Social Security Ruling, SSR 14-1p; Titles II and XVI: Evaluating Claims Involving Chronic Fatigue Syndrome (CFS), 18750-18754 [2014-07465]
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Jill M. Peterson,
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[FR Doc. 2014–07303 Filed 4–2–14; 8:45 am]
BILLING CODE 8025–01–P
SOCIAL SECURITY ADMINISTRATION
[Docket No. SSA–2013–0060]
Social Security Ruling, SSR 14–1p;
Titles II and XVI: Evaluating Claims
Involving Chronic Fatigue Syndrome
(CFS)
Social Security Administration.
Notice of Social Security Ruling
AGENCY:
ACTION:
(SSR).
We are providing notice of
SSR 14–1p. This SSR provides guidance
on how we develop evidence to
establish that a person has a medically
determinable impairment of chronic
fatigue syndrome and how we evaluate
chronic fatigue syndrome in disability
claims and continuing disability
SUMMARY:
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reviews under titles II and XVI of the
Social Security Act.
DATES: Effective Date: April 3, 2014.
FOR FURTHER INFORMATION CONTACT:
Cheryl A. Williams, Office of Medical
Listings Improvement, Social Security
Administration, 6401 Security
Boulevard, Baltimore, Maryland 21235–
6401, (410) 965–1020.
SUPPLEMENTARY INFORMATION: Although
5 U.S.C. 552(a)(1) and (a)(2) do not
require us to publish this SSR, we are
doing so in accordance with 20 CFR
402.35(b)(1).
Through SSRs, we convey to the
public, precedential decisions relating
to the Federal old-age, survivors,
disability, supplemental security
income, and special veterans benefits
programs. We may base SSRs on
determinations or decisions made at all
levels of administrative adjudication,
Federal court decisions, Commissioner’s
decisions, opinions of the Office of the
General Counsel, or other
interpretations of the law and
regulations.
Although SSRs do not have the same
force and effect as statutes or
regulations, they are binding on all
components of the Social Security
Administration. 20 CFR 402.35(b)(1).
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This SSR will remain in effect until
we publish a notice in the Federal
Register that rescinds it, or we publish
a new SSR that replaces or modifies it.
(Catalog of Federal Domestic Assistance,
Programs Nos. 96.001, Social Security—
Disability Insurance; 96.002, Social
Security—Retirement Insurance; 96.004,
Social Security—Survivors Insurance;
96.006—Supplemental Security Income.)
Dated: March 27, 2014.
Carolyn W. Colvin,
Acting Commissioner of Social Security.
POLICY INTERPRETATION RULING
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TITLES II AND XVI: EVALUATING CASES
INVOLVING CHRONIC FATIGUE
SYNDROME (CFS)
This Social Security Ruling (SSR) rescinds
and replaces SSR 99–2p: ‘‘Titles II and XVI:
Evaluating Cases Involving Chronic Fatigue
Syndrome (CFS).’’
PURPOSE: This SSR clarifies our policy on
how we develop evidence to establish that a
person has a medically determinable
impairment (MDI) of CFS and how we
evaluate this impairment in disability claims
and continuing disability reviews under titles
II and XVI the Social Security Act (Act).1
CITATIONS: Sections 216(i), 223(d), 223(f),
1614(a)(3) and 1614(a)(4) of the Social
Security Act, as amended; Regulations No. 4,
subpart P, sections 404.1502, 404.1505,
404.1508–404.1513, 404.1519a, 404.1520,
404.1520a, 404.1521, 404.1523, 404.1526–
404.1529, 404.1545, 404.1560–404.1569a,
404.1593, 404.1594, appendices 1 and 2; and
Regulations No. 16, subpart I, sections
416.902, 416.905, 416.906, 416.908–416.913,
416.919a, 416.920, 416.920a, 416.921,
416.923, 416.924, 416.924a, 416.926,
416.926a, 416.927–416.929, 416.945,
416.960–416–969a, 416.987, 416.993,
416.994, and 416.994a.
INTRODUCTION:
CFS is a systemic disorder consisting of a
complex of symptoms that may vary in
frequency, duration, and severity. In 1994, an
international panel convened by the Centers
for Disease Control and Prevention (CDC)
developed a case definition for CFS that
serves as an identification tool and research
definition.2 In 2003, an expert subcommittee
1 For simplicity, we refer in this SSR only to
initial adult claims for disability benefits under
titles II and XVI of the Act and to the steps of the
sequential evaluation process we use to determine
disability in those claims. 20 CFR 404.1520 and
416.920. The policy interpretations in this SSR
apply to all cases in which we must make
determinations about disability, including claims of
children (that is, people who have not attained age
18) who apply for benefits based on disability under
title XVI of the Act, disability redeterminations for
children who became eligible for Supplemental
Security Income under title XVI as a child and who
were eligible for such benefits for the month before
the month in which they attained age 18, and to
continuing disability reviews of adults and children
under titles II and XVI of the Act. 20 CFR 404.1594,
416.924, 416.987, 416.994, and 416.994a.
