National Institute on Deafness and Other Communication Disorders; Notice of Closed Meeting, 4080 [2019-02278]
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Federal Register / Vol. 84, No. 31 / Thursday, February 14, 2019 / Notices
webcast will be provided upon
registration.
FOR FURTHER INFORMATION CONTACT:
Alaina Harris, Maternal and Child
Health Bureau (MCHB), HRSA, 5600
Fishers Lane, Room 18W66, Rockville,
Maryland 20857; 301–443–0721; or
AHarris@hrsa.gov.
SUPPLEMENTARY INFORMATION: ACHDNC
provides advice and recommendations
to the Secretary of HHS (Secretary) on
the development of newborn screening
activities, technologies, policies,
guidelines, and programs for effectively
reducing morbidity and mortality in
newborns and children having, or at risk
for, heritable disorders. ACHDNC’s
recommendations regarding inclusion of
additional conditions for screening,
following adoption by the Secretary, are
evidence-informed preventive health
services provided for in the
comprehensive guidelines supported by
HRSA through the Recommended
Uniform Screening Panel (RUSP)
pursuant to section 2713 of the Public
Health Service Act (42 U.S.C. 300gg–
13). Under this provision, nongrandfathered group health plans and
health insurance issuers offering group
or individual health insurance are
required to provide insurance coverage
without cost-sharing (a co-payment, coinsurance, or deductible) for preventive
services for plan years (i.e., policy years)
beginning on or after the date that is one
year from the Secretary’s adoption of the
condition for screening.
During the April 2019 meeting,
ACHDNC will hear from experts in the
fields of public health, medicine,
heritable disorders, rare disorders, and
newborn screening. Agenda items
include: (1) Assessing state readiness to
implement screening for conditions
added to the RUSP; (2) discussing
newborn screening pilot studies; (3)
reviewing rare disease registries; (4)
reviewing spinal muscular atrophy
(SMA) implementation; and (5)
receiving workgroup updates. Agenda
items are subject to changes as priorities
dictate and the final meeting agenda
will be available on ACHDNC’s website
at https://www.hrsa.gov/advisorycommittees/heritable-disorders/
index.html. Information about the
ACHDNC, a roster of members, as well
as past meeting summaries are also
available on the ACHDNC website.
Members of the public will have the
opportunity to provide comments.
Public participants may submit written
statements in advance of the scheduled
meeting. Oral comments will be
honored in the order they are requested
and may be limited as time allows. To
submit written comments or request
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time for an oral comment at the meeting,
please register online by 12:00 p.m. ET
on April 17, 2019. Visit the ACHDNC
website for information on registration,
https://www.hrsa.gov/advisorycommittees/heritable-disorders/
index.html. Individuals associated with
groups or who plan to provide
comments on similar topics may be
asked to combine their comments and
present them through a single
representative. No audiovisual
presentations are permitted. Written
comments should identify the
individual’s name, address, email,
telephone number, professional or
organization affiliation, background or
area of expertise (e.g., parent, family
member, researcher, clinician, public
health, etc.), and the topic/subject
matter.
Individuals who plan to attend and
need special assistance or another
reasonable accommodation should
notify Alaina Harris at the contact
information listed above, at least 10
business days prior to the meeting.
Since this meeting occurs in a federal
government building, attendees must go
through a security check to enter the
building. Non-U.S. Citizen attendees
must notify HRSA of their planned
attendance at least 20 business days
prior to the meeting in order to facilitate
their entry into the building. All
attendees are required to present
government-issued identification prior
to entry.
Amy P. McNulty,
Acting Director, Division of the Executive
Secretariat.
[FR Doc. 2019–02319 Filed 2–13–19; 8:45 am]
BILLING CODE 4165–15–P
DEPARTMENT OF HEALTH AND
HUMAN SERVICES
National Institutes of Health
National Institute on Deafness and
Other Communication Disorders;
Notice of Closed Meeting
Pursuant to section 10(d) of the
Federal Advisory Committee Act, as
amended, notice is hereby given of a
meeting of the Board of Scientific
Counselors, NIDCD.
The meeting will be closed to the
public as indicated below in accordance
with the provisions set forth in section
552b(c)(6), Title 5 U.S.C., as amended
for the review, discussion, and
evaluation of individual intramural
programs and projects conducted by the
National Institute on Deafness and
Other Communication Disorders,
including consideration of personnel
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qualifications and performance, and the
competence of individual investigators,
the disclosure of which would
constitute a clearly unwarranted
invasion of personal privacy.
