Agency Information Collection Activities: Proposed Collection: Public Comment Request Information Collection Request Title: Be The Match® Patient Support Center Survey; OMB No. 0906-0004-Revision, 26483-26484 [2020-09417]

Download as PDF 26483 Federal Register / Vol. 85, No. 86 / Monday, May 4, 2020 / Notices through the Runaway and Homeless Youth (RHY) Program funding. RHY data collection is integrated with the U.S. Department of Housing and Urban Development’s (HUD) Homeless Management Information System (HMIS). DATES: Comments due within 60 days of publication. In compliance with the requirements of Section 3506(c)(2)(A) of the Paperwork Reduction Act of 1995, the Administration for Children and Families (ACF) is soliciting public comment on the specific aspects of the information collection described above. ADDRESSES: Copies of the proposed collection of information can be obtained and comments may be forwarded by emailing infocollection@ acf.hhs.gov. Alternatively, copies can also be obtained by writing to the Administration for Children and Families, Office of Planning, Research, and Evaluation (OPRE), 330 C Street SW, Washington, DC 20201, Attn: ACF Reports Clearance Officer. All requests, emailed or written, should be identified by the title of the information collection. SUPPLEMENTARY INFORMATION: Description: The RHY Program has a requirement to collect information from all youth who receive shelter and supportive services with RHY funding. In April 2015, ACYF, through a formal Memorandum of Understanding, integrated the RHY data collection with HUD’s HMIS and HUD’s data standards along with other federal partners. HUD’s data standards has its own OMB clearance, but ACYF is requesting approval for the RHY data collection efforts as HUD’s will no longer include all federal partners. The data collection instrument includes universal data elements, which are collected by all federal partners and program specific elements, which are tailored to each program using HUD’s HMIS. Respondents: Youth who receive emergency and longer-term shelter and supportive services under RHY funding. ANNUAL BURDEN ESTIMATES Total number of respondents Instrument RHY–HMIS: .......................................................................... Basic Center Program (Intake) ............................................ RHY–HMIS: .......................................................................... Basic Center Program (Exit) ................................................ RHY–HMIS: Transitional Living Program (including Maternity Group Home program and TLP Demonstration Programs; Intake) .................................................................. RHY–HMIS: Transitional Living Program (including Maternity Group Home program and TLP Demonstration Programs; Exit) ...................................................................... RHY–HMIS: .......................................................................... Street Outreach Program (Contact) ..................................... RHY–HMIS: .......................................................................... Street Outreach Program (Engagement) ............................. jbell on DSKJLSW7X2PROD with NOTICES Estimated Total Annual Burden Hours: 54,170. Comments: The Department specifically requests comments on (a) whether the proposed collection of information is necessary for the proper performance of the functions of the agency, including whether the information shall have practical utility; (b) the accuracy of the agency’s estimate of the burden of the proposed collection of information; (c) the quality, utility, and clarity of the information to be collected; and (d) ways to minimize the burden of the collection of information on respondents, including through the use of automated collection techniques or other forms of information technology. Consideration will be given to comments and suggestions submitted within 60 days of this publication. Authority: Reconnecting Homeless Youth Act of 2008 (P.L. 110–378) through FY 2013 Total number of responses per respondent Jkt 250001 0.38 46,740 15,580 123,000 1 0.33 40,590 13,530 18,000 1 0.38 6,840 2,280 18,000 1 0.33 5,940 1,980 108,000 1 0.5 54,000 18,000 30,000 1 0.28 8,400 2,800 and more recently reauthorized by the Juvenile Justice Reform Act through FY 2019. Mary B. Jones, ACF/OPRE Certifying Officer. [FR Doc. 2020–09458 Filed 5–1–20; 8:45 am] BILLING CODE 4182–04–P of 1995, HRSA announces plans to submit an Information Collection Request (ICR), described below, to the Office of Management and Budget (OMB). Prior to submitting the ICR to OMB, HRSA seeks comments from the public regarding the burden estimate, below, or any other aspect of the ICR. DEPARTMENT OF HEALTH AND HUMAN SERVICES DATES: Health Resources and Services Administration ADDRESSES: Agency Information Collection Activities: Proposed Collection: Public Comment Request Information Collection Request Title: Be The Match® Patient Support Center Survey; OMB No. 0906–0004—Revision Health Resources and Services Administration (HRSA), Department of Health and Human Services. ACTION: Notice. AGENCY: PO 00000 Frm 00044 Annual burden hours 1 In compliance with the requirement for opportunity for public comment on proposed data collection projects of the Paperwork Reduction Act 19:03 May 01, 2020 Total burden hours 123,000 SUMMARY: VerDate Sep<11>2014 Average burden hours per response Fmt 4703 Sfmt 4703 Comments on this ICR should be received no later than July 6, 2020. Submit your comments to paperwork@hrsa.gov. To request more information on the proposed project or to obtain a copy of the data collection plans and draft instruments, email paperwork@hrsa.gov or call Lisa Wright-Solomon, the HRSA Information Collection Clearance Officer at (301) 443–1984. FOR FURTHER INFORMATION CONTACT: When submitting comments or requesting information, please include the ICR title for reference. Information Collection Request Title: Be The Match® Patient Support Center Survey; OMB No. 0906–0004—Revision. SUPPLEMENTARY INFORMATION: E:\FR\FM\04MYN1.SGM 04MYN1 26484 Federal Register / Vol. 85, No. 86 / Monday, May 4, 2020 / Notices Abstract: The C.W. Bill Young Cell Transplantation Program (Program) was established by the Stem Cell Therapeutic and Research Act of 2005 (Pub. L. 109–129) and was reauthorized in 2015 (Pub. L. 114–104). The Program’s Office of Patient Advocacy is operated by the National Marrow Donor Program® (NMDP)/Be The Match®). NMDP/Be The Match® has specific requirements under its HRSA contract to conduct surveys to assess patient satisfaction. As such, NMDP/Be The Match® will elicit feedback from marrow and cord blood transplant patients, caregivers, and family members who had contact with the Be The Match® Patient Support Center for navigation services, educational information, and support. The survey also includes demographic questions to determine the representativeness of findings. The objectives of the survey are to: (1) Determine the level of satisfaction with existing services of the Patient Support Center and (2) determine areas for improvement as well as opportunities for the development of new programs and services. Need and Proposed Use of the Information: Barriers restricting access to transplant-related care and educational information are multifactorial. Feedback from participants is essential to understand the changing needs for services, and information, as well as to demonstrate the effectiveness of existing services. The primary use for information gathered through the survey is to determine the helpfulness of participants’ initial contact with the Be The Match® Blood and Marrow Transplant (BMT) Navigators and to identify areas for improvement in the delivery of services. The BMT Navigators are Certified Oncology Patients or Nurse Navigators, who respond to requests for information and support. Stakeholders (e.g., participants, program managers, Be The Match® leadership, and HRSA) use this evaluation data to share patients’ experiences as well as make program (by program managers and leadership) and resource allocation (by HRSA) decisions. Online and paper-based surveys will be administered to all participants (patients, caregivers, and family members) who have contact with the Be The Match® Patient Support Center. All participants that provided an email address will be invited to complete the survey online. All other participants will be mailed a survey with a pre-paid reply envelope. Survey respondents will be notified via email and cover letter and informed in the survey instructions that participation is voluntary, and responses will be kept confidential. A follow-up notification will be sent within two (2) weeks to nonrespondents. The survey will be available in English and Spanish languages. The survey will measure: (1) Overall satisfaction; (2) if the contact helped the participant feel more confident in coping with the area of concern regarding the call; (3) if the contact helped the participant feel more hopeful; (4) if the contact helped the participant feel less alone; (5) increased awareness of available resources; (6) if the contact helped the participant feel more informed about treatment options; (7) if participant’s questions were answered through contact with the Be The Match® Patient Support Center, and (8) types of challenges faced by participant. The survey data will be analyzed quarterly and rolled up for an annualized analysis. The results of the analyses will be shared with program managers and HRSA. Feedback indicating a need for improvement will be reviewed by program managers biannually, and implementation of results, program changes, or additions will be documented. Proposed changes to the survey instrument include minor changes to selected questions and a reduction in the overall number of questions. The estimated amount of respondents will increase as it will be easier for them to complete the survey online. As a result of fewer questions along with the addition of an online platform, the respondent’s burden will decrease. Likely Respondents: Respondents will include all patients, caregivers, and family members who have contact with Be The Match® Patient Services Coordinators via phone or email for transplant navigation services and support. The decision to survey all participants was made based on historical evidence of patients’ unavailability due to frequent transitions in health status. Burden Statement: Burden in this context means the time expended by persons to generate, maintain, retain, disclose, or provide the information requested. This includes the time needed to review instructions; to develop, acquire, install and utilize technology and systems for the purpose of collecting, validating and verifying information, processing and maintaining information as well as disclosing and providing information; to train personnel and to be able to respond to a collection of information; to search data sources; to complete and review the collection of information; and to transmit or otherwise disclose the information. The total annual burden hours estimated for this ICR are summarized in the table below. TOTAL ESTIMATED ANNUALIZED BURDEN HOURS Number of respondents Form name Be The Match® Patient Support Center Survey .................. Number of responses per respondent 4,000 Total responses 1 4,000 Average burden per respondent (in hours) * 0.17 Total burden hours ** 680 jbell on DSKJLSW7X2PROD with NOTICES * Decreased from .25 burden per respondent. ** Increased from 105 hours but due to an almost tenfold increase in number of respondents HRSA specifically requests comments on (1) the necessity and utility of the proposed information collection for the proper performance of the agency’s functions, (2) the accuracy of the estimated burden, (3) ways to enhance the quality, utility, and clarity of the information to be collected, and (4) the use of automated collection techniques or other forms of information technology to minimize the information collection burden. Maria G. Button, Director, Executive Secretariat. [FR Doc. 2020–09417 Filed 5–1–20; 8:45 am] BILLING CODE 4165–15–P VerDate Sep<11>2014 19:03 May 01, 2020 Jkt 250001 PO 00000 Frm 00045 Fmt 4703 Sfmt 9990 E:\FR\FM\04MYN1.SGM 04MYN1

