Illinois Administrative Code
Title 89 - SOCIAL SERVICES
Part 500 - EARLY INTERVENTION PROGRAM
Subpart E - PROCEDURAL SAFEGUARDS/CLIENT RIGHTS
Appendix E - Medical Conditions Resulting in High Probability of Developmental Delay (not an exclusive list)
1. Anomalies of Central Nervous System
Spina Bifida/Mylomeningolecele
Spina Bifida with Hydrocephaly
Anomalies of the Spinal Cord
Encephalocele
Hydroencephalapathy
Microencephaly
Congenital Hydrocephalus
Reduction Deformities of Brain, including but not limited to:
Spina Bifida/Mylomeningolecele
Spina Bifida with Hydrocephaly
Anomalies of the Spinal Cord
Encephalocele
Hydroencephalapathy
Microencephaly
Congenital Hydrocephalus
Reduction Deformities of Brain, including but not limited to:
Absence
Agenesis
Agyria
Aplasia
Arhinecephaly
Holoprosencephaly
Hypoplasia
Lissencephaly
Microgyria
Schizencephaly
2. Birth weight: <1000 gm.
3. Chromosomal Disorders (most common, not to be used as an exclusive list)
Trisomy 21 (Down's Syndrome)
Trisomy 13
Trisomy 18
Autosomal Deletion Syndromes
Fragile X Syndrome
Williams Syndrome
Angelmann's Syndrome
Prader-Willi Syndrome
4. Congenital Infections
Toxoplasmosis
Rubella
Sytomegalovirus
Herpes Simplex with CNS involvement
5. Neonatal Meningitis
6. Cerebral Palsy
7. Craniofacial Anomalies (Major)
Cleft Palate
8. Disorders of the Sense Organs
Hearing loss of 30 decibels (dB) or greater at any two of the following frequencies: 500, 1000, 2000, 4000, and 8000 Hertz (Hz) involving one or both ears, or hearing loss of 35 dB or greater at any one of the following frequencies: 500, 1000, and 2000 Hz involving one or both ears.
Visual Impairment
Bilateral Amblyopia
Severe Retinopathy of Prematurity ROP 3+
Bilateral Cataracts
Myopia of 3 Dioptors or More
Albinism
9. Disorders of the Central Nervous System
Hypsarrhythmia
Acquired Hydrocephalus
Stroke
Traumatic Brain Injury
Intraventricular Hemorrhage - Grade III, IV
Hypoxic Ischemic Encephalopathy (with organ failure, seizures, renal failure, cardiac failure)
Unspecified Encephalopathy
Spinal Cord Injury
Neonatal Seizures (secondary to asphyxia or hypoglycemia)
Central Nervous System Cysts
Central Nervous System Tumors
Periventricular Leukomalacia
10. Inborn Errors of Metabolism
11. Neuromuscular Disorders
Congenital Muscular Dystrophy
Myotonic Dystrophy
Werdnig-Hoffman (Spinal Muscular Atrophy)
Congenital Myopathy
Duchenne
12. Pervasive Developmental Disorder/Autistic Spectrum
13. Syndromes (*see further instructions for Division of Specialized Care for Children (DSCC) referral)
Cornelia de Lange
Lowe's
Rett
Rubenstein-Taybi
CHARGE (multiple anomalies)
VATER
14. Fetal Alcohol Syndrome
Not just exposure to alcohol in utero or fetal alcohol effects, but a diagnosis of the syndrome
15. Orthopedic Abnormalities
Brachioplexus at Birth
Caudal Regression
Proximal Focal Femoral Deformities
Partial Amputations
Holt-Oram
Acquired Amputations
Arthrogryposis Multiplex Congenita
Osteogenesis Imperfecta (*see further instruction for DSCC referral)
16. Technology Dependent
Tracheostomy
Ventilator Dependent (*see further instruction for DSCC referral)
17. Social Emotional Disorders
Attachment or Relationship Disorder
18. Lead Poisoning (as defined in 77 Ill. Adm. Code 845.20) confirmed by a venous blood test
Children with medical conditions that are not listed may be determined eligible for services by a qualified family physician, pediatrician, or pediatric subspecialist (pediatric neurologist, geneticist, pediatric orthopedic surgeon, pediatrician with special interest in disabilities) who provides written verification that the child's medical condition is associated with a high probability of developmental delay as listed in eligibility criteria.
Children with undiagnosed medical conditions or who require further medical evaluation may be referred by Child and Family Connections (regional intake entity) for a medical diagnostic evaluation.
* Referring to DSCC - Children with Cleft Palate, Orthopedic Abnormalities, or other potential DSCC-eligible diagnoses associated with physical disabilities should be referred to the DSCC. DSCC may provide medical diagnostic support at no cost to the family. Simultaneously Child and Family Connections offices should complete the intake process as usual. DSCC will determine the type of ongoing assistance that they can provide.
