Utah Administrative Code
Topic - Health
Title R436 - Center for Health Data, Vital Records and Statistics
Rule R436-17 - Review and Approval of Research Requests
Section R436-17-3 - Requests for Access to Records for Research
Universal Citation: UT Admin Code R 436-17-3
Current through Bulletin 2024-06, March 15, 2024
(1) If the research does not involve the use of any personal identifying information from the vital records, the State Registrar may provide the researcher with the requested statistical information upon receipt of the written request and payment of the associated costs.
(2) If the research involves the use of personal identifying information, the request must be in writing and must be signed by the researcher.
(a) The
request must outline the research protocol to be used.
(b) If the research involves contact with a
person listed in a vital record, the request must describe who is to be
contacted, how, by whom, and what questions will be asked. If a survey is
planned, a copy of the survey must be submitted.
(c) Approval by an Institutional Review Board
must be included with the request.
(d) The variables requested must be
identified and justified.
(e) The
researcher and persons who may have access to the identifying information in
the vital records shall sign a Researcher's Confidentiality Agreement, that is
available from the Office of Vital Records and Statistics.
(f) The researcher may not use or allow other
persons to use the vital records information for any purpose other than the
approved research.
(g) The State
Registrar reviews research requests and determines one of the following
outcomes.
(i) The request is approved and the
researcher is notified in writing of the approval and of the associated
costs.
(ii) The request is given
tentative approval and the researcher:
(A) is
notified in writing of the approval and associated costs; and,
(B) resolves concerns identified by the State
Registrar.
(iii) The
request is not approved and the researcher is:
(A) notified in writing of the reasons for
the disapproval;
(B) notified of
the areas of concern with the request;
(C) allowed to address the areas of concern
and resubmit the request;
(D)
notified that the decision to deny may be appealed to the Executive Director of
the Department of Health.
(h) A data sharing agreement must be
developed, approved, and signed as required by the Department.
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