Current through Register Vol. 51, No. 3, September 1, 2024
RELATES TO:
KRS
200.660(6),
200.664,
34
C.F.R. 303.321, 303.340-303.346,
20 U.S.C.
1435,
1436,
1437
NECESSITY, FUNCTION, AND CONFORMITY:
KRS
200.660 requires the Cabinet for Health and
Family Services to administer funds appropriated to implement the provisions of
KRS 200.650
to
200.676,
to enter into contracts with service providers, and to promulgate
administrative regulations. This administrative regulation establishes the
requirements for assessment, the Individualized Family Service Plans used in
First Steps, and assistive technology.
Section
1. Child Assessment.
(1)
Assessment shall be an on-going procedure used by personnel meeting the
qualifications established in
902 KAR
30:150, Section (2)(a)-(p), throughout the child's
period of eligibility for First Steps. An assessment shall reflect:
(a) The child's unique strengths and needs;
and
(b) The services appropriate to
meet those needs.
(2) All
evaluations and assessments of the child and family shall be conducted in a
nondis-criminatory manner and selected and administered so as not to be
racially or culturally discriminatory.
(3) Unless clearly not feasible to do so, all
assessments of a child shall be conducted in the native language of the
child.
(4) Assessments shall
reflect appropriate multisource and multimeasures. One (1) source or one (1)
measure shall not be used as the sole criterion for determining an intervention
program.
(a) Assessment methods shall include
direct assessment and at least one (1) of the following:
1. Observations;
2. Interview and parent reports; or
3. Behavioral checklist and
inventories.
(b) Direct
assessment shall include one (1) or more instruments that are:
1. Appropriate for an infant or toddler and
allow for adaptations for a disability as needed; and
2. Criterion-referenced, which compares the
child's level of development with skills listed in a chronological sequence of
typical development.
(5) If, after the initial evaluation and
assessments are completed, the IFSP team determines that a subsequent
assessment is warranted, the following shall be documented on the IFSP:
(a) The IFSP team's reasons for an additional
assessment;
(b) Whether a current
provider on the IFSP team can assess the area or areas of concern;
and
(c) Circumstances relating to
the child's ability or the family's capacity to address the child's
developmental needs that warrant the subsequent assessment.
(6) POE staff shall obtain a
physician's or advanced practice registered nurse's (APRN's) written approval
in order to complete an assessment on a child deemed medically fragile. The
approval shall be specific as to the modifications needed to accommodate the
child's medical status.
(7) A
formal, direct assessment shall include a written report if performed for
initial assessment, the annual assessment, or exit assessment, or if authorized
by the IFSP. This report shall include:
(a) A
description of the assessment instruments used in accordance with subsection
(4)(b) of this section;
(b) A
description of the assessment activities in accordance with subsection (4)(a)
of this section;
(c) Identifying
information, including:
1. The child's First
Steps identification number;
2. The
name of the child;
3. The child's
age at the date of the assessment;
4. The name of the service provider and
discipline;
5. The date of the
assessment;
6. The setting of the
assessment;
7. The state of health
of the child during the assessment including a statement of the child's vision
and hearing status;
8. The parent's
assessment of the child's performance in comparison to abilities demonstrated
by the child in more familiar circumstances;
9. The medical diagnosis if the child has an
established risk condition;
10. Who
was present for the assessment; and
(d) A profile of the child's level of
performance, in a narrative form which shall indicate the:
1. Child's unique strengths and
needs;
2. Skills achieved since the
last report, if applicable; and
3.
Current and emerging skills, including skills performed independently and with
assistance.
(8)
Item level data from the cabinet-approved criterion referenced assessment
protocol, in accordance with this administrative regulation, shall be submitted
electronically to the Kentucky Early Childhood Data System within five (5)
working days of the completion of the assessment.
(9)
(a) The
initial or other formal assessments, with written reports, shall be completed
and recorded in the child's record using the First Steps data management system
within five (5) working days of the provider completing the
assessment.
(b) The provider who
performed the assessment shall:
1. Write the
report in family-appropriate language that the child's family can easily
understand;
2. Provide the written
report to the family within the time frame established in paragraph (a) of this
subsection; and
3. Document in the
child's record the date the report was mailed to the family.
(c) If the time frame established
in paragraph (a) of this subsection is not met due to illness of the child or a
request by the parent, the assessor shall document the reason for the delay in
the child's record.
