Supplemental Evidence and Data Request on Patient and Provider Level Strategies To Address Racial/Ethnic Disparities in Health and Healthcare, 76042-76044 [2022-26930]
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76042
Federal Register / Vol. 87, No. 237 / Monday, December 12, 2022 / Notices
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[FR Doc. 2022–26869 Filed 12–9–22; 8:45 am]
BILLING CODE P
DEPARTMENT OF HEALTH AND
HUMAN SERVICES
Agency for Healthcare Research and
Quality
Supplemental Evidence and Data
Request on Patient and Provider Level
Strategies To Address Racial/Ethnic
Disparities in Health and Healthcare
Agency for Healthcare Research
and Quality (AHRQ), HHS.
ACTION: Request for supplemental
evidence and data submissions.
AGENCY:
The Agency for Healthcare
Research and Quality (AHRQ) is seeking
scientific information submissions from
SUMMARY:
E:\FR\FM\12DEN1.SGM
12DEN1
Federal Register / Vol. 87, No. 237 / Monday, December 12, 2022 / Notices
the public. Scientific information is
being solicited to inform our review on
Patient and Provider Level Strategies to
Address Racial/Ethnic Disparities in
Health and Healthcare, which is
currently being conducted by the
AHRQ’s Evidence-based Practice
Centers (EPC) Program. Access to
published and unpublished pertinent
scientific information will improve the
quality of this review.
DATES: Submission Deadline on or
before January 11, 2023.
ADDRESSES:
Email submissions: epc@
ahrq.hhs.gov.
Print submissions:
Mailing Address: Center for Evidence
and Practice Improvement, Agency for
Healthcare Research and Quality,
ATTN: EPC SEADs Coordinator, 5600
Fishers Lane, Mail Stop 06E53A,
Rockville, MD 20857.
Shipping Address (FedEx, UPS, etc.):
Center for Evidence and Practice
Improvement, Agency for Healthcare
Research and Quality, ATTN: EPC
SEADs Coordinator, 5600 Fishers Lane,
Mail Stop 06E77D, Rockville, MD
20857.
lotter on DSK11XQN23PROD with NOTICES1
FOR FURTHER INFORMATION CONTACT:
Jenae Benns, Telephone: 301–427–1496
or Email: epc@ahrq.hhs.gov.
SUPPLEMENTARY INFORMATION: The
Agency for Healthcare Research and
Quality has commissioned the
Evidence-based Practice Center (EPC)
Program to complete a review of the
evidence for Patient and Provider Level
Strategies to Address Racial/Ethnic
Disparities in Health and Healthcare.
AHRQ is conducting this systematic
review pursuant to Section 902 of the
Public Health Service Act, 42 U.S.C.
299a.
The EPC Program is dedicated to
identifying as many studies as possible
that are relevant to the questions for
each of its reviews. In order to do so, we
are supplementing the usual manual
and electronic database searches of the
literature by requesting information
from the public (e.g., details of studies
conducted). We are looking for studies
that report on Patient and Provider
Level Strategies to Address Racial/
Ethnic Disparities in Health and
Healthcare, including those that
describe adverse events. The entire
research protocol is available online at:
https://effectivehealthcare.ahrq.gov/.
This is to notify the public that the
EPC Program would find the following
information on Patient and Provider
Level Strategies to Address Racial/
Ethnic Disparities in Health and
Healthcare helpful:
VerDate Sep<11>2014
18:08 Dec 09, 2022
Jkt 259001
D A list of completed studies that
your organization has sponsored for this
indication. In the list, please indicate
whether results are available on
ClinicalTrials.gov along with the
ClinicalTrials.gov trial number.
D For completed studies that do not
have results on ClinicalTrials.gov, a
summary, including the following
elements: study number, study period,
design, methodology, indication and
diagnosis, proper use instructions,
inclusion and exclusion criteria,
primary and secondary outcomes,
baseline characteristics, number of
patients screened/eligible/enrolled/lost
to follow-up/withdrawn/analyzed,
effectiveness/efficacy, and safety results.
D A list of ongoing studies that your
organization has sponsored for this
indication. In the list, please provide the
ClinicalTrials.gov trial number or, if the
trial is not registered, the protocol for
the study including a study number, the
study period, design, methodology,
indication and diagnosis, proper use
instructions, inclusion and exclusion
criteria, and primary and secondary
outcomes.
D Description of whether the above
studies constitute ALL Phase II and
above clinical trials sponsored by your
organization for this indication and an
index outlining the relevant information
in each submitted file.
