities, their
representatives, providers, and other
interested parties; and
• Serve as centers of national
excellence in rehabilitation research for
individuals with disabilities, their
representatives, providers, and other
interested parties.
Priority 12—Rehabilitation Research
and Training Center (RRTC) on Effective
Independent and Community Living
Solutions and Measures
Background
Advances in technology and research
have helped to enhance our
understanding about disability and to
improve outcomes for individuals with
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disabilities. However, there are
numerous barriers that prevent
individuals with disabilities from full
participation in society. Data indicate
that there are large gaps in participation
in home, community, education, and
workplace activities between
individuals with and individuals
without disabilities. Compared to
individuals without disabilities,
individuals with disabilities are more
likely to be homebound due to lack of
transportation (Department of
Transportation, 2003). Also, compared
to individuals without disabilities,
individuals with disabilities are less
likely to own a home (internal NIDRR
analysis of U.S. Census 2000) and less
likely to be employed (Waldrop, J. &
Stern, S., 2003). Individuals with
disabilities also are less likely to
socialize or engage in a number of other
activities (National Organization on
Disability, 2004).
A variety of factors may account for
disparities between individuals with
and individuals without disabilities;
these include differences in functional
abilities, health and well-being, access
to assistive technology and personal
supports, economic resources, and a
variety of physical, social, cultural, and
environmental barriers. However, we
have limited understanding about the
effects that environmental barriers and
facilitators at the systems and
individual levels have on opportunities
for participation for people with
disabilities, particularly with respect to
differences in outcomes for specific
disability populations and within
specific environmental conditions.
Laws protecting the civil rights of
individuals with disabilities and various
disability policies have helped to
promote the inclusion of and
participation by individuals with
disabilities and foster change. For
example, Executive Order 13217,
‘‘Community-based Alternatives for
Individuals with Disabilities,’’ requires
Federal agencies to implement the U.S.
Supreme Court’s 1999 decision in
Olmstead v. L.C. (527 U.S. 581) (https://
www.cms.hhs.gov/olmstead/
default.asp). However, barriers to
implementation of the Olmstead
decision and to full participation (e.g.,
lack of affordable, accessible housing
and reliable, accessible transportation;
difficulty obtaining well-qualified
personal attendants; and frequent social
isolation) are preventing the inclusion
of and participation by individuals with
disabilities in society. Consequently,
research is needed to inform
development of new, validated
strategies, supports, programs,
interventions, guidelines, and policies
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to achieve improved community living
outcomes for deinstitutionalized
individuals or those diverted from
potential institutionalization.
Additionally, the demand for
evidence-based practice requires the
development, evaluation, and use of
scientifically sound measures to
evaluate the effectiveness and impact of
programs and interventions intended to
alleviate disparities in participation.
Given the scarcity of economic
resources, research is also needed to
understand the costs and benefits of
investments intended to maximize
independence and participation.
Research can help to inform the
development of the next generation of
measures that can be easily utilized to
drive decisions made by key
stakeholders and improve
understanding about environmental,
systems, and individual level factors
that influence the participation of
individuals with disabilities in society
across their lifespan.
References
National Council on Disability, 2003.
‘‘Olmstead: Reclaiming Institutionalized
Lives’’. Washington, DC.
National Organization on Disability (2004).
‘‘2004 N.O.D./Harris Survey of Americans
with Disabilities, detailed results’’. Retrieved
from the Web. https://www.nod.org/
Resources/harris2004/harris2004_data.pdf.
Fox-Grage, W., Folkemer, & Lewis, J.
(2003). ‘‘The states’ response to the Olmstead
decision: How are states complying?’’
Denver, CO: National Conference on State
Legislatures.
Sheets, D.J., Liebig, P.S. & Campbell, M.L.
(2002). ‘‘State rehabilitation agencies, aging
with disability, and technology: Policy issue
and implications’’. Northridge, CA: 2003
Technology and Persons with Disabilities
Conference, Center on Disabilities, California
State University, Northridge.
U.S. Department of Transportation, Bureau
of Transportation Statistics, (2003). ‘‘BTS
Issue Brief’’. Washington DC. Retrieved from
the Web. https://www.bts.gov/publications/
issue_briefs/number_03/pdf/entire.pdf.
Waldrop, J. and Stern, S. (2003).
‘‘Disability Status: 2000, Census 2000 Brief’’.
Washington, DC: U.S. Department of
Commerce, U.S. Census Bureau.
Proposed Priority
The Assistant Secretary proposes a
priority for a Rehabilitation Research
and Training Center (RRTC) on Effective
Independent and Community Living
Solutions and Measures. To meet this
priority, the RRTC’s research must be
designed to contribute to the following
outcomes:
(a) Enhanced participation by
individuals with disabilities at home, in
the community, or in educational or
workplace activities through
development of effective theory-based
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intervention methods and outcome
measures.
(b) Improved intervention approaches
and guidelines that help to remove or
reduce barriers to full community
integration and participation for
individuals with disabilities. The RRTC
must contribute to this outcome by
conducting rigorous research examining
the implementation of the Olmstead
decision and practices that serve as
facilitators or barriers to independent
and community living.
(c) Improved understanding about the
economic utility of existing or proposed
policies and practices to maximize
independence and participation for
individuals with disabilities through
development of scientifically sound,
valid and reliable methods and
measures to assess these policies and
practices.
Rehabilitation Engineering Research
Centers Program General Requirements
of Rehabilitation Engineering Research
Centers (RERCs)
RERCs carry out research or
demonstration activities in support of
the Rehabilitation Act of 1973, as
amended, by:
• Developing and disseminating
innovative methods of applying
advanced technology, scientific
achievement, and psychological and
social knowledge to (a) solve
rehabilitation problems and remove
environmental barriers and (b) study
and evaluate new or emerging
technologies, products, or environments
and their effectiveness and benefits; or
• Demonstrating and disseminating
(a) innovative models for the delivery of
cost-effective rehabilitation technology
services to rural and urban areas and (b)
other scientific research to assist in
meeting the employment and
independent living needs of individuals
with severe disabilities; or
• Facilitating service delivery systems
change through (a) the development,
evaluation, and dissemination of
consumer-responsive and individual
and family-centered innovative models
for the delivery to both rural and urban
areas of innovative cost-effective
rehabilitation technology services and
(b) other scientific research to assist in
meeting the employment and
independence needs of individuals with
severe disabilities.
Each RERC must provide training
opportunities, in conjunction with
institutions of higher education and
nonprofit organizations, to assist
individuals, including individuals with
disabilities, to become rehabilitation
technology researchers and
practitioners.
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Additional information on the RERC
program can be found at: https://
www.ed.gov/rschstat/research/pubs/
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Priorities 13, 14, and 15—Rehabilitation
Engineering Research Centers (RERCs)
for Technologies for Successful Aging
(Priority 13), Wheelchair Transportation
Safety (Priority 14), and Wireless
Technologies (Priority 15)
Background
Individuals with disabilities regularly
use products developed as the result of
rehabilitation and biomedical research
to achieve and maintain maximum
physical function, live independently,
study and learn, and attain gainful
employment. The range of engineering
research encompasses not only assistive
technology but also technology at the
systems level (i.e., the built
environment, information and
communication technologies,
transportation, etc.) and technology that
interfaces between the individual and
system and is basic to community
integration.
The NIDRR RERC program has been a
major force in the development of
technology to enhance independent
function for individuals with
disabilities. The RERCs are recognized
as national centers of excellence in their
respective areas and collectively
represent the largest federally supported
program responsible for advancing
rehabilitation engineering research. For
example, the RERC program was an
early pioneer in the development of
augmentative communication and has
been at the forefront of prosthetics and
orthotics research for both children and
adults. RERCs have played a major role
in the development of voluntary
standards that the medical equipment
and technology industries use when
developing wheelchairs, wheelchair
restraint systems, information
technologies, and the World Wide Web.
RERCs also have been a driving force in
the development of universal design
principles that can be applied to the
built environment, information
technology, and consumer products.
Advancements in basic biomedical
science and technology have resulted in
new opportunities to enhance further
the lives of people with disabilities.
Specifically, recent advances in
biomaterials research, composite
technologies, information and
telecommunication technologies,
nanotechnologies, micro electro
mechanical systems (MEMS), sensor
technologies, and the neurosciences
provide a wealth of opportunities for
individuals with disabilities and could
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be incorporated into research focused
on disability and rehabilitation.
Through the following proposed
priorities, NIDRR intends to fund RERCs
that advance rehabilitation engineering
research in the following priority
research areas: Technologies for
Successful Aging, Wheelchair
Transportation Safety and Wireless
Technologies.