(10)
(a) An assessment provided as a general
practice of a discipline, not due to the child or family's needs, shall be
authorized as an early intervention service, not as an assessment.
(b) Ongoing assessment shall ensure that the
IFSP and services are flexible and accessible.
(11) Five (5) working days prior to either
the annual or six (6) month review of the IFSP or the expiration date of the
IFSP, a service provider shall complete progress reports in the online data
management system and provide a copy to the family.
(12)
(a)
Within thirty (30) days prior to exiting the First Steps program at age three
(3), each child shall receive an assessment in all five (5) developmental
domains using a cabinet-approved criterion referenced instrument, in accordance
with this administrative regulation.
(b) The assessment used for annual
redetermination of eligibility may be used to meet the assessment required by
paragraph (a) of this subsection if it is completed within ninety (90) days
prior to the child's exit from the First Steps Program.
Section 2. Family Assessment.
(1) The family assessment shall be conducted
with the family of a child eligible for early intervention services to identify
the family's resources, priorities, and concerns for their child.
(2) The identification of the family's
resources, priorities, and concerns shall be:
(a) Voluntary on the part of the
family;
(b) Family
directed;
(c) Based on information
provided by the family through an assessment tool and personal interview with
those members who elect to participate in the assessment; and
(d) Used to determine the supports and
services necessary to enhance the family's capacity to meet the developmental
needs of the eligible child.
(3) Unless clearly not feasible to do so, the
family assessment shall be conducted in the native language of the family
members being assessed.
(4) POE
staff shall provide a written report of the family assessment to the family
within five (5) working days of the parent interview.
(5) The family assessment report shall
contain recommendations that address the family's priorities as well as the
child's holistic needs based on the review of pertinent medical, social, and
developmental information.
(6) The
family assessment shall be updated prior to the six (6) month IFSP meeting and
shall be re-administered prior to the annual IFSP meeting.
Section 3. Individualized Family Service Plan
(IFSP).
(1) For a child who has been evaluated
for the first time and determined eligible in accordance with
902 KAR
30:120, a meeting to develop the initial IFSP shall be
conducted within forty-five (45) days after the point of entry receives the
referral.
(2) The IFSP shall be
reviewed by convening a meeting at least every six (6) months. An IFSP team
meeting shall be convened more frequently if:
(a) A periodic IFSP review meeting is
requested by:
1. The family; or
2. The family and a team member;
or
(b) An early
intervention service is added or increased.
(3) The purpose of the periodic review shall
be to determine:
(a) The degree to which
progress toward achieving the results or outcome identified in the IFSP is
being made; and
(b) Whether
modification or revision of the results, outcomes, or early intervention
services identified in the IFSP is necessary.
(4) The review may be carried out by a
meeting or by another means that is acceptable to the parents and other
participants.
(5) A face to face
meeting shall be conducted on at least an annual basis to evaluate and revise,
as appropriate, the IFSP for a child and the child's family.
(6) IFSP meetings shall be conducted:
(a) In settings and at times that are
convenient for the family; and
(b)
In the native language of the family or other mode of communication used by the
family, unless it is clearly not feasible to do so.
(7) The contents of the IFSP shall be fully
explained to the parent and informed written consent obtained prior to the
provision of early intervention services described in the IFSP. The signed IFSP
shall be a contract between the family and service providers. A service
included on the IFSP shall be provided as authorized, unless the family chooses
not to receive the service and this choice is documented in the child's
record.
(8) Each initial meeting
and each annual IFSP team meeting to evaluate the IFSP shall include the
following participants:
(a) The parent or
parents of the child;
(b) Other
family members, as requested by the parent, if feasible to do so;
(c) An advocate or person outside the family,
if the parent requests that the person participate;
(d) The service coordinator who is
responsible for implementing the IFSP;
(e) The person directly involved in
conducting the evaluation and assessment of the child; and
(f) As appropriate, the provider who will be
providing early intervention service to the child and family.
(9) If the person identified in
subsection (8)(e) of this section is unable to attend a meeting, arrangements
shall be made for that person's participation through other means, including
one (1) of the following:
(a) Participating in
a telephone conference call;
(b)
Having a knowledgeable representative attend the meeting; or
(c) Making pertinent records available at the
meeting.