Your contribution is very beneficial to
the Program. Materials submitted must
be publicly available or able to be made
public. Materials that are considered
confidential, marketing materials, study
types not included in the review, or
information on indications not included
in the review cannot be used by the EPC
Program. This is a voluntary request for
information, and all costs for complying
with this request must be borne by the
submitter.
The draft of this review will be posted
on AHRQ’s EPC Program website and
available for public comment for a
period of 4 weeks. If you would like to
be notified when the draft is posted,
please sign up for the email list at:
https://www.effective
healthcare.ahrq.gov/email-updates.
The technical brief will answer the
following questions. This information is
provided as background. AHRQ is not
requesting that the public provide
answers to these questions.
Guiding Questions
What is the current evidence for
strategies targeted at patients and
provider/health professionals and
designed to reduce racial and ethnic
disparities and improve health
outcomes in the treatment of common
chronic conditions in adults?
PO 00000
Frm 00020
Fmt 4703
Sfmt 4703
76043
a. What interventions have been
studied?
b. What racial and ethnic populations
have been studied?
c. What common (multiple and single)
chronic conditions have been studied?
d. What primary outcomes have been
studied?
e. What are the reported effects of the
strategies used in studies of
interventions to reduce disparities?
f. What are the reported unintended
consequences, harms, or adverse events
of the strategies used in studies of
interventions to reduce disparities?
g. Within race/ethnic groups, what
other intersectional influences (e.g.,
disability status, income status, sexual
identity and orientation, income,
geographic location, language etc) have
been targeted in studies of interventions
to reduce disparities?
h. What study designs have been
used?
i. What information is available on the
applicability and sustainability of
interventions?
j. What gaps exist in the current
research?
Questions for Experts/Researchers/
Advocacy Organizations/Provider
Organizations/Practicing Clinicians
a. What patient-level and health
professional-level efforts has your
organization, institution or practice
employed to reduce racial and ethnic
disparities in chronic conditions
healthcare and health outcomes?
i. Can you describe the rationale for
this effort, for instance what problem
was driving the decision to implement
the solution/intervention? Was the
intervention successful or not? What
were the challenges? How are you
measuring disparities and evaluating
interventions and outcomes as a result
of them?
b. Do you engage community
partnerships in your approach? If so,
how?
i. Are there similar approaches you
are aware of? Which other practice or
provider is trying similar approaches?
c. Are there concepts, or conceptual
frameworks, that are important in
understanding the patient-level and
health professional-level interventions
to reduce racial/ethnic disparities in
health and healthcare?
d. How do you identify special groups
that are not being served, and how do
you prioritize which groups for
designing interventions for? What are
the challenges?
e. How does your organization tailor
the patient-level and health
professional-level approach to reach
racial and ethnic minorities that may be
E:\FR\FM\12DEN1.SGM
12DEN1
76044
Federal Register / Vol. 87, No. 237 / Monday, December 12, 2022 / Notices
marginalized due to other factors (such
as disability status, income status,
sexual identity and orientation, income,
geographic location, language etc)?
Which of these factors have been most
challenging to address and why? Which
factors are relatively easy to address and
implement?
f. What concerns do you have about
the sustainability of patient-level and
health professional-level strategies/
interventions intended to address racial
and ethnic disparities in health and
healthcare?
g. Gray literature: What are prominent
sources where you obtain information
on patient-level and health professionallevel strategies/interventions? Who has
conducted such interventions?
h. What information and resource
does your organization or institution
need to be more effective in
incorporating patient-level and health
professional-level interventions in
reducing racial and ethnic disparities in
health and healthcare?
i. What are current gaps in the
research and what future research is
needed most?
Questions for Patient Advocates,
Families, Caregivers
a. Data clearly shows that racial and
ethnic minority groups often have worse
health and care for chronic diseases.
Why do you think this is the case?
b. Have you or your loved ones
experienced differences in care
received, are you aware of any health
provider (that is doctor and nurse)
efforts to rectify these differences? What
are the efforts/programs?
c. Have you or your loved ones
participated in (or are you aware of)
such program(s)? Was there any effort to
consider your race and other social
factors (such as your disability status,
income status, sexual identity and
orientation, income, geographic
location, language etc) in the
program(s)?
d. Are you aware of community
collaboration efforts of such programs to
rectify the differences in your health
and care? Should community
organizations be involved in these
efforts? How? What are some barriers
that community organizations face in
collaborating with healthcare
organizations?
e. What types of efforts do you think
your health provider (that is doctor or
nurse) could do that might reduce these
differences in the care received by racial
and ethnic minority groups? What
would be needed for them to work? Are
there things you could do as well? Give
example(s).
f. Are there sources where you obtain
information about these efforts?
