National Sickle Cell Awareness Month, 2022, 54307-54308 [2022-19302]

Download as PDF Federal Register / Vol. 87, No. 171 / Tuesday, September 6, 2022 / Presidential Documents 54307 Presidential Documents Proclamation 10437 of August 31, 2022 National Sickle Cell Awareness Month, 2022 By the President of the United States of America A Proclamation Sickle cell disease (SCD) presents grave health challenges for an estimated 100,000 Americans. For some, it triggers intermittent episodes of pain, difficulty with vision, and serious fatigue. Other survivors experience this disease more acutely—SCD can cause infections, strokes, and even organ failure. For almost everyone impacted, coping with inherited red blood cell disorders means putting plans on pause, living with excruciating pain, paying for expensive treatments, and hoping for a day when medications and doctor visits no longer interrupt life. During National Sickle Cell Awareness Month, we recognize the perseverance of SCD patients, and we recommit to working with our partners in State and local government, the nonprofit space, and the private sector to develop treatments and cures for this debilitating disease. Like many rare diseases, SCD affects our population unevenly. Black and Brown Americans are disproportionately affected. About 1 in 13 Black children tests positive for the sickle cell trait, and about 1 in 365 Black Americans develops the disease over the course of their lifetime. Due to persistent systemic inequities in our health care system, these same patients are also often the last to get help. Few specialty clinics are available for SCD treatments, information about detecting this disease is not always widely shared, and pain management can be a challenge due to the intermittent nature of sickle cell crises and persistent racial disparities in pain assessment and treatment. Moreover, there exists no universally effective cure; bone marrow and stem cell transplants have allowed some people to overcome SCD, but low donor availability and treatment-related complications render these procedures unviable for many patients. jspears on DSK121TN23PROD with PREZ DOCS 6 Medical professionals and scientists in my Administration and across our Nation are working to put an end to SCD. The Food and Drug Administration recently approved new drug therapies to help patients manage their pain. Through its ‘‘Cure Sickle Cell Initiative,’’ the National Institutes of Health (NIH) is striving to develop safe and effective genetic therapies and exploring applications for machine learning to predict organ function decline in SCD patients. Additionally, the NIH has invited researchers to apply for funding to support large-scale clinical trials on treating SCD pain symptoms. We are closer than ever to finding a cure today for all patients, and I am optimistic about our progress. Even so, it is still important for Americans to understand the signs of this disease, the risks of inheriting this condition, as well as the various resources available to those who test positive. Most people with the sickle cell trait do not exhibit symptoms, and many are unaware of their potential to carry on this gene. Experts agree that it is important to get tested, especially if you have family members who have been diagnosed with SCD. There are also helpful resources online to learn more about this disease, like the Centers for Disease Control and Prevention’s sickle cell information page at cdc.gov/ncbddd/sicklecell/. As we continue our quest to cure sickle cell disease, let us celebrate the strides our health experts have made in understanding and treating this VerDate Sep<11>2014 15:48 Sep 02, 2022 Jkt 256001 PO 00000 Frm 00001 Fmt 4790 Sfmt 4790 E:\FR\FM\06SED5.SGM 06SED5 54308 Federal Register / Vol. 87, No. 171 / Tuesday, September 6, 2022 / Presidential Documents condition. Let us offer strength to those Americans fighting its effects today and unite in our mission to enhance the quality of life for those diagnosed with SCD. NOW, THEREFORE, I, JOSEPH R. BIDEN JR., President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim September 2022 as National Sickle Cell Awareness Month. I call upon the people of the United States to learn more about the progress we are making to reduce the burden of this disease on our fellow Americans. IN WITNESS WHEREOF, I have hereunto set my hand this thirty-first day of August, in the year of our Lord two thousand twenty-two, and of the Independence of the United States of America the two hundred and fortyseventh. [FR Doc. 2022–19302 Filed 9–2–22; 8:45 am] VerDate Sep<11>2014 15:48 Sep 02, 2022 Jkt 256001 PO 00000 Frm 00002 Fmt 4790 Sfmt 4790 E:\FR\FM\06SED5.SGM 06SED5 BIDEN.EPS</GPH> jspears on DSK121TN23PROD with PREZ DOCS 6 Billing code 3395–F2–P