(10) The IFSP
shall include:
(a) Information about the
child's present level of developmental functioning. Information shall cover the
following domains:
1. Physical development
that includes fine and gross motor skills, vision, hearing, and general health
status;
2. Cognitive development
that includes skills related to the child's mental development and includes
basic sensorimotor skills, as well as preacademic skills;
3. Communication development that includes
skills related to exchanging information or feelings, including receptive and
expressive communication and communication with peers and adults;
4. Social and emotional development that
includes skills related to the ability of the child to successfully and
appropriately select and carry out their interpersonal goals; and
5. Adaptive development that includes
self-help skills and the ability of the child's sensory systems to integrate
successfully for independent functions;
(b) Performance levels to determine strengths
which can be used to enhance functional skills in daily routines when planning
instructional strategies to teach skills;
(c) A description of:
1. Underlying factors that may affect the
child's development including the established risk condition; and
2. What motivates the child, as determined on
the basis of observation in natural settings, during child interaction, and
through parent report;
(d) With concurrence of the family, a
statement of the family's resources, priorities, and concerns related to
enhancing the development of the child;
(e)
1. A
statement of the measurable results or measurable outcomes expected to be
achieved for the child, including pre-literacy and language skills as
developmentally appropriate for the child, which shall:
a. Be functionally stated;
b. Be representative of the family's own
priorities;
c. Fit naturally into
the family's routines or schedules;
d. Reflect the use of the family's own
resources and social support network; and
e. Be flexible to meet the child and family's
needs in current and possible future environments;
2. The criteria, procedures, and time lines
used to determine the degree to which progress toward achieving the outcomes is
being made; and
3. A statement
indicating whether modifications or revision of the outcomes or services are
necessary;
(f) At least
one (1) measurable transition outcome that addresses any upcoming changes
relevant to the child and family or, if the child is two (2) years or older,
the steps and services to be taken to support a smooth transition of the child
to preschool or other appropriate services. This shall include:
1. Discussions with, and training of,
parents, as appropriate, regarding future placements and other matters related
to the child's transition;
2.
Activities to be used to help prepare the child for changes in the service
delivery;
3. Specific steps that
will help the child adjust to and function in the new setting or activity;
and
4. Identification of transition
service and other activities the IFSP team determines are necessary to support
the transition of the child;
(g) The statement of the specific early
intervention services, based on peer-reviewed research to the extent
practicable, that are necessary to meet the unique needs of the child and
family to achieve the results or outcomes and which:
1. Are stated in length, frequency,
intensity, duration, location and method of delivering services; and
2. Include payment arrangements;
(h)
1. A description of the natural environment,
which includes natural settings and service delivery systems, in which the
early intervention service is to be provided;
2. How the skills shall be transferred to a
caregiver so that the caregiver can incorporate the strategies and activities
into the child's natural environment;
3. How the child's services may be integrated
into a setting in which other children without disabilities participate;
and
4. If the service cannot be
provided in a natural environment, the reason, including:
a. Why the early intervention service cannot
be achieved satisfactorily in a natural environment;
b. How the service is supported by the peer
reviewed research;
c. How the
service provided in this location or using this approach will support the
child's ability to function in his or her natural environment; and
d. A timeline as to when the service might be
expected to be delivered in a natural environment approach;
(i) The dates for
initiation of the services and the anticipated duration of those
services;
(j)
1. Other services that the child needs that
are not early intervention services, such as medical services or housing for
the family; and
2. Identification
of the funding sources and providers to be used for those services or the steps
that will be taken to secure those services through public or private
resources;
(k) The name
of:
1. The service coordinator representing
the child's or family's needs who shall be responsible for the implementation
of the IFSP and coordination with other agencies and person in accordance with
902 KAR
30:110, Section 2; and
2. The primary service
provider;
(l) A review of
the Family Rights Handbook; and
(m)
A statement signed by the parent that complies with
KRS
200.664(6).
(11) The IFSP shall be finalized within five
(5) working days of the meeting.
(12)
(a) An
authorized IFSP shall be valid for a period not to exceed six (6) months. An
amendment that is made to the IFSP shall be valid for the remaining period of
the plan.
(b) A parent or
guardian's signature on the IFSP shall constitute written consent for early
intervention services.