(a) RERC for Technologies for
Successful Aging
More than half of Americans age 65
and older report having at least 1
disability and it is estimated that onethird of this population has a severe
disability. Despite the increased risks of
disability associated with aging, ninetyfive percent of older Americans choose
to remain in their own homes, use
public services, and function
independently as they age. Accordingly,
NIDRR seeks to fund an RERC that
focuses on improving the quality of life
of older persons with disabilities and
promote health, safety, independence
and active engagement.
(b) RERC for Wheelchair Transportation
Safety
There are roughly 1.7 million
Americans living outside of institutions
who use wheeled mobility devices
(Kaye, Kang, & LaPlante, 2000),
including those who rely heavily on
public and private transportation
services to commute to work and
school, participate in recreational
activities, and carry out daily activities.
However, most wheelchairs are not
designed to function as vehicle seats,
thus putting wheelchair-seated travelers
at greater risk of injury compared to
those who sit in standard vehicle seats
(Bertocci, Szobota, Hobson, & Digges,
1997). NIDRR, therefore, seeks to fund
an RERC that researches and develops
innovative technologies to improve the
current state of the science, design
guidelines and performance standards,
and usability of wheeled mobility
devices and wheelchair seating systems.
References
Bertocci, G.E., Szobota, S., Hobson, D.A., &
Digges, K. (1999). Computer simulation and
sled test validation of a powerbase
wheelchair and occupant subjected to frontal
crash conditions. IEEE Trans Rehabil Eng,
7(2), 234–44.
Kaye, H.S., Kang, T., & LaPlante, M.P.
(2000). Mobility device use in the United
States. Disability Statistics Report 14.
Washington, DC: U.S. Department of
Education, National Institute on Disability
and Rehabilitation Research.
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(c) RERC for Wireless Technologies
Wireless technologies allow
connection of communication,
information, and control devices to
local, community, and nationwide
networks without wires. These wireless
devices support a wide range of
applications spanning voice and data
communication, remote monitoring, and
position finding, and offer tremendous
potential for assisting people with
disabilities. Accordingly, NIDRR seeks
to fund an RERC that facilitates
equitable access to, and use of, future
generations of wireless technologies for
individuals with disabilities.
Proposed Priorities
The Assistant Secretary for Special
Education and Rehabilitative Services
proposes the following three priorities
for the establishment of (a) an RERC for
Technologies for Successful Aging, (b)
an RERC for Wheelchair Transportation
Safety, and (c) an RERC for Wireless
Technologies. Within its designated
priority research area, each RERC will
focus on innovative technological
solutions, new knowledge, and concepts
that will improve the lives of persons
with disabilities.
(a) RERC for Technologies for
Successful Aging. Under this priority,
the RERC must research, develop and
evaluate innovative technologies and
approaches that will improve the
quality of life of older persons with
disabilities and promote health, safety,
independence, and active engagement.
(b) RERC for Wheelchair
Transportation Safety. Under this
priority, the RERC must research,
develop, and evaluate innovative
technologies and strategies that will
improve the safety and independence of
wheelchair users who remain seated in
their wheelchairs while using public
and private transportation services. The
RERC must research and develop
innovative technologies and strategies
that will improve the current state of the
science, design guidelines and
performance standards, and usability of
wheeled mobility devices and
wheelchair seating systems.
(c) RERC for Wireless Technologies.
Under this priority, the RERC must
research, develop, and evaluate
innovative technologies that facilitate
equitable access to, and use of, future
generations of wireless technologies for
individuals with disabilities of all ages.
Under each priority, the RERC must
be designed to contribute to the
following programmatic outcomes:
(1) Increased technical and scientific
knowledge-base relevant to its
designated priority research area.
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erjones on PROD1PC68 with NOTICES3
(2) Innovative technologies, products,
environments, performance guidelines,
and monitoring and assessment tools as
applicable to its designated priority
research area. The RERC must
contribute to this outcome by
developing and testing of these
innovations.
(3) Improved research capacity in its
designated priority research area. The
RERC must contribute to this outcome
by collaborating with the relevant
industry, professional associations, and
institutions of higher education.
(4) Improved focus on cutting edge
developments in technologies within its
designated priority research area. The
RERC must contribute to this outcome
by identifying and communicating with
NIDRR and the field regarding trends
and evolving product concepts related
to its designated priority research area.
(5) Increased impact of research in the
designated priority research area. The
RERC must contribute to this outcome
by providing technical assistance to
public and private organizations,
persons with disabilities, and employers
on policies, guidelines, and standards
related to its designated priority
research area.
In addition, under each priority, the
RERC must:
• Have the capability to design, build,
and test prototype devices and assist in
the transfer of successful solutions to
relevant production and service delivery
settings;
• Evaluate the efficacy and safety of
its new products, instrumentation, or
assistive devices;
• Develop and implement in the first
three months of the project period a
plan that describes how it will include,
as appropriate, individuals with
disabilities or their representatives in all
phases of its activities, including
research, development, training,
dissemination, and evaluation;
• Develop and implement in the first
year of the project period, in
consultation with the NIDRR-funded
National Center for the Dissemination of
Disability Research (NCDDR), a plan to
disseminate its research results to
persons with disabilities, their
representatives, disability organizations,
service providers, professional journals,
manufacturers, and other interested
parties;
• Develop and implement in the first
year of the project period, in
VerDate Aug<31>2005
15:31 Feb 06, 2006
Jkt 208001
consultation with the NIDRR-funded
RERC on Technology Transfer, a plan
for ensuring that all new and improved
technologies developed by the RERC are
successfully transferred to the
marketplace;
• Conduct a state-of-the-science
conference on its designated priority
research area in the third year of the
project period and publish a
comprehensive report on the final
outcomes of the conference in the fourth
year of the project period; and
• Coordinate research projects of
mutual interest with relevant NIDRRfunded projects, as identified through
consultation with the NIDRR project
officer.
Executive Order 12866
This notice of proposed priorities has
been reviewed in accordance with
Executive Order 12866. Under the terms
of the order, we have assessed the
potential costs and benefits of this
regulatory action.
The potential costs associated with
the notice of proposed priorities are
those resulting from statutory
requirements and those we have
determined as necessary for
administering this program effectively
and efficiently.
In assessing the potential costs and
benefits—both quantitative and
qualitative—of this notice of proposed
priorities, we have determined that the
benefits of the proposed priorities
justify the costs.
Summary of Potential Costs and
Benefits
The potential costs associated with
these proposed priorities are minimal
while the benefits are significant.
Grantees may incur some costs
associated with completing the
application process in terms of staff
time, copying, and mailing or delivery.
The use of e-Application technology
reduces mailing and copying costs
significantly.
The benefits of the Disability and
Rehabilitation Research Projects and
Centers Programs have been well
established over the years in that similar
projects have been completed
successfully. These proposed priorities
will generate new knowledge and
technologies through research,
development, dissemination, utilization,
and technical assistance projects.
PO 00000
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6331
Another benefit of these proposed
priorities is that the establishment of
new DRRPs (including the new
DBTACs), a new RRTC, and new RERCs
will support the President’s NFI and
will improve the lives of persons with
disabilities. The new DRRPs, RRTC, and
RERCs will generate, disseminate, and
promote the use of new information that
will improve the options for individuals
with disabilities to perform regular
activities in the community.
Intergovernmental Review
This program is not subject to
Executive Order 12372 and the
regulations in 34 part 79.
Applicable Program Regulations: 34
CFR part 350.
Electronic Access to This Document
You may view this document, as well
as all other Department of Education
documents published in the Federal
Register, in text or Adobe Portable
Document Format (PDF) on the Internet
at the following site: https://www.ed.gov/
news/fedregister.
To use PDF you must have Adobe
Acrobat Reader, which is available free
at this site. If you have questions about
using PDF, call the U.S. Government
Printing Office (GPO), toll free, at 1–
888–293–6498; or in the Washington,
DC, area at (202) 512–1530.
Note: The official version of this document
is the document published in the Federal
Register. Free Internet access to the official
edition of the Federal Register and the Code
of Federal Regulations is available on GPO
Access at: https://www.gpoaccess.gov/nara/
index.html.
(Catalog of Federal Domestic Assistance
Numbers 84.133A Disability Rehabilitation
Research Projects, 84.133D Disability
Business Technical Assistance Centers,
84.133B Rehabilitation Research and
Training Centers Program, and 84.133E
Rehabilitation Engineering Research Centers
Program)
Program Authority: 29 U.S.C. 762(g),
764(a), 764(b)(2), and 764(b)(3).
Dated: January 31, 2006.
John H. Hager,
Assistant Secretary for Special Education and
Rehabilitative Services.
