Current through Register Vol. 42, No. 5, February 29, 2024
(1) The Sickle Cell Chapters will provide:
(a)
Education Programs. One of the most important functions of the community-based sickle cell organization is to educate all people in the state of Alabama about sickle cell conditions and disease. Educational programs are designed to inform the general public and the at-risk population about sickle cell conditions; inform medical and social service providers about the needs of patients; office educational programs to the general public, affected families, medical and social service providers, employers and employment agencies.
(b)
Screening Program. The second most important function of the community-based sickle cell organization is to screen the public in the state of Alabama for sickle cell conditions. All community-based sickle cell organizations must provide testing services that screen for any sickle cell condition. To carry out the screening program, all community-based sickle cell organizations must have trained, qualified person or entities (laboratories or organizations) to do the laboratory work.
(c)
Counseling Service for Individuals Diagnosed with Sickle Cell Condition Disease. The third most important function is to counsel individuals with sickle cell condition or disease in the state of Alabama. To carry out the counseling program, all the community-based sickle cell organizations must have trained, qualified persons or entities to do the work.
(d)
An Individual Must:
1. Have a bachelor's degree in a natural or social science. Counselor currently employed must obtain the degree within the four years following the approval and ratification of this document by the Alabama Legislature.
2. Have training and certification in counseling.
(e)
An Organization Must:
1. Be an affiliate member of the Sickle Cell Disease Association of America. The Sickle Cell Disease Association of America is the only known and identified governing parent organization. All community-based sickle cell organizations should be affiliate members.
2. Be a member organization of the Sickle Cell Disease Association of America, Alabama State Chapter.
(2) Linking Services: Link Individuals with sickle cell conditions or disease with primary health care providers in the community and the Sickle Cell Comprehensive Centers in the State of Alabama.
(3) Client Support Services provide services that enrich the lives of individuals with sickle cell condition or disease. All the chapters will provide support services for individuals and families affected by a sickle condition or disease. These services include pharmacy and physician referrals and other psychosocial support.
(4) Collaborate with the Comprehensive Sickle Cell Centers to provide comprehensive care for individuals with sickle cell conditions or disease.
(a) Be formally affiliated with a Comprehensive Sickle Cell Center. There are many medical complications associated with a sickle cell condition or disease. Comprehensive medical care is often essential to the well-being of a person with sickle cell condition or disease. The services offered at the Comprehensive Sickle Cell Center are not otherwise available in community hospitals. Programmatic linkages between community-based organizations and Centers enhance resource availability and continuity of care.
Author: Alabama Sickle Cell Oversight and Regulatory Commissioners