PICOTS (POPULATIONS, INTERVENTIONS, COMPARATORS, OUTCOMES, AND SETTINGS)
Element
Included
Population ..........
• Racial and ethnic minority adults with common chronic
conditions.
• Health Professionals providing healthcare for racial and
ethnic minority adults with common chronic conditions.
• Strategies specifically targeted to reduce racial and ethnic
minority health and healthcare disparities at patient-level
and health professional-level, with relevant links to
healthcare system.
• Strategies with community involvement with relevant links
to healthcare system.
• Standard care.
• Alternative strategy/intervention.
• Health-related outcome measures (e.g., disease specific
morbidity and mortality, BP control, Hba1c levels).
• Process of care measures (e.g., referrals to mental
healthcare, cultural relevance).
• Care utilization outcome measures (e.g., rates of readmission for long-term complications of diabetes).
• Financial/re-imbursement measures.
• Harms (e.g., unintended negative consequences, including
misallocation of effort, decreased patient satisfaction, etc.).
• Stigma other related experience of discrimination.
Any.
Any.
Randomized controlled trial, non-randomized controlled trial,
nonrandomized study designs, mixed methods.
Interventions .......
Comparators ......
Outcomes ...........
Timing ................
Settings ..............
Study design ......
Dated: December 7, 2022.
Marquita Cullom,
Associate Director.
[FR Doc. 2022–26930 Filed 12–9–22; 8:45 am]
Excluded
• Pediatric populations.
• Non-U.S populations.
• Exploratory sub-group analysis where the aims of the studies are not relevant to racial/ethnic health disparities.
• Public health/policy-based interventions without relevant
links to healthcare system.
• Interventions aimed at medical school students, pharmacy
students, and other allied health students.
Stand-alone qualitative studies, systematic reviews, narrative
reviews, case reports, case series protocols, conference
abstracts.
ACTION:
Agency for Healthcare Research and
Quality
SUMMARY:
lotter on DSK11XQN23PROD with NOTICES1
BILLING CODE 4160–90–P
Supplemental Evidence and Data
Request on Healthcare System Level
Strategies To Address Racial/Ethnic
and Related Disparities in Health and
Healthcare
Agency for Healthcare Research
and Quality (AHRQ), HHS.
AGENCY:
VerDate Sep<11>2014
18:08 Dec 09, 2022
Jkt 259001
Request for supplemental
evidence and data submissions.
DEPARTMENT OF HEALTH AND
HUMAN SERVICES
PO 00000
Frm 00021
Fmt 4703
Sfmt 4703
The Agency for Healthcare
Research and Quality (AHRQ) is seeking
scientific information submissions from
the public. Scientific information is
being solicited to inform our review on
Healthcare System Level Strategies to
Address Racial/Ethnic and Related
Disparities in Health and Healthcare,
which is currently being conducted by
the AHRQ’s Evidence-based Practice
Centers (EPC) Program. Access to
E:\FR\FM\12DEN1.SGM
12DEN1
Agencies
[Federal Register Volume 87, Number 237 (Monday, December 12, 2022)]
[Notices]
[Pages 76042-76044]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 2022-26930]
=======================================================================
-----------------------------------------------------------------------
DEPARTMENT OF HEALTH AND HUMAN SERVICES
Agency for Healthcare Research and Quality
Supplemental Evidence and Data Request on Patient and Provider
Level Strategies To Address Racial/Ethnic Disparities in Health and
Healthcare
AGENCY: Agency for Healthcare Research and Quality (AHRQ), HHS.
ACTION: Request for supplemental evidence and data submissions.
-----------------------------------------------------------------------
SUMMARY: The Agency for Healthcare Research and Quality (AHRQ) is
seeking scientific information submissions from
[[Page 76043]]
the public. Scientific information is being solicited to inform our
review on Patient and Provider Level Strategies to Address Racial/
Ethnic Disparities in Health and Healthcare, which is currently being
conducted by the AHRQ's Evidence-based Practice Centers (EPC) Program.
Access to published and unpublished pertinent scientific information
will improve the quality of this review.
DATES: Submission Deadline on or before January 11, 2023.
ADDRESSES:
Email submissions: [email protected].