[FR Doc. 06–1075 Filed 2–6–06; 8:45 am]
BILLING CODE 4000–01–P
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Agencies
[Federal Register Volume 71, Number 25 (Tuesday, February 7, 2006)]
[Notices]
[Pages 6318-6331]
From the Federal Register Online via the Government Printing Office [www.gpo.gov]
[FR Doc No: 06-1075]
[[Page 6317]]
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Part II
Department of Education
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National Institute on Disability Research Projects and Centers Program;
Funding Priorities; Notice
Federal Register / Vol. 71, No. 25 / Tuesday, February 7, 2006 /
Notices
[[Page 6318]]
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DEPARTMENT OF EDUCATION
National Institute on Disability and Rehabilitation Research--
Disability and Rehabilitation Research Projects and Centers Program;
Funding Priorities
AGENCY: Office of Special Education and Rehabilitative Services,
Department of Education.
ACTION: Notice of proposed priorities.
-----------------------------------------------------------------------
SUMMARY: The Assistant Secretary for Special Education and
Rehabilitative Services proposes certain funding priorities for the
Disability and Rehabilitation Research Projects and Centers Program
administered by the National Institute on Disability and Rehabilitation
Research (NIDRR). Specifically, this notice proposes priorities for
Disability Rehabilitation Research Projects (DRRPs), including
Disability Business and Technical Assistance Centers (DBTACs);
Rehabilitation Research and Training Centers (RRTCs); and
Rehabilitation Engineering Research Centers (RERCs). The Assistant
Secretary may use these priorities for competitions in fiscal year (FY)
2006 and later years. We take this action to focus research attention
on areas of national need. We intend these priorities to improve
rehabilitation services and outcomes for individuals with disabilities.
DATES: We must receive your comments on or before March 9, 2006.
ADDRESSES: Address all comments about these proposed priorities to
Donna Nangle, U.S. Department of Education, 400 Maryland Avenue, SW.,
room 6030, Potomac Center Plaza, Washington, DC 20204-2700. If you
prefer to send your comments through the Internet, use one of the
following addresses: donna.nangle@ed.gov.
You must include the term ``Proposed Priorities for DRRPs, RRTCs,
and RERCs'' in the subject line of your electronic message.
FOR FURTHER INFORMATION CONTACT: Donna Nangle or Lynn Medley.
Telephone: (202) 245-7462 (Donna Nangle) or (202) 245-7338 (Lynn
Medley).
If you use a telecommunications device for the deaf (TDD), you may
call the Federal Relay Service (FRS) at 1-800-877-8339.
Individuals with disabilities may obtain this document in an
alternative format (e.g., Braille, large print, audiotape, or computer
diskette) on request to the contact person listed under FOR FURTHER
INFORMATION CONTACT.
SUPPLEMENTARY INFORMATION: This notice of proposed priorities is in
concert with President George W. Bush's New Freedom Initiative (NFI)
and NIDRR's Proposed Long-Range Plan for FY 2005-2009 (Plan). The NFI
can be accessed on the Internet at the following site: https://
www.whitehouse.gov/infocus/newfreedom. The Plan, which was published in
the Federal Register on July 27, 2005 (70 FR 43522), can be accessed on
the Internet at the following site: https://www.ed.gov/legislation/
FedRegister/other/2005-3/072705d.html.
Through the implementation of the NFI and the Plan, NIDRR seeks to:
(1) Improve the quality and utility of disability and rehabilitation
research; (2) foster an exchange of expertise, information, and
training to facilitate the advancement of knowledge and understanding
of the unique needs of traditionally underserved populations; (3)
determine best strategies and programs to improve rehabilitation
outcomes for underserved populations; (4) identify research gaps; (5)
identify mechanisms of integrating research and practice; and (6)
disseminate findings.
One of the specific goals established in the Plan is for NIDRR to
publish all of its proposed priorities, and following public comment,
final priorities, annually, on a combined basis. Under this approach,
NIDRR's constituents can submit comments at one time rather than at
different times throughout the year, and NIDRR can move toward a fixed
schedule for competitions and more efficient grant-making operations.
This notice, which proposes priorities NIDRR intends to use for DRRP,
RRTC, and RERC competitions in FY 2006 and possibly later years,
represents NIDRR's first step toward a notice of priorities that will
include its entire portfolio of research and related activities for the
year. However, nothing precludes NIDRR from publishing additional
priorities, if needed.
In addition to this notice, on December 13, 2005, NIDRR published a
separate notice of proposed priorities for Spinal Cord Injury Model
Systems (SCIMS) Centers and for SCIMS multi-site research projects (70
FR 73738). NIDRR also intends to publish a separate notice of proposed
priorities for an additional DRRP with the focus on Individuals Who are
Blind and Visually Impaired this year. Moreover, for FY 2006
competitions using priorities that already have been established and
for which publication of a notice of proposed priority is unnecessary
(e.g., competitions for Field-Initiated Projects, Advanced
Rehabilitation Research Training Projects, Fellowships, and Small
Business Innovation Research Projects), NIDRR has published or will
publish notices inviting applications. More information on these other
projects and programs that NIDRR intends to fund in FY 2006 can be
found on the Internet at the following site: https://ed.gov/fund/grant/
apply/nidrr/priority-matrix.html.
Invitation to Comment
We invite you to submit comments regarding these proposed
priorities. To ensure that your comments have maximum effect in
developing the notice of final priorities, we urge you to identify
clearly the specific proposed priority or topic that each comment
addresses.
We invite you to assist us in complying with the specific
requirements of Executive Order 12866 and its overall requirement of
reducing regulatory burden that might result from these proposed
priorities. Please let us know of any further opportunities we should
take to reduce potential costs or increase potential benefits while
preserving the effective and efficient administration of the program.
During and after the comment period, you may inspect all public
comments about these proposed priorities in room 6030, 550 12th Street,
SW., Potomac Center Plaza, Washington, DC, between the hours of 8:30
a.m. and 4 p.m., Eastern time, Monday through Friday of each week
except Federal holidays.
Assistance to Individuals With Disabilities in Reviewing the Rulemaking
Record
On request, we will supply an appropriate aid, such as a reader or
print magnifier, to an individual with a disability who needs
assistance to review the comments or other documents in the public
rulemaking record for these proposed priorities. If you want to
schedule an appointment for this type of aid, please contact the person
listed under FOR FURTHER INFORMATION CONTACT.
We will announce the final priorities in one or more notices in the
Federal Register. We will determine the final priorities after
considering responses to this notice and other information available to
the Department. This notice does not preclude us from proposing or
using additional priorities, subject to meeting applicable rulemaking
requirements.
Note: This notice does not solicit applications. In any year in
which we choose to use these proposed priorities, we invite
applications through a notice in the Federal Register. When inviting
applications we
[[Page 6319]]
designate the priorities as absolute, competitive preference, or
invitational. The effect of each type of priority follows:
Absolute priority: Under an absolute priority, we consider only
applications that meet the priority (34 CFR 75.105(c)(3)).
Competitive preference priority: Under a competitive preference
priority, we give competitive preference to an application by either
(1) awarding additional points, depending on how well or the extent
to which the application meets the competitive preference priority
(34 CFR 75.105(c)(2)(i)); or (2) selecting an application that meets
the competitive preference priority over an application of
comparable merit that does not meet the priority (34 CFR
75.105(c)(2)(ii)).
Invitational priority: Under an invitational priority, we are
particularly interested in applications that meet the invitational
priority. However, we do not give an application that meets the
invitational priority a competitive or absolute preference over
other applications (34 CFR 75.105(c)(1)).
Priorities
In this notice, we are proposing 11 priorities for DRRPs (including
2 priorities for DBTACs), 1 priority for an RRTC, and 3 priorities for
RERCs.
For DRRPs, the proposed priorities are:
Priority 1--General DRRP Requirements.
Priority 2--National Data and Statistical Center for the
Spinal Cord Injury (SCI) Model Systems.
Priority 3--National Data and Statistical Center for the
Traumatic Brain Injury (TBI) Model Systems.
Priority 4--Rehabilitation of Children with Traumatic
Brain Injury (TBI).
Priority 5--Reducing Obesity and Obesity-Related Secondary
Conditions in Adolescents and Adults with Disabilities.
Priority 6--Model Systems Knowledge Translation Center
(MSKTC).
Priority 7--Assistive Technology (AT) Outcomes Research
Project.
Priority 8--Mobility Aids and Wayfinding Technologies for
Individuals With Blindness and Low Vision.
Priority 9--Improving Employment Outcomes for the Low
Functioning Deaf (LFD) Population.
Priority 10--Disability Business Technical Assistance
Centers (DBTACs).
Priority 11--Disability Business Technical Assistance
Centers (DBTAC) Coordination, Outreach, and Research Center.
For the RRTC, the proposed priority is:
Priority 12--Rehabilitation Research and Training Center
on Effective Independent and Community Living Solutions and Measures.
For RERCs, the proposed priorities are:
Priority 13--RERC for Technologies for Successful Aging.
Priority 14--RERC for Wheelchair Transportation Safety.
Priority 15--RERC for Wireless Technologies.