2 See Center for Disease Control and Prevention,
‘‘Chronic Fatigue Syndrome (CFS),’’ available at:
https://www.cdc.gov/cfs.
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of Health Canada, the Canadian health
agency, convened a consensus workshop that
developed a clinical case definition for CFS,
known as the Canadian Consensus Criteria
(CCC).3 In 2011, a private international group
developed guidelines, known as the
International Consensus Criteria (ICC),4 for
diagnosing myalgic encephalomyelitis (ME).5
Members of this international group and
other medical experts consider ME to be a
subtype of CFS.6 We adapted the CDC
criteria, and to some extent the CCC and ICC,
when we formulated the criteria in this SSR.7
We consider a person to be ‘‘disabled’’ 8 if
he or she is unable to engage in any
substantial gainful activity by reason of any
medically determinable physical or mental
impairment(s) 9 which can be expected to
result in death or which has lasted or can be
expected to last for a continuous period of
not less than 12 months. We require that an
MDI result from anatomical, physiological, or
psychological abnormalities, as shown by
medically acceptable clinical and laboratory
diagnostic techniques.10 The Act and our
regulations further require that the
impairment be established by medical
evidence that consists of signs, symptoms,
and laboratory findings; therefore, a claimant
may not be found disabled on the basis of a
3 See Carruthers, B.M., et al. Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome:
Clinical Working Case Definition, Diagnostic and
Treatment Protocols, Journal of Chronic Fatigue
Syndrome, Jan; 11(1), 7–36 (2003); see also, Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome: A
Clinical Case Definition and Guidelines for Medical
Practitioners, Canada: Carruthers & van de Sande,
2005 (available at: https://sacfs.asn.au/download/
consensus_overview_me_cfs.pdf).
4 See Carruthers, B.M., et al. Myalgic
Encephalomyelitis: International Consensus
Criteria, Journal of Internal Medicine, Apr; 270(4),
327–338 (2011); also, Carruthers, B.M. & van de
Sande, M.I.,eds., Myalgic Encephalomyelitis—Adult
& Pediatric: International Consensus Primer for
Medical Practitioners, Canada: Carruthers & van de
Sande, 2012 (available at: https://sacfs.asn.au/
download/me_international_consensus_primer_for_
medical_practitioners.pdf).
5 Although the panel that developed the ICC
considers its criteria appropriate for diagnosing
only ME, we consider the ICC helpful in
establishing an MDI of CFS because of the
similarities between CFS and ME. For example, ME
also is a systemic disorder that manifests many of
the same symptoms as CFS, including prolonged
fatigue.
6 Medical experts who consider ME to be a
subtype of CFS may use hybrid terms to describe
the syndrome, such as CFS/ME and ME/CFS.
7 We adapted the CDC criteria, CCC, and ICC
because the Act and our regulations require a
claimant to establish by objective medical evidence
that he or she has a medically determinable
impairment. See 223(d)(5)(A) and 1614(a)(3)(D) of
the Act, 20 CFR 404.1058 and 416.908, and SSR 96–
4p: Titles II and XVI: Symptoms, Medically
Determinable Physical and Mental Impairments,
and Exertional and Nonexertional Limitations, 61
FR 34488 (1996) (also available at https://
www.ba.ssa.gov/OP_Home/rulings/di/01/SSR96–04di-01.html.
8 Except
for statutory blindness.
use the term ‘‘impairment(s)’’ in this SSR to
refer to an ‘‘impairment or a combination of
impairments.’’
10 See sections 223(d)(3) and 1614(a)(3)(D) of the
Act, and 20 CFR 404.1508 and 416.908.
9 We
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person’s statement of symptoms alone.11 In
this SSR, we explain that CFS, when
accompanied by appropriate medical signs or
laboratory findings, is an MDI that can be the
basis for a finding of ‘‘disability.’’ We also
explain how we evaluate CFS claims.