Print submissions:
Mailing Address: Center for Evidence and Practice Improvement,
Agency for Healthcare Research and Quality, ATTN: EPC SEADs
Coordinator, 5600 Fishers Lane, Mail Stop 06E53A, Rockville, MD 20857.
Shipping Address (FedEx, UPS, etc.): Center for Evidence and
Practice Improvement, Agency for Healthcare Research and Quality, ATTN:
EPC SEADs Coordinator, 5600 Fishers Lane, Mail Stop 06E77D, Rockville,
MD 20857.
FOR FURTHER INFORMATION CONTACT: Jenae Benns, Telephone: 301-427-1496
or Email: [email protected].
SUPPLEMENTARY INFORMATION: The Agency for Healthcare Research and
Quality has commissioned the Evidence-based Practice Center (EPC)
Program to complete a review of the evidence for Patient and Provider
Level Strategies to Address Racial/Ethnic Disparities in Health and
Healthcare. AHRQ is conducting this systematic review pursuant to
Section 902 of the Public Health Service Act, 42 U.S.C. 299a.
The EPC Program is dedicated to identifying as many studies as
possible that are relevant to the questions for each of its reviews. In
order to do so, we are supplementing the usual manual and electronic
database searches of the literature by requesting information from the
public (e.g., details of studies conducted). We are looking for studies
that report on Patient and Provider Level Strategies to Address Racial/
Ethnic Disparities in Health and Healthcare, including those that
describe adverse events. The entire research protocol is available
online at: https://effectivehealthcare.ahrq.gov/.
This is to notify the public that the EPC Program would find the
following information on Patient and Provider Level Strategies to
Address Racial/Ethnic Disparities in Health and Healthcare helpful:
[ssquf] A list of completed studies that your organization has
sponsored for this indication. In the list, please indicate whether
results are available on ClinicalTrials.gov along with the
ClinicalTrials.gov trial number.
[ssquf] For completed studies that do not have results on
ClinicalTrials.gov, a summary, including the following elements: study
number, study period, design, methodology, indication and diagnosis,
proper use instructions, inclusion and exclusion criteria, primary and
secondary outcomes, baseline characteristics, number of patients
screened/eligible/enrolled/lost to follow-up/withdrawn/analyzed,
effectiveness/efficacy, and safety results.
[ssquf] A list of ongoing studies that your organization has
sponsored for this indication. In the list, please provide the
ClinicalTrials.gov trial number or, if the trial is not registered, the
protocol for the study including a study number, the study period,
design, methodology, indication and diagnosis, proper use instructions,
inclusion and exclusion criteria, and primary and secondary outcomes.
[ssquf] Description of whether the above studies constitute ALL
Phase II and above clinical trials sponsored by your organization for
this indication and an index outlining the relevant information in each
submitted file.
Your contribution is very beneficial to the Program. Materials
submitted must be publicly available or able to be made public.
Materials that are considered confidential, marketing materials, study
types not included in the review, or information on indications not
included in the review cannot be used by the EPC Program. This is a
voluntary request for information, and all costs for complying with
this request must be borne by the submitter.
The draft of this review will be posted on AHRQ's EPC Program
website and available for public comment for a period of 4 weeks. If
you would like to be notified when the draft is posted, please sign up
for the email list at: https://www.effectivehealthcare.ahrq.gov/email-updates.
The technical brief will answer the following questions. This
information is provided as background. AHRQ is not requesting that the
public provide answers to these questions.
Guiding Questions
What is the current evidence for strategies targeted at patients
and provider/health professionals and designed to reduce racial and
ethnic disparities and improve health outcomes in the treatment of
common chronic conditions in adults?
a. What interventions have been studied?
b. What racial and ethnic populations have been studied?
c. What common (multiple and single) chronic conditions have been
studied?
d. What primary outcomes have been studied?
e. What are the reported effects of the strategies used in studies
of interventions to reduce disparities?
f. What are the reported unintended consequences, harms, or adverse
events of the strategies used in studies of interventions to reduce
disparities?
g. Within race/ethnic groups, what other intersectional influences
(e.g., disability status, income status, sexual identity and
orientation, income, geographic location, language etc) have been
targeted in studies of interventions to reduce disparities?
h. What study designs have been used?
i. What information is available on the applicability and
sustainability of interventions?
j. What gaps exist in the current research?