Disability and Rehabilitation Research Projects (DRRP) Program
The purpose of the DRRP program is to plan and conduct research,
demonstration projects, training, and related activities to develop
methods, procedures, and rehabilitation technology that maximize the
full inclusion and integration into society, employment, independent
living, family support, and economic and social self-sufficiency of
individuals with disabilities, especially individuals with the most
severe disabilities, and to improve the effectiveness of services
authorized under the Rehabilitation Act of 1973, as amended. DRRPs
carry out one or more of the following types of activities, as
specified and defined in 34 CFR 350.13 through 350.19: research,
development, demonstration, training, dissemination, utilization, and
technical assistance.
An applicant for assistance under this program must demonstrate in
its application how it will address, in whole or in part, the needs of
individuals with disabilities from minority backgrounds (34 CFR
350.40(a)). The approaches an applicant may take to meet this
requirement are found in 34 CFR 350.40(b).
Additional information on the DRRP program can be found at: https://
www.ed.gov/rschstat/research/pubs/res-program.html#DRRP.
Proposed Priorities
Priority 1--General Disability and Rehabilitation Research Projects
(DRRP) Requirements
Background
NIDRR proposes the following General DRRP Requirements priority
because it believes that the effectiveness of any DRRP (including any
DBTAC) depends on, among other things, how well the DRRP coordinates
its research efforts with the research of other NIDRR-funded projects,
involves individuals with disabilities in its activities, and
identifies specific anticipated outcomes that are linked to its
objectives in applying for DRRP funding. Accordingly, NIDRR intends to
use proposed Priority 1--General DRRP Requirements in conjunction with
each of the other DRRP priorities proposed in this notice (i.e.,
priorities 2 through 11).
Proposed Priority
To meet this priority, the Disability and Rehabilitation Research
Projects (DRRP) must:
(a) Coordinate on research projects of mutual interest with
relevant NIDRR-funded projects, as identified through consultation with
the NIDRR project officer;
(b) Involve individuals with disabilities in planning and
implementing the DRRP's research, training, and dissemination
activities, and in evaluating its work; and
(c) Identify anticipated outcomes (i.e., advances in knowledge or
changes and improvements in policy, practice, behavior, and system
capacity) that are linked to the applicant's stated grant objectives.
Priority 2--National Data and Statistical Center for the Spinal Cord
Injury (SCI) Model Systems
Background
It is estimated that the number of Americans living with traumatic
spinal cord injury (SCI) ranges from 222,000 to 285,000, with an
incidence of approximately 11,000 new cases each year (Spinal Cord
Injury: Facts and Figures at a Glance, 2004).
NIDRR supports a variety of research projects that focus on the
wide range of needs of individuals with SCI. These projects include the
SCI Model Systems Centers funded through NIDRR's Model Systems Program.
The SCI Model Systems Centers establish and carry out innovative
projects for the delivery, demonstration, and evaluation of
comprehensive medical, vocational, and other rehabilitation services to
meet the wide range of needs of individuals with SCI.
The SCI Model Systems Centers have developed a national,
longitudinal database that contains information on approximately 23,000
people injured since 1973 (SCI Model Systems Database). The SCI Model
Systems Database is the most extensive source of information available
about the characteristics and life course of individuals with SCI. The
SCI Model Systems Database contains a sample that is demographically
representative of all cases that occur throughout the United States,
though the sample is not population-based (DeVivo, Go, & Jackson,
2002). The SCI Model Systems Database also can be used to examine
specific outcomes of SCI. NIDRR seeks to continue and build upon this
important source of data by funding a National Data and Statistical
Center for the SCI Model Systems (National SCI Model Systems Data
Center) that will
[[Page 6320]]
maintain the SCI Model Systems Database and improve the quality of
information that is entered into it.
The SCI Model Systems Database is a collaborative project in which
all of the SCI Model Systems Centers participate. The data for the SCI
Model Systems Database are collected by the SCI Model Systems Centers.
The Directors of the SCI Model System Centers, in consultation with
NIDRR, determine the parameters of the SCI Model Systems Database,
including the number and type of variables to be examined, and the
criteria for including Model Systems patients in the database.
To maximize the external validity of findings from the SCI Model
Systems Database, the SCI Model Systems Centers must achieve and
maintain high rates of retention and successful follow-up with database
participants. Accordingly, the central role of the National SCI Model
Systems Data Center will be to work with SCI Model Systems Centers to
increase follow-up rates and to ensure data quality.
Since the creation of the SCI Model Systems Database more than 30
years ago, the proportion of database participants from racial and
ethnic minority populations has grown steadily (Jackson, Dijkers,
DeVivo & Poczatek, 2004). This growth reflects the urban location of
many of the SCI Model Systems Centers, as well as the growing
proportion of racial/ethnic minorities in the general population. This
growth in the racial/ethnic diversity of the SCI Model Systems
population creates a vital technical assistance role for the National
SCI Model Systems Data Center. The National SCI Model Systems Data
Center will work with the SCI Model Systems Centers to ensure that the
data collected from these populations are of high quality and that the
data collection procedures used reflect sufficient knowledge about the
cultural backgrounds of patient populations and research participants.
The specifications of the SCI Model Systems Database as it is
currently implemented can be obtained from the National SCI Statistical
Center at the University of Alabama at Birmingham. The National SCI
Statistical Center may be contacted on the World Wide Web at https://
www.spinalcord.uab.edu/show.asp?durki=21446.
References
DeVivo, M., Go, B., & Jackson, A. (2002). Overview of the
National Spinal Cord Injury Statistical Center Database. The Journal
of Spinal Cord Medicine. 25(4): 335-338.
Jackson, A., Dijkers, M, DeVivo, M., & Poczatek, R. (2004). A
Demographic Profile of New Traumatic Spinal Cord Injuries: Change
and Stability Over 30 Years. Archives of Physical Medicine and
Rehabilitation. 85(11): 1740-1748.
Spinal Cord Injury: Facts and Figures at a Glance. (2004).
Retrieved July 6, 2005 from the National Spinal Cord Injury
Statistical Center Web site: https://www.spinalcord.uab.edu.
Proposed Priority
The Assistant Secretary for Special Education and Rehabilitative
Services proposes a priority for the establishment of a National SCI
Model Systems Data Center that advances medical rehabilitation by
increasing the rigor and efficiency of scientific efforts to
longitudinally assess the experience of individuals with SCI. To meet
this priority, the National SCI Model Systems Data Center's research
and technical assistance must be designed to contribute to the
following outcomes:
(a) Maintenance of a national longitudinal database for data
submitted by each of the SCI Model Systems Centers (SCI Model Systems
Database). This database must provide for confidentiality, quality
control, and data-retrieval capabilities, using cost-effective and
user-friendly technology.
(b) High-quality, reliable data in the SCI Model Systems Database.
The National SCI Model Systems Data Center must contribute to this
outcome by providing training and technical assistance to SCI Model
Systems Centers on subject retention and data collection procedures,
data entry methods, and appropriate use of study instruments, and by
monitoring the quality of the data submitted by the SCI Model Systems
Centers.
(c) High-quality data collected from database participants of all
racial/ethnic backgrounds. The National SCI Model Systems Data Center
must contribute to this outcome by providing knowledge, training, and
technical assistance to the SCI Model Systems Centers on culturally
appropriate methods of longitudinal data collection and participant
retention.
(d) Rigorous research conducted by SCI Model Systems Centers and
all investigators who are analyzing data from the SCI Model Systems
Database. The National SCI Model Systems Data Center must contribute to
this outcome by making statistical and other methodological
consultation available for research projects that use the SCI Model
Systems Database, as well as center-specific and collaborative projects
of the SCI Model Systems Program.
(e) Enhanced continuity of the SCI Model Systems Database. The
National SCI Model Systems Data Center must contribute to this outcome
by establishing and implementing a mechanism for continued collection
of follow-up data from individuals who were enrolled by SCI Model
Systems Centers that no longer receive Model Systems Program funding.
This mechanism must focus on continued collection of data from up to
four SCI Model Systems Centers that were funded during the most recent
five-year grant cycle, but that do not receive subsequent funding under
the Model Systems Program.
(f) Improved quality and efficiency of the SCI Model Systems
Database operations through collaboration with the National Traumatic
Brain Injury Model Systems Data Center and the National Burn Model
Systems Data Center.
Priority 3--National Data and Statistical Center for the Traumatic
Brain Injury (TBI) Model Systems
Background
It is estimated that at least 5.3 million Americans are living with
disability as a result of traumatic brain injury (TBI). Approximately
1.4 million Americans sustain a TBI each year, and 230,000 of these
injuries lead to hospitalization (Traumatic Brain Injury: Facts and
Figures, 2005).
NIDRR supports a variety of research projects that focus on the
wide range of needs of individuals with TBI. These projects include the
TBI Model Systems Centers funded through NIDRR's Model Systems Program.
