Code of Maine Rules
10 - DEPARTMENT OF HEALTH AND HUMAN SERVICES
144 - DEPARTMENT OF HEALTH AND HUMAN SERVICES - GENERAL
Chapter 709 - CRITICAL CONGENITAL HEART DEFECTS SCREENING
Section 144-709-4.0 - REPORTING

Current through 2024-38, September 18, 2024

4.1 Suspected or confirmed heart defects shall be reported to the Maine CDC Birth Defects Program as required by 22 M.R.S.A. §1687, and Chapter 280, Rules Relating to the Maine (CDC) Birth Defects Program.

4.2 All infants born, transferred to or admitted to a hospital shall have their screening status reported to the Maine CDC Birth Defects Program.

4.3 Hospitals, birthing facilities and other providers of CCHD screening shall provide the following information to the Maine CDC Birth Defects Programon a weekly to bi-monthly basis:

a. the number of infants born in that hospital or location;

b. the number of infants born in that hospital or location who had a heart defect suspected or diagnosed prenatally;

c. the number of infants born in that hospital or location who received a CCHD screening;

d. the number of infants who received a CCHD screening at that hospital or location who received a negative screen "pass" from the test;

e. the number of infants who received a CCHD screening at that hospital or location who received one or more indeterminate screen results from the test;

f. the number of infants who received one or more indeterminate screen results who were referred for clinical assessment;

g. the number of infants who received a CCHD screening at that hospital or location who received a positive screen "fail" from the test;

h. the number of infants with a positive "fail" screen that were referred for clinical assessment and pediatric cardiology consultation and

i. the number of infants whose parents or guardians declined/refused the CCHD screening.

4.4 The birthing hospital, birthing center or other provider of CCHD screening shall include the information necessary to allow identification of the infant for appropriate tracking and follow-up when reporting to the Department.

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