Agencies

[Federal Register Volume 85, Number 86 (Monday, May 4, 2020)]
[Notices]
[Pages 26483-26484]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 2020-09417]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Agency Information Collection Activities: Proposed Collection: 
Public Comment Request Information Collection Request Title: Be The 
Match[supreg] Patient Support Center Survey; OMB No. 0906-0004--
Revision

AGENCY: Health Resources and Services Administration (HRSA), Department 
of Health and Human Services.

ACTION: Notice.

-----------------------------------------------------------------------

SUMMARY: In compliance with the requirement for opportunity for public 
comment on proposed data collection projects of the Paperwork Reduction 
Act of 1995, HRSA announces plans to submit an Information Collection 
Request (ICR), described below, to the Office of Management and Budget 
(OMB). Prior to submitting the ICR to OMB, HRSA seeks comments from the 
public regarding the burden estimate, below, or any other aspect of the 
ICR.

DATES: Comments on this ICR should be received no later than July 6, 
2020.

ADDRESSES: Submit your comments to [email protected].

FOR FURTHER INFORMATION CONTACT: To request more information on the 
proposed project or to obtain a copy of the data collection plans and 
draft instruments, email [email protected] or call Lisa Wright-
Solomon, the HRSA Information Collection Clearance Officer at (301) 
443-1984.

SUPPLEMENTARY INFORMATION: When submitting comments or requesting 
information, please include the ICR title for reference.
    Information Collection Request Title: Be The Match[supreg] Patient 
Support Center Survey; OMB No. 0906-0004--Revision.

[[Page 26484]]