The TBI Model Systems Centers establish and carry out innovative
projects for the delivery, demonstration, and evaluation of
comprehensive medical, vocational, and other rehabilitation services to
meet the wide range of needs of individuals with TBI.
The TBI Model Systems Centers have developed a national,
longitudinal database of information about the characteristics and life
course of individuals with TBI (TBI Model Systems Database). The TBI
Model Systems Database also can be used to examine specific outcomes of
TBI. NIDRR seeks to continue and build upon this important source of
data by funding a National Data and Statistical Center for the TBI
Model Systems (National TBI Model Systems Data Center) that will
maintain the TBI Model Systems Database and improve the quality of
information that is entered into it.
The TBI Model Systems Database is a collaborative project in which
all of the TBI Model Systems Centers participate. The data for the TBI
Model Systems Database are collected by the TBI Model
[[Page 6321]]
Systems Centers. The Directors of the TBI Model Systems Centers, in
consultation with NIDRR, determine the parameters of the TBI Model
Systems Database, including the number and type of variables to be
examined, and the criteria for including TBI Model Systems patients in
the database.
To maximize the external validity of findings from the TBI Model
Systems Database, the TBI Model Systems Centers must achieve and
maintain high rates of retention and successful follow-up with database
participants. Accordingly, the central role of the National TBI Model
Systems Data Center will be to work with TBI Model Systems Centers to
increase follow-up rates and ensure data quality.
The TBI Model Systems Database contains a disproportional number of
participants from minority backgrounds, relative to the general
population (Burnett et al. 2003). The disproportional representation of
racial/ethnic minorities reflects the urban location of many of the TBI
Model Systems Centers. The racial/ethnic diversity of the TBI Model
Systems population creates a vital technical assistance role for the
National TBI Model Systems Data Center. The National TBI Model Systems
Data Center will work with the TBI Model Systems Centers to ensure that
the data collected from these populations are of high quality and that
the data collection procedures used reflect sufficient knowledge about
the cultural backgrounds of patient populations and research
participants.
The specifications of the TBI Model Systems Database as it is
currently implemented can be obtained from the TBI National Data Center
at the Kessler Medical Rehabilitation Research and Education
Corporation (see https://www.tbindc.org).
References
Burnett, D., Kolakowsky-Hayner, S., Slater, D., Stringer, A.,
Bushnik, T., Zafonte, R., and Cifu, D. (2003). Ethnographic Analysis
of Traumatic Brain Injury Patients in the National Model Systems
Database. Archives of Physical Medicine and Rehabilitation. 84(2):
263-267.
Traumatic Brain Injury: Facts and Figures (2005). Retrieved July
6, 2005 from the Traumatic Brain Injury National Data Center Web
site: https://www.tbindc.org/registry/pdf/ff_winter2005.pdf.
Proposed Priority
The Assistant Secretary for Special Education and Rehabilitative
Services proposes a priority for the establishment of a National TBI
Model Systems Data Center that advances medical rehabilitation by
increasing the rigor and efficiency of scientific efforts to
longitudinally assess the experience of individuals with TBI. To meet
this priority, the National TBI Model Systems Data Center's research
and technical assistance must be designed to contribute to the
following outcomes:
(a) Maintenance of a national longitudinal database for data
submitted by each of the TBI Model Systems Centers (TBI Model Systems
Database). This database must provide for confidentiality, quality
control, and data-retrieval capabilities, using cost-effective and
user-friendly technology.
(b) High-quality, reliable data in the TBI Model Systems Database.
The National TBI Model Systems Data Center must contribute to this
outcome by providing training and technical assistance to TBI Model
Systems Centers on subject retention and data collection procedures,
data entry methods, and appropriate use of study instruments, and by
monitoring the quality of the data submitted by the TBI Model Systems
Centers.
(c) High-quality data collected from database participants of all
racial/ethnic backgrounds. The National TBI Model Systems Data Center
must contribute to this outcome by providing knowledge, training, and
technical assistance to the TBI Model Systems Centers on culturally
appropriate methods of longitudinal data collection and participant
retention.
(d) Rigorous research conducted by TBI Model Systems Centers and
all investigators who are analyzing data from the TBI Model Systems
Database. The National TBI Model Systems Data Center must contribute to
this outcome by making statistical and other methodological
consultation available for research projects that use the TBI Model
Systems Database, as well as center-specific and collaborative projects
of the TBI Model Systems program.
(e) Enhanced continuity of the TBI Model Systems Database. The
National TBI Model Systems Data Center must contribute to this outcome
by establishing and implementing a mechanism for continued collection
of follow-up data from individuals who were enrolled by TBI Model
Systems Centers that no longer receive Model Systems Program funding.
This mechanism must focus on continued collection of data from up to
four TBI Model Systems Centers that were funded during the most recent
five-year grant cycle, but that do not receive subsequent funding under
the Model Systems Program.
(f) Improved quality and efficiency of the TBI Model Systems
Database operations through collaboration with the National Spinal Cord
Injury Model Systems Data Center and the National Burn Model Systems
Data Center.
Priority 4--Rehabilitation of Children with Traumatic Brain Injury
(TBI)
Background
The Department's regulations implementing the Individuals with
Disabilities Education Act (IDEA) define traumatic brain injury as ``*
* * an acquired injury to the brain caused by an external physical
force, resulting in total or partial functional disability or
psychosocial impairment, or both, that adversely affects a child's
educational performance'' (34 CFR 300.7(c)(12)). The Centers for
Disease Control and Prevention report that among children up to 14
years of age, TBI results annually in an estimated 2,685 deaths, 37,000
hospitalizations, and 435,000 emergency department visits (Langlois,
Rutland-Brown, & Thomas, 2004). These estimates do not include children
who sustained a TBI and did not seek medical care or were seen only in
private doctors' offices. Because most survivors of moderate to severe
TBI experience chronic, life-long disabilities with varying degrees of
dependence, the costs of these disabilities in terms of individual
suffering, family burden, and financial burden to society are quite
significant (Carney, Maynard, Davis-O'Reilly, Zimmer-Gembeck, Krages, &
Helfand, 1999).
The effects of TBI can be pervasive, but researchers who have begun
to document the functional outcomes in children with TBI have
encountered several obstacles. For example, assessments of injury
characteristics have rarely included measures of the location, depth,
or severity of brain insult; environmental, family, and child
characteristics (including pre-injury functioning) have received
insufficient attention; and follow-up assessments have largely included
outcomes of TBI at only a single point in time several years after
injury (Taylor, 2004). These and other limitations must be addressed in
order to better understand and improve outcomes for children with TBI.
There also is little high quality evidence regarding the
effectiveness of rehabilitation interventions for children with TBI
(Carney, Maynard, Davis-O'Reilly, Zimmer-Gembeck, Krages, & Helfand,
1999; Chen, Heinemann, Bode, Granger, & Mallinson, 2004). When children
who have sustained a TBI are discharged from emergency and acute care
facilities, they may continue to receive treatment, including medical
[[Page 6322]]
services; physical, occupational, and speech therapy; cognitive
rehabilitation; social and behavioral interventions; and educational
and family interventions. These interventions, however, have largely
not been validated through experimental design or in carefully
controlled observational studies. Further, there is a well-documented
and unmet need for intensive, ongoing services and supports for
families and school staff as children with TBI transition from medical
and rehabilitation systems to community and school systems (Ylvisaker
et al, 2005).
In addition to the lack of interventions research and limited
availability of family and school support services, there is
insufficient information available to ensure the appropriate
identification of children with TBI who are in need of special
education and related services. Many children who have sustained a TBI
and reenter the school system fail to receive the services that they
need and that are mandated by IDEA, in part, because they fail to be
identified or their needs are not associated with the injury. In fact,
the number of children reported by States to be receiving special
education and related services under the TBI label is much lower than
would be expected based on the numbers of children who sustain a TBI
each year (Langlois & Rutland-Brown, 2005). All of these problems faced
by children with TBI, their families, and service providers demonstrate
the need for further studies and research.
References
Carney, N., Maynard, H., Davis-O'Reilly, C., Zimmer-Gembeck, M,
Krages, K. P., & Helfand, M. (February, 1999). Supplement to the
evidence report on rehabilitation of traumatic brain injury:
Children and adolescents (Contract 290-97-0018 to Oregon Health
Sciences University). Rockville, MD: Agency for Health Care Policy
and Research.
Chen, C.C., Heinemann, A.W., Bode, R.K., Granger, C.V., &
Mallinson, T. (2004). Impact of pediatric rehabilitation services on
children's functional outcomes. American Journal of Occupational
Therapy, 58(1), 44-53.
Langlois, J.A., & Rutland-Brown, W. (2005). Traumatic brain
injury in the United States: The future of registries and data
systems. Atlanta, GA: Centers for Disease Control and Prevention,
National Center for Injury Prevention and Control.