POLICY INTERPRETATION
CFS constitutes an MDI when
accompanied by medical signs or laboratory
findings, as discussed below. CFS may be a
disabling impairment. This policy
interpretation clarifies how our adjudicators
should apply our regulations in determining
whether a person claiming benefits based on
CFS is disabled under titles II and XVI the
Act. Adults and children may claim these
benefits. As mentioned, we include ME as a
subtype of CFS. When we refer to CFS in this
SSR, we include ME.
I. What is CFS?
CFS is a systemic disorder that may vary
in frequency, duration, and severity. CFS can
occur in children,12 particularly adolescents,
as well as in adults.
The CDC and other medical experts
characterize CFS, in part, as a syndrome that
causes prolonged fatigue lasting 6 months or
more, resulting in a substantial reduction in
previous levels of occupational, educational,
social, or personal activities. In accordance
with the CDC case definition of CFS, a
physician should make a diagnosis of CFS
‘‘only after alternative medical and
psychiatric causes of chronic fatiguing illness
have been excluded.’’ 13
A. General. Under the CDC case definition,
the hallmark of CFS is the presence of
clinically evaluated, persistent or relapsing
chronic fatigue that:
1. Is of new or definite onset (that is, has
not been lifelong);
2. Cannot be explained by another physical
or mental disorder;
3. Is not the result of ongoing exertion;
4. Is not substantially alleviated by rest;
and
5. Results in substantial reduction in
previous levels of occupational, educational,
social, or personal activities.
B. Additional indications of CFS. CFS
results in additional symptoms, some more
common than others.
1. Diagnostic Symptoms. The CDC case
definition requires the concurrence of 4 or
more specific symptoms that persisted or
recurred during 6 or more consecutive
months of illness and did not pre-date the
fatigue:
• Postexertional malaise lasting more than
24 hours (which may be the most common
secondary symptom);
• Self-reported impairment(s) in shortterm memory or concentration severe enough
to cause substantial reduction in previous
11 See sections 223(d)(5)(A) and 1614(a)(3)(D) of
the Act; 20 CFR 404.1508 and 416.908; and SSR 96–
4p.
12 In children, symptoms may progress more
gradually than in adolescents or adults.
13 See Fukuda, K. et al. The Chronic Fatigue
Syndrome: A Comprehensive Approach to a
Definition and Study, Annals of Internal Medicine,
Dec. 121(12), 953–9596 (1994).
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levels of occupational, educational, social, or
personal activities; 14
• Sore throat;
• Tender cervical or axillary lymph nodes;
• Muscle pain;
• Multi-joint pain without joint swelling or
redness;
• Headaches of a new type, pattern, or
severity; and
• Waking unrefreshed.15
2. Other Symptoms. Within these
parameters, the CDC case definition, CCC,
and ICC describe a wide range of other
symptoms a person with CFS may exhibit: 16
• Muscle weakness;
• Disturbed sleep patterns (for example,
insomnia, prolonged sleeping, frequent
awakenings, or vivid dreams or nightmares);
• Visual difficulties (for example, trouble
focusing, impaired depth perception, severe
photosensitivity, or eye pain);
• Orthostatic intolerance (for example,
lightheadedness, fainting, dizziness, or
increased fatigue with prolonged standing);
• Respiratory difficulties (for example,
labored breathing or sudden breathlessness);
• Cardiovascular abnormalities (for
example, palpitations with or without
cardiac arrhythmias);
• Gastrointestinal discomfort (for example,
nausea, bloating, or abdominal pain); and
• Urinary or bladder problems (for
example, urinary frequency, nocturia,
dysuria, or pain in the bladder region).
3. Co-occurring Conditions. People with
CFS may have co-occurring conditions, such
as fibromyalgia (FM),17 myofascial pain
syndrome, temporomandibular joint
syndrome, irritable bowel syndrome,
interstitial cystitis,18 Raynaud’s
phenomenon, migraines, chronic
lymphocytic thyroiditis, or Sjogren’s
syndrome. Co-occurring conditions may also
include new allergies or sensitivities to
foods, odors, chemicals, medications, noise,
vibrations, or touch, or the loss of
thermostatic stability (for example, chills,
14 We may consider self-reported impairments in
short-term memory or concentration to be
symptoms of CFS. As we explain in section IIE,
when these impairments are documented by mental
status examination or psychological testing, we may
also consider them to be medical signs or laboratory
findings.
15 ‘‘Waking unrefreshed’’ may be shown in the
case record by a person’s reports that describe a
history of non-restorative sleep, such as statements
about waking up tired or having difficulty
remaining awake during the day, or other
statements or evidence in the record reflecting that
the person has a history of non-restorative sleep.