    Abstract: The C.W. Bill Young Cell Transplantation Program 
(Program) was established by the Stem Cell Therapeutic and Research Act 
of 2005 (Pub. L. 109-129) and was reauthorized in 2015 (Pub. L. 114-
104). The Program's Office of Patient Advocacy is operated by the 
National Marrow Donor Program[supreg] (NMDP)/Be The Match[supreg]). 
NMDP/Be The Match[supreg] has specific requirements under its HRSA 
contract to conduct surveys to assess patient satisfaction. As such, 
NMDP/Be The Match[supreg] will elicit feedback from marrow and cord 
blood transplant patients, caregivers, and family members who had 
contact with the Be The Match[supreg] Patient Support Center for 
navigation services, educational information, and support. The survey 
also includes demographic questions to determine the representativeness 
of findings. The objectives of the survey are to: (1) Determine the 
level of satisfaction with existing services of the Patient Support 
Center and (2) determine areas for improvement as well as opportunities 
for the development of new programs and services.
    Need and Proposed Use of the Information: Barriers restricting 
access to transplant-related care and educational information are 
multi-factorial. Feedback from participants is essential to understand 
the changing needs for services, and information, as well as to 
demonstrate the effectiveness of existing services. The primary use for 
information gathered through the survey is to determine the helpfulness 
of participants' initial contact with the Be The Match[supreg] Blood 
and Marrow Transplant (BMT) Navigators and to identify areas for 
improvement in the delivery of services. The BMT Navigators are 
Certified Oncology Patients or Nurse Navigators, who respond to 
requests for information and support. Stakeholders (e.g., participants, 
program managers, Be The Match[supreg] leadership, and HRSA) use this 
evaluation data to share patients' experiences as well as make program 
(by program managers and leadership) and resource allocation (by HRSA) 
decisions.
    Online and paper-based surveys will be administered to all 
participants (patients, caregivers, and family members) who have 
contact with the Be The Match[supreg] Patient Support Center. All 
participants that provided an email address will be invited to complete 
the survey online. All other participants will be mailed a survey with 
a pre-paid reply envelope. Survey respondents will be notified via 
email and cover letter and informed in the survey instructions that 
participation is voluntary, and responses will be kept confidential. A 
follow-up notification will be sent within two (2) weeks to non-
respondents. The survey will be available in English and Spanish 
languages.
    The survey will measure: (1) Overall satisfaction; (2) if the 
contact helped the participant feel more confident in coping with the 
area of concern regarding the call; (3) if the contact helped the 
participant feel more hopeful; (4) if the contact helped the 
participant feel less alone; (5) increased awareness of available 
resources; (6) if the contact helped the participant feel more informed 
about treatment options; (7) if participant's questions were answered 
through contact with the Be The Match[supreg] Patient Support Center, 
and (8) types of challenges faced by participant. The survey data will 
be analyzed quarterly and rolled up for an annualized analysis. The 
results of the analyses will be shared with program managers and HRSA. 
Feedback indicating a need for improvement will be reviewed by program 
managers biannually, and implementation of results, program changes, or 
additions will be documented.
    Proposed changes to the survey instrument include minor changes to 
selected questions and a reduction in the overall number of questions. 
The estimated amount of respondents will increase as it will be easier 
for them to complete the survey online. As a result of fewer questions 
along with the addition of an online platform, the respondent's burden 
will decrease.
    Likely Respondents: Respondents will include all patients, 
caregivers, and family members who have contact with Be The 
Match[supreg] Patient Services Coordinators via phone or email for 
transplant navigation services and support. The decision to survey all 
participants was made based on historical evidence of patients' 
unavailability due to frequent transitions in health status.
    Burden Statement: Burden in this context means the time expended by 
persons to generate, maintain, retain, disclose, or provide the 
information requested. This includes the time needed to review 
instructions; to develop, acquire, install and utilize technology and 
systems for the purpose of collecting, validating and verifying 
information, processing and maintaining information as well as 
disclosing and providing information; to train personnel and to be able 
to respond to a collection of information; to search data sources; to 
complete and review the collection of information; and to transmit or 
otherwise disclose the information. The total annual burden hours 
estimated for this ICR are summarized in the table below.

                                     Total Estimated Annualized Burden Hours
----------------------------------------------------------------------------------------------------------------
                                                     Number of                    Average burden
            Form name                Number of     responses per       Total      per respondent   Total burden
                                    respondents     respondent       responses      (in hours)         hours
----------------------------------------------------------------------------------------------------------------
Be The Match[supreg] Patient               4,000               1           4,000          * 0.17          ** 680
 Support Center Survey..........
----------------------------------------------------------------------------------------------------------------
* Decreased from .25 burden per respondent.
** Increased from 105 hours but due to an almost tenfold increase in number of respondents HRSA specifically
  requests comments on (1) the necessity and utility of the proposed information collection for the proper
  performance of the agency's functions, (2) the accuracy of the estimated burden, (3) ways to enhance the
  quality, utility, and clarity of the information to be collected, and (4) the use of automated collection
  techniques or other forms of information technology to minimize the information collection burden.


Maria G. Button,
Director, Executive Secretariat.
[FR Doc. 2020-09417 Filed 5-1-20; 8:45 am]
BILLING CODE 4165-15-P