Langlois, J.A., Rutland-Brown W., & Thomas K.E. (2004).
Traumatic brain injury in the United States: Emergency department
visits, hospitalizations, and deaths. Atlanta, GA: Centers for
Disease Control and Prevention, National Center for Injury
Prevention and Control.
Taylor, G.H. (2004). Research on outcomes of pediatric traumatic
brain injury: Current advances and future directions. Developmental
Neuropsychology, 25(1-2), 199-225.
Ylvisaker, M., Adelson, P.D., Braga, L.W., Burnett, S.M., Glang,
A., Feeney, T., Moore, W., Rumney, P., & Todis, B. (2005).
Rehabilitation and ongoing support after pediatric TBI: Twenty years
of progress. Journal of Health Trauma Rehabilitation, 20(1), 95-109.
Proposed Priority
The Assistant Secretary for Special Education and Rehabilitative
Services proposes a priority for a Disability Rehabilitation Research
Project (DRRP) on the Rehabilitation of Children with Traumatic Brain
Injury (TBI). Under this priority, the DRRP must be designed to
contribute to the following outcomes:
(a) Improved physical, cognitive, social/behavioral, family,
educational, or employment outcomes for children with TBI by
development or testing of rehabilitation interventions.
(b) Improved transition of children from health care facilities to
school and community by development or testing of effective transition
strategies.
(c) Improved TBI screening and special education services for
children by development or testing of methods and procedures for use in
school settings.
Priority 5--Reducing Obesity and Obesity-Related Secondary Conditions
in Adolescents and Adults With Disabilities
Background
Approximately two out of three adults in the United States are
classified as overweight or obese, and obesity is now the second
leading cause of mortality in this country (Flegal et al., 2002). As
disturbing as the obesity prevalence is for the general U.S.
population, rates of obesity among adolescents and adults with pre-
existing disabilities are even more alarming. A recent study based on
pooled self-report data from the 1994-1995 National Health Interview
Survey (NHIS), the 1994-1995 Disability Supplement (NHIS-D), and the
1995 Healthy People 2000 Supplement reports a 66 percent higher rate of
obesity among people with disabilities compared to the general
population (Weil et al., 2002). Similarly, a recent regional study,
based on actual measurements of height and weight, reported that
extreme obesity (a body mass index (BMI) of 40 or larger) was
approximately four times higher among persons with disabilities
compared to the general population (Rimmer & Wang, 2005).
Obesity has a profoundly negative effect on the overall health
status and quality of life of individuals with disabilities. First,
like the population at large, for whom obesity is typically a primary
health condition, obesity among individuals with disabilities leads to
higher-risks for cardiovascular disease, type 2 diabetes, hypertension,
osteoarthritis, and certain cancers. Second, for people with pre-
existing disabilities, obesity constitutes a significant secondary
condition leading to new physical impairments and increased mobility
limitations, which in turn further undermine an individual's functional
abilities and negatively impact opportunities for employment and
participation in the community (Kinne, Patrick, & Doyle, 2004). There
also is growing evidence that many of these chronic health problems and
functional impairments occur earlier and with more severity among
people with existing disabilities than in the general adult population
(Campbell, Sheets, & Strong, 1999). Notwithstanding this information,
there remains a lack of knowledge about both the antecedents to obesity
in adults and adolescents with disabilities and the rehabilitation
interventions that could be successful in treating or preventing this
condition.
Lack of routine and timely screening for obesity by medical
providers also contributes to the magnitude of the obesity epidemic in
this country, particularly among adults with disabilities who face
well-documented barriers to accessing primary health care services
(Iezzoni, McCarthy, Davis, & Siebens, 2001). To address this problem,
the U.S. Preventive Services Task Force (USPSTF) recently published
guidelines recommending that clinicians screen all adult patients for
obesity based on BMI and offer appropriate behavioral interventions and
intensive counseling to promote sustained weight loss for those who are
obese (``Screening for Obesity in Adults: Recommendations and
Rationale,'' November 2003). Further information, however, is needed to
assess the effectiveness of screening and diagnostic procedures and the
interventions that medical providers are recommending.
References
Campbell, M.L., Sheets, D., & Strong, P.S. (1999). Secondary
health conditions among middle-aged individuals with chronic
physical disabilities: implications for unmet needs for services.
Assist Technology, 11(2), 105-122.
Flegal, K.M., Carroll, M.D., Ogden, C.L., & Johnson, C.L.
(2002). Prevalence and trends in obesity among U.S. adults, 1999-
2000. Journal of the American Medical Association, 2888,1723-1727.
[[Page 6323]]
Iezzoni, L.I., McCarthy, E.P., Davis, R.B., & Siebens, H.
(2001). Mobility impairments and use of screening and preventive
services. American Journal of Public Health, 90, 955-961.
Kinne, S., Patrick, D.L., & Doyle, D.L. (2004). Prevalence of
Secondary Conditions Among People With Disabilities. American
Journal of Public Health, 94(3), 443-445.
Screening for Obesity in Adults: Recommendations and Rationale
(November 2003). U.S. Preventive Services Task Force. Agency for
Healthcare Research and Quality, Rockville, MD. https://www.ahrq.gov/
clinic/3rduspstf/obesity/obesrr.htm.
Weil, E., Wachterman, M., McCarthy, E., Davis, R., Iezonni, L.,
& Wee, C. (2002). Obesity among adults with disabling conditions.
Journal of the American Medical Association, 228,1265-1268.
Proposed Priority
The Assistant Secretary for Special Education and Rehabilitative
Services proposes a priority for a Disability Rehabilitation Research
Project (DRRP) on Disability and Obesity: Reducing Obesity and Obesity-
Related Secondary Conditions in Adolescents and Adults with
Disabilities. Under this priority, the DRRP must be designed to
contribute to the following outcomes:
(a) Enhanced understanding of the antecedents and consequences of
obesity as a secondary condition among adolescents and adults with
different types of pre-existing physical, sensory, cognitive, and
behavioral-health impairments.
(b) Improved obesity screening and diagnosis among adolescents and
adults with different types of disabilities by developing or testing
effective screening and diagnostic methods and procedures.
(c) Improved outcomes for adolescents and adults with disabilities
with obesity by development or testing of prevention strategies and
treatments.
Priority 6--Model Systems Knowledge Translation Center (MSKTC)
Background
NIDRR's Model Systems Programs were originally developed to
demonstrate the value of a comprehensive integrated continuum of care
for individuals with spinal cord injury (SCI), traumatic brain injury
(TBI), and burn injury (Burn). Currently, NIDRR's Model Systems
Programs include 36 centers that conduct or sponsor research activities
designed to improve rehabilitative and pharmacological interventions
that can help optimize levels of community participation, employment,
and overall quality of life for individuals with SCI, TBI, and Burn.
Research sponsored by the Model Systems Programs has led to a wealth of
publicly available, retrievable information about SCI, TBI, and Burn.
Additionally, research conducted by Model Systems Programs grantees has
advanced knowledge regarding, and led to changes in, clinical practice
and policy in the fields of SCI, TBI, and Burn.
The usefulness of NIDRR-funded SCI, TBI, and Burn research and
development findings and products depends on how well potential users
can assess the strength and relevance of these findings and products,
as applied to their particular needs. End-users with limited scientific
training, in particular, may need assistance in order to understand
competing research claims or determine the relevance of particular
findings to their individual situations. In addition, given the nature
of scientific study, practical information often is based on cumulative
knowledge, not upon the results of any one study.
The following proposed priority for an MSKTC is intended to ensure
that information and products developed and identified through NIDRR-
funded SCI, TBI, and Burn research are of high quality, are based on
scientifically rigorous research and development, and are disseminated
effectively. To this end, the proposed priority embraces a newer
concept, knowledge translation (KT), to shape the effective
dissemination and utilization of disability and rehabilitation research
results critical to achieving NIDRR's mission. KT encompasses the
exchange, synthesis, and ethically sound application of knowledge
within a complex system of relationships among researchers and users.
See, for example, the Knowledge Translation Overview of Canadian
Institutes of Health Research Web site at: https://www.cihr-irsc.gc.ca/
e/7518.html.
Acting as a centralized resource center, the proposed MSKTC would
establish coordinated, collaborative relationships among the three
Model Systems Programs (i.e., SCI, TBI, and Burn Model Systems
Programs) to identify effective dissemination strategies and to help
other Federal agencies and national organizations use new information
and discoveries emanating from NIDRR-funded SCI, TBI, and Burn
research.
References
Knowledge Translation Overview. Canadian Institutes of Health
Research. 2005, from https://www/cihr-irsc.gc.ca/e/7518.html.
Campbell Collaboration. 2005, from https://
www.campbellcollaboration.org/.
Cochrane Collaboration. 2005, from https://www.cochrane.org/.
Department of Education What Works Clearinghouse from https://
www.whatworks.ed.gov/.