16 In addition, generalized pain and neurological
symptoms (for example, headaches, cognitive
impairments, sleep disturbance, and dyslexia
evident when fatigued) may be common in children
and adolescents. Episodes of intense postexertional
weakness may occur, eventually causing a
previously active child to reduce or avoid physical
activity.
17 See SSR 12–2p: Titles II and XVI: Evaluation
of Fibromyalgia, 77 FR 43640(2012)(also available
at: https://www.ssa.gov/OP_Home/rulings/di/01/
SSR2012–02-di-01.html).
18 See SSR 02–2p: Titles II and XVI: Evaluation
of Interstitial Cystitis, 67 FR 67436 (2002) (also
available at: https://www.ssa.gov/OP_Home/rulings/
di/01/SSR2002–02-di-01.html).
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night sweats, or intolerance of extreme
temperatures).
II. How does a person establish an MDI of
CFS?
A. General.
1. A person can establish that he or she has
an MDI of CFS by providing appropriate
evidence from an acceptable medical
source.19 A licensed physician (a medical or
osteopathic doctor) is the only acceptable
medical source who can provide such
evidence. We cannot rely upon the
physician’s diagnosis alone. The evidence
must document that the physician reviewed
the person’s medical history and conducted
a physical exam. We will review the
physician’s treatment notes to see if they are
consistent with the diagnosis of CFS;
determine whether the person’s symptoms
have improved, worsened, or remained
stable; and establish the physician’s
assessment of the person’s physical strength
and functional abilities.
2. We will find that a person has an MDI
of CFS if a licensed physician diagnosed
CFS, and this diagnosis is not inconsistent
with the other evidence in the person’s case
record. Under the CDC case definition, a
physician can make the diagnosis of CFS
based on a person’s reported symptoms alone
after ruling out other possible causes for the
person’s symptoms.20 However, as
mentioned, statutory and regulatory
provisions require that, for evaluation of
claims of disability under the Act, there must
also be medical signs or laboratory findings
before we may find that a person has an MDI
of CFS. If we cannot find that the person has
an MDI of CFS but there is evidence of
another MDI, we will not evaluate the
impairment under this SSR. Instead, we will
evaluate it under the rules that apply for that
impairment.
B. Medical signs. For the purposes of
Social Security disability evaluation, one or
more of the following medical signs
clinically documented over a period of at
least 6 consecutive months help establish the
existence of an MDI of CFS:
• Palpably swollen or tender lymph nodes
on physical examination;
• Nonexudative pharyngitis;
• Persistent, reproducible muscle
tenderness on repeated examinations,
including the presence of positive tender
points; 21 or
19 See
20 CFR 404.1513(a) and 416.913(a).
examples of other disorders that may
have symptoms that are the same or similar to those
resulting from CFS include Addison’s disease,
Cushing’s syndrome, hypothyroidism, iron
deficiency, B12 deficiency, iron overload syndrome,
diabetes mellitus, cancer, upper airway resistance
syndrome, sleep apnea, rheumatologic disorders,
multiple sclerosis, Parkinsonism, myasthenia
gravis, Lyme disease, and chronic hepatitis.
21 There is considerable overlap of symptoms
between CFS and FM, but people with CFS who
also have tender points have an MDI. People with
impairments that fulfill the American College of
Rheumatology criteria for FM (which includes a
minimum number of tender points) may also fulfill
the criteria for CFS. See SSR 12–2p. However, we
may still find that a person with CFS has an MDI
if he or she does not have the specified number of
tender points to establish FM.
20 Some
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• Any other medical signs that are
consistent with medically accepted clinical
practice and are consistent with the other
evidence in the case record. For example, the
CCC and ICC explain that an acute infectious
inflammatory event may precede the onset of
CFS, and that other medical signs may be
present, including the following:
Æ Frequent viral infections with prolonged
recovery;
Æ Sinusitis;
Æ Ataxia;
Æ Extreme pallor; and
Æ Pronounced weight change.
C. Laboratory findings. At this time, we
cannot identify specific laboratory findings
that are widely accepted as being associated
with CFS. However, the absence of a
definitive test does not preclude our reliance
upon certain laboratory findings to establish
the existence of an MDI in people with CFS.