Name of Committee: Board of Scientific
Counselors, National Institute on Deafness
and Other Communication Disorders.
Date: March 25, 2019.
Time: 3:00 p.m. to 4:00 p.m.
Agenda: To review and evaluate personal
qualifications and performance, and
competence of individual investigators.
Place: National Institutes of Health, Porter
Neuroscience Research Center, GF–103,
Building 35A Convent Drive, Bethesda, MD
20892 (Telephone Conference Call).
Contact Person: Andrew J. Griffith, Ph.D.,
MD, Director, Division of Intramural
Research, National Institute on Deafness and
Other Communication Disorders, 35A
Convent Drive, GF 103, Rockville, MD 20892,
301–496–1960, griffita@nidcd.nih.gov.
Information is also available on the
Institute’s/Center’s home page: https://
www.nidcd.nih.gov/about/groups/bsc/,
where an agenda and any additional
information for the meeting will be posted
when available.
(Program Nos. 93.173, Biological Research
Related to Deafness and Communicative
Disorders, National Institutes of Health, HHS)
Dated: February 8, 2019.
Sylvia L. Neal,
Program Analyst, Office of Federal Advisory
Committee Policy.
[FR Doc. 2019–02278 Filed 2–13–19; 8:45 am]
BILLING CODE 4140–01–P
DEPARTMENT OF HEALTH AND
HUMAN SERVICES
National Institutes of Health
National Institute on Deafness and
Other Communication Disorders;
Notice of Meetings
Pursuant to section 10(d) of the
Federal Advisory Committee Act, as
amended, notice is hereby given of a
meeting of the Board of Scientific
Counselors, NIDCD.
The meeting will be open to the
public as indicated below, with
attendance limited to space available.
Individuals who plan to attend and
need special assistance, such as sign
language interpretation or other
reasonable accommodations, should
notify the Contact Person listed below
in advance of the meeting.
The meeting will be closed to the
public as indicated below in accordance
with the provisions set forth in section
552b(c)(6), Title 5 U.S.C., as amended
for the review, discussion, and
evaluation of individual intramural
programs and projects conducted by the
National Institute on Deafness and
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[Federal Register Volume 84, Number 31 (Thursday, February 14, 2019)]
[Notices]
[Page 4080]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 2019-02278]
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DEPARTMENT OF HEALTH AND HUMAN SERVICES
National Institutes of Health
National Institute on Deafness and Other Communication Disorders;
Notice of Closed Meeting
Pursuant to section 10(d) of the Federal Advisory Committee Act, as
amended, notice is hereby given of a meeting of the Board of Scientific
Counselors, NIDCD.
The meeting will be closed to the public as indicated below in
accordance with the provisions set forth in section 552b(c)(6), Title 5
U.S.C., as amended for the review, discussion, and evaluation of
individual intramural programs and projects conducted by the National
Institute on Deafness and Other Communication Disorders, including
consideration of personnel qualifications and performance, and the
competence of individual investigators, the disclosure of which would
constitute a clearly unwarranted invasion of personal privacy.
Name of Committee: Board of Scientific Counselors, National
Institute on Deafness and Other Communication Disorders.
Date: March 25, 2019.
Time: 3:00 p.m. to 4:00 p.m.
Agenda: To review and evaluate personal qualifications and
performance, and competence of individual investigators.
Place: National Institutes of Health, Porter Neuroscience
Research Center, GF-103, Building 35A Convent Drive, Bethesda, MD
20892 (Telephone Conference Call).
Contact Person: Andrew J. Griffith, Ph.D., MD, Director,
Division of Intramural Research, National Institute on Deafness and
Other Communication Disorders, 35A Convent Drive, GF 103, Rockville,
MD 20892, 301-496-1960, griffita@nidcd.nih.gov.
Information is also available on the Institute's/Center's home
page: https://www.nidcd.nih.gov/about/groups/bsc/, where an agenda
and any additional information for the meeting will be posted when
available.
(Program Nos. 93.173, Biological Research Related to Deafness and
Communicative Disorders, National Institutes of Health, HHS)
Dated: February 8, 2019.
Sylvia L. Neal,
Program Analyst, Office of Federal Advisory Committee Policy.
[FR Doc. 2019-02278 Filed 2-13-19; 8:45 am]
BILLING CODE 4140-01-P