Questions for Experts/Researchers/Advocacy Organizations/Provider
Organizations/Practicing Clinicians
a. What patient-level and health professional-level efforts has
your organization, institution or practice employed to reduce racial
and ethnic disparities in chronic conditions healthcare and health
outcomes?
i. Can you describe the rationale for this effort, for instance
what problem was driving the decision to implement the solution/
intervention? Was the intervention successful or not? What were the
challenges? How are you measuring disparities and evaluating
interventions and outcomes as a result of them?
b. Do you engage community partnerships in your approach? If so,
how?
i. Are there similar approaches you are aware of? Which other
practice or provider is trying similar approaches?
c. Are there concepts, or conceptual frameworks, that are important
in understanding the patient-level and health professional-level
interventions to reduce racial/ethnic disparities in health and
healthcare?
d. How do you identify special groups that are not being served,
and how do you prioritize which groups for designing interventions for?
What are the challenges?
e. How does your organization tailor the patient-level and health
professional-level approach to reach racial and ethnic minorities that
may be
[[Page 76044]]
marginalized due to other factors (such as disability status, income
status, sexual identity and orientation, income, geographic location,
language etc)? Which of these factors have been most challenging to
address and why? Which factors are relatively easy to address and
implement?
f. What concerns do you have about the sustainability of patient-
level and health professional-level strategies/interventions intended
to address racial and ethnic disparities in health and healthcare?
g. Gray literature: What are prominent sources where you obtain
information on patient-level and health professional-level strategies/
interventions? Who has conducted such interventions?
h. What information and resource does your organization or
institution need to be more effective in incorporating patient-level
and health professional-level interventions in reducing racial and
ethnic disparities in health and healthcare?
i. What are current gaps in the research and what future research
is needed most?
Questions for Patient Advocates, Families, Caregivers
a. Data clearly shows that racial and ethnic minority groups often
have worse health and care for chronic diseases. Why do you think this
is the case?
b. Have you or your loved ones experienced differences in care
received, are you aware of any health provider (that is doctor and
nurse) efforts to rectify these differences? What are the efforts/
programs?
c. Have you or your loved ones participated in (or are you aware
of) such program(s)? Was there any effort to consider your race and
other social factors (such as your disability status, income status,
sexual identity and orientation, income, geographic location, language
etc) in the program(s)?
d. Are you aware of community collaboration efforts of such
programs to rectify the differences in your health and care? Should
community organizations be involved in these efforts? How? What are
some barriers that community organizations face in collaborating with
healthcare organizations?
e. What types of efforts do you think your health provider (that is
doctor or nurse) could do that might reduce these differences in the
care received by racial and ethnic minority groups? What would be
needed for them to work? Are there things you could do as well? Give
example(s).
f. Are there sources where you obtain information about these
efforts?
PICOTS (Populations, Interventions, Comparators, Outcomes, and Settings)
------------------------------------------------------------------------
Element Included Excluded
------------------------------------------------------------------------
Population............. Racial and Pediatric
ethnic minority adults populations.
with common chronic Non-U.S
conditions. populations.
Health
Professionals
providing healthcare
for racial and ethnic
minority adults with
common chronic
conditions.
Interventions.......... Strategies Exploratory
specifically targeted sub-group analysis
to reduce racial and where the aims of the
ethnic minority health studies are not
and healthcare relevant to racial/
disparities at patient- ethnic health
level and health disparities.
professional-level, Public health/
with relevant links to policy-based
healthcare system. interventions without
Strategies relevant links to
with community healthcare system.
involvement with Interventions
relevant links to aimed at medical
healthcare system. school students,
pharmacy students,
and other allied
health students.
Comparators............ Standard care.
Alternative
strategy/intervention..
Outcomes............... Health-related
outcome measures
(e.g., disease
specific morbidity and
mortality, BP control,
Hba1c levels).
Process of
care measures (e.g.,
referrals to mental
healthcare, cultural
relevance).
Care
utilization outcome
measures (e.g., rates
of readmission for
long-term
complications of
diabetes).
Financial/re-
imbursement measures..
Harms (e.g.,
unintended negative
consequences,
including
misallocation of
effort, decreased
patient satisfaction,
etc.).
Stigma other
related experience of
discrimination..
Timing................. Any.
Settings............... Any.
Study design........... Randomized controlled Stand-alone
trial, non-randomized qualitative studies,
controlled trial, systematic reviews,
nonrandomized study narrative reviews,
designs, mixed methods. case reports, case
series protocols,
conference abstracts.
------------------------------------------------------------------------
Dated: December 7, 2022.
Marquita Cullom,
Associate Director.
[FR Doc. 2022-26930 Filed 12-9-22; 8:45 am]
BILLING CODE 4160-90-P