National Rehabilitation Information Center. 2005, from https://
www.naric.com/.
National Center for the Dissemination of Disability Research.
2005, https://www.ncddr.org/.
Proposed Priority
The Assistant Secretary for Special Education and Rehabilitative
Services proposes a priority for a Disability Rehabilitation Research
Project to serve as the Model Systems Knowledge Translation Center
(MSKTC). Under this priority, the MSKTC must be designed to contribute
to the following outcomes:
(a) Enhanced understanding of the quality and relevance of NIDRR's
Spinal Cord Injury (SCI), Traumatic Brain Injury (TBI), and Burn Injury
(Burn) Model Systems Programs' findings. The MSKTC must contribute to
this outcome by identifying and applying appropriate standards and
methods for conducting research syntheses. This will allow the Model
Systems Programs to bridge gaps in evidence-based practice and
research.
(b) Enhanced knowledge of advances in SCI, TBI, and Burn research
among consumers, clinicians, and other end users of such information.
The MSKTC must contribute to this outcome by (1) identifying effective
strategies for, and guiding targeted dissemination of, SCI, TBI, and
Burn Model Systems Programs' findings about available services and
interventions for individuals with SCI, TBI, and Burn; and (2)
developing partnerships and collaborating with key constituencies and
groups conducting similar work.
(c) Centralization of SCI, TBI, and Burn Model Systems resources
for effective and uniform dissemination and technical assistance. The
MSKTC must contribute to this outcome by serving as a centralized
resource for the SCI, TBI, and Burn Model Systems Centers.
Priority 7--Assistive Technology (AT) Outcomes Research Project
Background
The Assistive Technology Act of 1998, as amended (29 U.S.C. 3001 et
seq.), defines an assistive technology (AT) device as ``any item, piece
of equipment, or product system, whether acquired commercially,
modified, or customized, that is used to increase, maintain, or improve
functional capabilities of individuals with disabilities'' (29 U.S.C.
3001(3)(4)). AT serves a broad and diverse range of functional needs
among people with an expansive range of potentially disabling
conditions. AT devices and AT services are provided in many contexts,
[[Page 6324]]
including rehabilitation programs, schools, employment programs, and
residential and independent living programs.
Current NIDRR-sponsored AT Outcomes Research Projects are creating
and classifying new outcomes measures to help determine and describe
the impact that various AT devices and services have on the lives of
people with disabilities (Jutai, Fuhrer, Demers, Scherer, & DeRuyter,
2005). While the ability to measure potential outcomes of AT use is
maturing through this NIDRR-sponsored research, the ability to measure
key characteristics of AT interventions is still in its infancy.
To advance AT outcomes research beyond a collection of ad hoc
evaluations of specific products, it is necessary to develop a commonly
shared means of classifying all aspects of AT interventions.
Standardization of intervention measurement would promote the
replicability of AT interventions that are shown by rigorous research
to be associated with positive outcomes. A valid classification of AT
interventions would capture key characteristics of the device or
device-type being provided, as well as information about key
characteristics of AT provision, including setting, assessment, fit/
customization, user training, and device maintenance (Fuhrer, 2001;
Edyburn, 2003).
In addition to the creation and classification of new outcomes
measures, current AT Outcomes Research Project grantees have developed
conceptual frameworks to guide future AT outcomes research (Fuhrer,
Jutai, Scherer, & DeRuyter, 2003). These grantees have designed
sophisticated data-collection interfaces to bring new efficiencies to
the collection of data on AT interventions, key contextual factors, and
outcomes. To facilitate the development of rigorous evidence-based
knowledge in the AT field, these conceptual frameworks and data
collection technologies must be applied more broadly and
systematically. More systematic application of these tools would allow
the AT field to move beyond a series of limited ad hoc evaluations of
single AT products, towards a scientific body of knowledge regarding
expected outcomes associated with the delivery of a wide variety of AT
interventions.
References
Edyburn, D. (2003). Measuring Assistive Technology Outcomes: Key
Concepts. Journal of Special Education Technology. 18(1): 53-55.
Fuhrer, M., Jutai, J., Scherer, M., & DeRuyter, F. (2003). ``A
Framework for the Conceptual Modeling of Assistive Technology Device
Outcomes.'' Disability and Rehabilitation. 25: 1243-1251.
Fuhrer, M. (2001). Assistive Technology Outcomes Research:
Challenges Met and Yet Unmet. American Journal of Physical Medicine
and Rehabilitation. 80(7): 528-535.
Jutai, J., Fuhrer, M., Demers, L., Scherer, M., & DeRuyter, F.
(2005). Toward a Taxonomy of Assistive Technology Device Outcomes.
American Journal of Physical Medicine and Rehabilitation. 84(4):
294-302.
Proposed Priority
The Assistant Secretary for Special Education and Rehabilitative
Services proposes a priority for a Disability Rehabilitation Research
Project (DRRP) for an Assistive Technology (AT) Outcomes Research
Project. Under this priority, the DRRP must be designed to contribute
to the following outcomes:
(a) Improvement of the AT field's ability to measure the impact of
AT on the lives of people with disabilities by continuing to develop AT
outcomes measures and measurement systems.
(b) Improvement of the AT field's ability to measure the impact of
AT on the lives of people with disabilities by developing validated
methods for measuring and classifying AT interventions, including key
characteristics of both the AT device and AT provision (e.g., setting,
assessment, fit/customization, user-training, and device maintenance).
(c) Enhanced understanding of the impact of AT on the lives of
people with disabilities by conducting at least one research project
that systematically applies state-of-the-science measures of AT
interventions, outcomes, and data collections mechanisms.
(d) Collaboration with the relevant NIDRR-sponsored projects, such
as the Rehabilitation Research Training Center on Measuring
Rehabilitation Outcomes and relevant projects within the Rehabilitation
Engineering Research Center program, as identified through consultation
with the NIDRR project officer.
Priority 8--Mobility Aids and Wayfinding Technologies for Individuals
With Blindness and Low Vision
Background
Three of the most challenging and dangerous problems faced by
individuals with blindness and low vision are travel related: (1)
Negotiating complex transit stations; (2) locating bus and metro train
stops; and (3) crossing light-controlled intersections safely and
efficiently (Crandall, Bentzen, Myers, & Brablyn, 2001). To address
these challenges, the Transportation Equity Act for the 21st Century
requires that transportation plans and projects include, where
appropriate, consideration of pedestrian safety issues, including
installation of audible traffic signals and signs at street crossings
(23 U.S.C. 217(g)(c)). Our knowledge about the effectiveness of the
range of technology solutions developed in response to this law and
other intervention strategies for safety, travel, location, and
mobility issues is limited, particularly with regard to subpopulations
within the blind and visually impaired community.
Navigation and travel related challenges are most often addressed
by two primary approaches, orientation and mobility (O&M) and
wayfinding technology solutions. O&M is the conventional approach
designed to provide instruction and experience in independent travel in
the community, including the use of public transportation. Orientation
refers to an individual's ability to monitor his or her position in
relation to the environment, and mobility refers to an individual's
ability to travel safely, detecting and avoiding obstacles and other
potential hazards. Advanced technologies designed to assist individuals
with blindness and low vision in attaining the body of knowledge
relative to the location of spaces through which they travel is known
as wayfinding or ``environmental literacy.'' Whereas many O&M tools,
such as white canes, are designed to address a traveler's mobility
safety concerns, wayfinding or environmental literacy tools, such as
talking signs located at street crossings, are designed to provide a
traveler with orientation information. Some O&M aids are worn on the
body and often are designed to detect and identify obstacle features.
Wayfinding or environmental systems are technologies that are typically
embedded in the texture of spaces and that provide ``location-based''
information (access to some kind of ``knowledge sharing network'' or
``geographic data base'')--for example, manually activated audible
pedestrian signals embedded in intersection traffic lights (Baldwin,
D., 2005).
Although O&M and wayfinding techniques are widely used by
individuals with vision loss, there is ongoing controversy about
whether newly developed wayfinding technologies should supplement
rather than supplant already accepted O&M aids such as white canes and
guide dogs. Currently, no empirically based studies examining or
comparing differences between outcomes for O&M
[[Page 6325]]
users and outcomes for wayfinding technology users exist.
There is a paucity of sound scientific studies examining the
effectiveness of both O&M and wayfinding solutions and intervention
approaches in varied situations, conditions, and functional capacities,
but the literature that is available identifies specific problems with
existing technology and supports the need for better wayfinding and O&M
solutions. For example, bird-call type signals do not provide
unambiguous information about which crosswalk has the walk interval.