Agencies

[Federal Register Volume 87, Number 171 (Tuesday, September 6, 2022)]
[Presidential Documents]
[Pages 54307-54308]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 2022-19302]




                        Presidential Documents 



Federal Register / Vol. 87, No. 171 / Tuesday, September 6, 2022 / 
Presidential Documents

[[Page 54307]]


                Proclamation 10437 of August 31, 2022

                
National Sickle Cell Awareness Month, 2022

                By the President of the United States of America

                A Proclamation

                Sickle cell disease (SCD) presents grave health 
                challenges for an estimated 100,000 Americans. For 
                some, it triggers intermittent episodes of pain, 
                difficulty with vision, and serious fatigue. Other 
                survivors experience this disease more acutely--SCD can 
                cause infections, strokes, and even organ failure. For 
                almost everyone impacted, coping with inherited red 
                blood cell disorders means putting plans on pause, 
                living with excruciating pain, paying for expensive 
                treatments, and hoping for a day when medications and 
                doctor visits no longer interrupt life. During National 
                Sickle Cell Awareness Month, we recognize the 
                perseverance of SCD patients, and we recommit to 
                working with our partners in State and local 
                government, the nonprofit space, and the private sector 
                to develop treatments and cures for this debilitating 
                disease.

                Like many rare diseases, SCD affects our population 
                unevenly. Black and Brown Americans are 
                disproportionately affected. About 1 in 13 Black 
                children tests positive for the sickle cell trait, and 
                about 1 in 365 Black Americans develops the disease 
                over the course of their lifetime. Due to persistent 
                systemic inequities in our health care system, these 
                same patients are also often the last to get help. Few 
                specialty clinics are available for SCD treatments, 
                information about detecting this disease is not always 
                widely shared, and pain management can be a challenge 
                due to the intermittent nature of sickle cell crises 
                and persistent racial disparities in pain assessment 
                and treatment. Moreover, there exists no universally 
                effective cure; bone marrow and stem cell transplants 
                have allowed some people to overcome SCD, but low donor 
                availability and treatment-related complications render 
                these procedures unviable for many patients.

                Medical professionals and scientists in my 
                Administration and across our Nation are working to put 
                an end to SCD. The Food and Drug Administration 
                recently approved new drug therapies to help patients 
                manage their pain. Through its ``Cure Sickle Cell 
                Initiative,'' the National Institutes of Health (NIH) 
                is striving to develop safe and effective genetic 
                therapies and exploring applications for machine 
                learning to predict organ function decline in SCD 
                patients. Additionally, the NIH has invited researchers 
                to apply for funding to support large-scale clinical 
                trials on treating SCD pain symptoms. We are closer 
                than ever to finding a cure today for all patients, and 
                I am optimistic about our progress.

                Even so, it is still important for Americans to 
                understand the signs of this disease, the risks of 
                inheriting this condition, as well as the various 
                resources available to those who test positive. Most 
                people with the sickle cell trait do not exhibit 
                symptoms, and many are unaware of their potential to 
                carry on this gene. Experts agree that it is important 
                to get tested, especially if you have family members 
                who have been diagnosed with SCD. There are also 
                helpful resources online to learn more about this 
                disease, like the Centers for Disease Control and 
                Prevention's sickle cell information page at cdc.gov/ncbddd/sicklecell/.

                As we continue our quest to cure sickle cell disease, 
                let us celebrate the strides our health experts have 
                made in understanding and treating this

[[Page 54308]]

                condition. Let us offer strength to those Americans 
                fighting its effects today and unite in our mission to 
                enhance the quality of life for those diagnosed with 
                SCD.

                NOW, THEREFORE, I, JOSEPH R. BIDEN JR., President of 
                the United States of America, by virtue of the 
                authority vested in me by the Constitution and the laws 
                of the United States, do hereby proclaim September 2022 
                as National Sickle Cell Awareness Month. I call upon 
                the people of the United States to learn more about the 
                progress we are making to reduce the burden of this 
                disease on our fellow Americans.

                IN WITNESS WHEREOF, I have hereunto set my hand this 
                thirty-first day of August, in the year of our Lord two 
                thousand twenty-two, and of the Independence of the 
                United States of America the two hundred and forty-
                seventh.
                
                
                    (Presidential Sig.)

[FR Doc. 2022-19302
Filed 9-2-22; 8:45 am]
Billing code 3395-F2-P