(13) In the development and implementation of
the IFSP, IFSP team members shall:
(a) Provide
a family-centered approach to early intervention;
(b) Honor the racial, ethnic, cultural, and
socioeconomic diversity of families;
(c) Show respect for and acceptance of the
diversity of family-centered early intervention;
(d) Allow families to choose the level and
nature of their involvement in early intervention services;
(e) Facilitate and promote family and
professional collaboration and partnerships, which are the keys to
family-centered early intervention and to successful implementation of the IFSP
process;
(f) Plan and implement the
IFSP using a team approach;
(g)
Reexamine their traditional roles and practices and develop new practices as
appropriate that promote mutual respect and partnerships which may include a
transdisciplinary approach;
(h)
Determine the settings for service delivery based on the child's results or
outcomes that are identified by the team; and
(i) Ensure that families have access and
knowledge of services that shall:
1. Be
provided in as normal a fashion and environment as possible;
2. Promote the integration of the child and
family within the community;
3. Be
embedded in the family's normal routines and activities; and
4. Be conducted in the family's natural
environment, if possible, and in a way that services promote integration into a
community setting which includes children without disabilities.
(14) If an agency or
professional not participating on the IFSP team but active in the child's life
makes a recommendation for an early intervention service, it shall not be
provided as a First Steps service unless:
(a)
The IFSP team:
1. Considers the
recommendation;
2. Determines that
it relates to a chosen outcome or result, and family priority; and
3. Agrees that it is a necessary service;
and
(b) The service is
not covered by another payor source.
Section 4. Assistive Technology.
(1) To access assistive technology services
and devices, the child shall:
(a) Be eligible
for First Steps; and
(b) Have the
need for and use of assistive technology devices and services documented in the
IFSP.
(2) Prior to
submitting a request for purchase of an assistive technology device, the
service coordinator shall attempt to obtain funding from at least two (2)
sources outside the First Steps and Medicaid systems.
(3) The First Steps assistive technology
review team shall review:
(a) Each equipment
request for which the purchase price exceeds $100; or
(b) A request submitted by the service
coordinator, other POE staff, or state lead agency staff.
(4) A request shall be processed within ten
(10) working days of the receipt of required information. The required
information shall include:
(a) A current
IFSP;
(b) Assessments with
recommendations;
(c) Justification
statement for each device based on needs, including documentation of attempts
to find alternative funding sources;
(d) Information regarding the equipment or
device request, including information regarding the training of the family on
the use of equipment; and
(e)
Documentation of safety and approved uses in the birth to three (3) age
population.
(5) The
decision made through the review process may be appealed to the Part C
Coordinator who shall:
(a) Consult with the
monitoring assistive technology review team; and
(b) Issue the final decision.
(6) If the IFSP team is not in
agreement with the decision of the Part C Coordinator:
(a) The child's IFSP team shall reconvene for
an IFSP meeting with a representative from the assistive technology review team
and a representative of the state lead agency; and
(b) If the IFSP team concludes at that IFSP
meeting that the assistive technology device is still needed, payment for the
device shall be authorized for the duration of the current IFSP.
(7) A request for purchase shall
be made no later than ninety (90) days prior to the child's third
birthday.
(8) Assistive technology
devices purchased solely through First Steps funding shall be the property of
the program. When the child exits the program, the family shall:
(a) Return the item to the POE office for the
district where the child resides; or
(b) Purchase the item from the program at a
depreciated cost.
(9)
Assistive technology devices may be rented through a contracted assistive
technology provider to:
(a) Determine the
appropriateness of the requested item prior to purchase;
(b) Assist the child in achieving the IFSP
outcomes or results; or
(c) Address
short term needs of the child while awaiting receipt of a purchased
device.
(10) The payment
for assistive technology devices shall be made in accordance with
902 KAR
30:200 Section 2(5)(a) and (b).
(11) Items that cannot be returned for
sanitary reasons, such as adapted utensils, shall not be rented.
Section 5. Incorporation by
Reference.
(1) "Individualized Family Service
Plan", September 2012, is incorporated by reference.
(2) This material may be inspected, copied,
or obtained, subject to applicable copyright law, at the Department for Public
Health, 275 East Main Street, Frankfort, Kentucky 40621, Monday through Friday,
8 a.m. to 4:30 p.m.
STATUTORY AUTHORITY:
KRS
194A.050(1),
200.660(8),
20 U.S.C.
1436