Signals comprised only of a bird-call and bell do not indicate the
presence or location of a pedestrian push button and, therefore, do not
solve one of the most important problems associated with push buttons:
the difficulty in knowing whether pedestrian action is required
(Bentzen, Barlow, & Franck, 2000). Although advances have been made to
address some of these problems, there is no consensus about whether
available solutions are adequate to address the travel needs of
individuals with blindness and low vision. Research leading to
development of innovative and effective solutions that will help
individuals with blindness and low vision to safely and independently
navigate their surroundings, and a better understanding of technology
applications would increase our capacity to improve disability and
rehabilitation outcomes for these individuals.
References
Baldwin, D. Navigational Technology Textbook Current Wayfinding
Technology. Retrieved April 22, 2005, from https://
www.wayfinding.net/iibnNECtextcurrent.htm.
Bentzen, B.L., Barlow, J.M., & Franck, L., 2000. Addressing
barriers to blind pedestrians at signalized intersections. Institute
of Transportation Engineers, 70-9, 32-35.
Crandall, W., Bentzen, B.L., Myers, L., & Brablyn, J. (2001).
New orientation and accessibility option for persons with visual
impairment: Transportation applications for remote infrared audible
signage. Clinical and Experimental Optometry, 84:3 120-131.
National Eye Institute https://www.nei.nih.gov/eyedata/ (2004).
Proposed Priority
The Assistant Secretary for Special Education and Rehabilitative
Services proposes a priority for a Disability Rehabilitation Research
Project (DRRP) on Mobility Aids and Wayfinding Technologies for
Individuals With Blindness and Low Vision. To meet this priority, the
DRRP must be designed to contribute to the following outcomes:
(a) Effective technology solutions and intervention approaches that
can enable blind and low vision individuals to safely and independently
navigate their surroundings. The DRRP must contribute to this outcome
by identifying or developing and testing methods, models, and measures
that will inform the technology solutions and intervention approaches.
(b) Improved understanding about the effectiveness of wayfinding
technology and orientation and mobility (O&M) techniques for navigation
and travel problems. The DRRP must be designed to contribute to this
outcome by, at a minimum, conducting comparative analysis of outcomes
for specific subpopulations of individuals with blindness and low
vision who use O&M techniques and wayfinding technology.
(c) Increased technical and scientific knowledge about the
applications of navigation and travel technologies for individuals with
blindness and low vision, leading to more effective use of technologies
and intervention strategies, through the development of knowledge
translation and utilization activities.
(d) Coordination of research activities. The DRRP must contribute
to this outcome by collaborating and consulting with relevant Federal
agencies responsible for the administration of public laws that address
access to and usability of transportation and transit-related systems
and environmental structures for individuals with disabilities, such as
the Architectural and Transportation Barriers Compliance Board, the
U.S. Department of Transportation's Federal Highway Administration,
Federal Transit Administration and National Highway Traffic Safety
Administration, and relevant NIDRR-funded research projects as
identified through consultation with the NIDRR project officer.
Priority 9--Improving Employment Outcomes for the Low Functioning Deaf
(LFD) Population
Background
Current population estimates indicate that there are approximately
53 million individuals with disabilities in the United States and an
estimated 8 million of these individuals are deaf or hard of hearing
(McNeil, 1994; 1995). The pervasiveness of a hearing problem and its
impact on every aspect of life, including employment status, is well
documented (Stika, 1997; Hetu, Lalonde, and Getty, 1994).
Within the population of individuals who are deaf or hard of
hearing there is an even smaller sub-population, estimated at between
125,000 and 165,000 persons referred to as ``low functioning deaf''
(LFD). While individuals considered LFD share the primary disability of
hearing loss, as a group, they also are compromised by a combination of
environmental risk factors and a lack of appropriate environmental and
social supports. Most LFD individuals have limited communication
skills, often are unable to live independently, cannot obtain or
maintain employment, and exhibit minimal social and emotional
competency.
Studies indicate that the functional capacity of individuals who
are LFD present unique challenges and complications at the individual
and systems levels. More specifically, significant difficulty with all
modes of communication, including the limited literacy proficiency that
characterizes the LFD population (Wheeler-Scruggs, 2002), is a
potentially important factor in disability and rehabilitation outcomes
across the lifespan and major life domains for these individuals.
While several factors influence employment outcomes for the general
population of individuals who are deaf or hard of hearing, the LFD
population is at particular risk for being underserved by
rehabilitation and vocational training systems. Most LFD individuals
are inadequately prepared for workforce participation due to limited
communication abilities and low literacy rates; often LFD adults read
below the second grade level and are unable to complete high school.
Additionally, the majority of existing social supports and services are
targeted to deaf and hard of hearing youth able to participate in
college and other postsecondary vocational programs where a certain
level of academic achievement is presumed (National Association for the
Deaf, 2004). Thus, LFD individuals are at a distinct disadvantage in
their ability to access and benefit from existing employment and
vocational services and supports.
Further, although the literature in this field documents the impact
of hearing problems on functional outcomes, there is limited
understanding about the unique employment needs of the LFD population.
Past research on LFD and employment has not extensively examined the
various elements of job readiness, job placement, and retention in
relation to the impact that programs such as Supplemental Security
Income, Social Security Disability Insurance, and welfare have on long-
term employment outcomes for individuals who are LFD.
[[Page 6326]]
The complexity of the employment issues facing individuals who are
LFD presents a unique opportunity for researchers to expand the current
knowledge base and facilitate development of the most effective
methods, approaches, and intervention strategies to improve employment
outcomes for the LFD population (Dew, 1999). Research is needed to
inform policy, program planning, and development activities and to
assist with improving systems and individual level outcomes for the LFD
population.
References
Dew, Donald. Serving Individuals Who Are Low Functioning Deaf.
25th Institute on Rehabilitation Issues, The George Washington
University, Washington DC, 1999.
Hetu, R., Lalonde, M., & Getty, L. (1987). Psychosocial
disadvantages associated with occupational hearing loss as
experienced by the family. Audiology, 26, 141-152.
McNeil J.M. ``Americans with disabilities, 1994--95''.
Washington, DC: U.S. Department of Commerce, Bureau of the Census,
1997. (Current population reports; series P70, no. 61).
National Association for the Deaf, 2004. LFD Strategic Work
Group (2004). A Model for a National Collaborative Service Delivery
System: Position Paper. Washington DC. Retrieved from NAD Web site:
https://www.nad.org/lfd.
Stika, C.J. (1997). Living with hearing loss--focus group
results: Family relationships and social interactions. Hearing Loss,
September/October, November/December.
Wheeler-Scruggs, K. Assessing the employment and independence of
people who are deaf and low functioning. American Annals of the
Deaf, October, 2002.
Proposed Priority
The Assistant Secretary for Special Education and Rehabilitative
Services proposes a priority for a Disability Rehabilitation Research
Project (DRRP) on Improving Employment Outcomes for the Low Functioning
Deaf (LFD) Population. Under this priority, the DRRP must be designed
to contribute to the following outcomes:
(a) Enhanced knowledge about the unique functional and
communication characteristics of the LFD population and the extent to
which these characteristics affect disability and rehabilitation
outcomes, including labor force participation and employment
preparation. The DRRP must contribute to this outcome by developing and
testing protocols that accurately measure population characteristics;
and psychometrically sound instruments that measure predictors of
disability, rehabilitation, and employment outcomes.
(b) Improved employment outcomes and reduction of barriers to labor
force participation for individuals who are LFD. The DRRP must
contribute to this outcome by developing theory-based intervention
strategies and methods that help to enhance functional skills, social
interaction, communication and literacy competencies, and
scientifically-sound approaches for identifying barriers to labor force
participation.
(c) Collaboration with NIDRR-sponsored projects, including the
Rehabilitation Research and Training Center (RRTC) on Measuring
Rehabilitation Outcomes and other relevant projects within NIDRR's RRTC
and Field Initiated programs.
Priority 10--Disability Business Technical Assistance Centers (DBTACs)
Background
The Americans with Disabilities Act of 1990, as amended, 42 U.S.C.
12101 et seq. (ADA), prohibits discrimination against individuals with
disabilities in employment, transportation, public accommodations,
State and local government services, and telecommunications. Since
1991, NIDRR has supported 10 regional DBTACs that have provided
technical assistance and training and disseminated information on the
requirements of the ADA to entities covered by the law and individuals
with disabilities. The current regional DBTACs provide information and
services on ADA issues relating to employment, public services, and
public accommodations, and communicate with businesses, public
organizations, architects, individuals with disabilities, disability
organizations, and others on the law's requirements (see https://
www.adata.org/centers.htm for a current listing of the DBTACs). Each
DBTAC's activities vary, but all regional DBTACs provide technical
assistance and training, disseminate materials, provide information and
referral services, build public awareness, and work to build local
capacity to promote technical assistance and training on the ADA.
DBTACs provide their services via telephone calls (including toll-free
``800'' number calls), the World Wide Web, workshops and other training
sessions. Services provided by DBTACs in 2004 included providing
training on employment issues for State human resource personnel;
collaborating with a State agency to develop an ADA ref