While standard laboratory test results in the
normal range are characteristic for many
people with CFS, and they should not be
relied upon to the exclusion of all other
clinical evidence in decisions regarding the
presence and severity of an MDI, the
following laboratory findings establish the
existence of an MDI in people with CFS:
• An elevated antibody titer to EpsteinBarr virus (EBV) capsid antigen equal to or
greater than 1:5120, or early antigen equal to
or greater than 1:640;
• An abnormal magnetic resonance
imaging (MRI) brain scan;
• Neurally mediated hypotension as
shown by tilt table testing or another
clinically accepted form of testing; or
• Any other laboratory findings that are
consistent with medically accepted clinical
practice and are consistent with the other
evidence in the case record (for example, an
abnormal exercise stress test or abnormal
sleep studies, appropriately evaluated and
consistent with the other evidence in the case
record).
D. Additional signs and laboratory
findings. Because of the ongoing research
into the etiology and manifestations of CFS,
the medical criteria discussed above are only
examples of physical and mental signs and
laboratory findings that can help us establish
the existence of an MDI; they are not allinclusive. As medical research advances
regarding CFS, we may discover additional
signs and laboratory findings to establish that
people have an MDI of CFS. For example,
scientific studies now suggest there may be
subsets of CFS with different causes,
including viruses such as Human
Herpesvirus 6. Thus, we may document the
existence of CFS with medical signs and
laboratory findings other than those listed
above provided such evidence is consistent
with medically accepted clinical practice,
and is consistent with the other evidence in
the case record.
E. Mental limitations. Some people with
CFS report ongoing problems with short-term
memory, information processing, visualspatial difficulties, comprehension,
concentration, speech, word-finding,
calculation, and other symptoms suggesting
persistent neurocognitive impairment. When
ongoing deficits in these areas have been
documented by mental status examination or
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psychological testing, such findings may
constitute medical signs or (in the case of
psychological testing) laboratory findings
that establish the presence of an MDI.22
When medical signs or laboratory findings
suggest a persistent neurological impairment
or other mental problems, and these signs or
findings are appropriately documented in the
medical record, we may find that the person
has an MDI.
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III. How do we document CFS?
A. General. In cases in which CFS is
alleged, we generally need longitudinal
evidence because medical signs, symptoms,
and laboratory findings of CFS fluctuate in
frequency and severity and often continue
over a period of many months or years.
1. Longitudinal clinical records reflecting
ongoing medical evaluation and treatment
from the person’s medical sources, especially
treating sources, are extremely helpful in
documenting the presence of any medical
signs or laboratory findings, as well as the
person’s functional status over time. The
longitudinal record should contain detailed
medical observations, information about
treatment, the person’s response to treatment,
and a detailed description of how the
impairment limits the person’s ability to
function.
2. In addition to obtaining evidence from
a physician, we may request evidence from
other acceptable medical sources, such as
psychologists, both to determine whether the
person has another MDI(s) and to evaluate
the severity and functional effects of CFS or
any of the person’s other impairments. Under
our regulations and SSR 06–03p, we also may
consider evidence from medical sources we
do not consider ‘‘acceptable medical
sources’’ to help us evaluate the severity and
functional effects of the impairment(s).23
3. We may also consider information from
nonmedical sources.24 This information may
also help us assess the person’s ability to
function day-to-day and over time. It may
also assist us in assessing the person’s
allegations about symptoms and their effects
(see section IV below). Examples of
nonmedical sources include:
• Spouses, parents, siblings, other
relatives, neighbors, friends, and clergy;
• Past employers, rehabilitation
counselors, and teachers; and
• Statements from SSA personnel who
interviewed the person.
4. Before we make a determination that you
are not disabled, we will make every
reasonable effort to develop your complete
medical history and help you get medical
reports from your own medical sources.
Generally, we will request evidence from
your medical sources for the 12-month
period preceding the month of application
unless there is reason to believe that
development of an earlier period is
22 See
20 CFR 404.1528 and 416.928.
20 CFR 404.1513(d)(4), 416.913(d)(4); and
SSR 06–03p: Titles II and XVI: Considering
Opinions and Other Evidence from Sources Who
Are Not ‘‘Acceptable Medical Sources’’ in Disability
Claims, 71 FR 45593 (2006) (also available at:
https://www.ssa.gov/OP_Home/rulings/di/01/
SSR2006-03-di-01.html).
24 See SSR 06–03p.
23 See
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necessary, or unless the alleged onset of
disability is less than 12 months before the
date of application.25
5. When the alleged onset of disability
secondary to CFS occurred less than 12
months before adjudication, we must
evaluate the medical evidence and project
the degree of impairment severity that is
likely to exist at the end of 12 months.26
Information about the person’s treatment and
response to treatment, as well as any medical
source opinions about the person’s prognosis
at the end of 12 months, helps us decide
whether to expect the MDI to be of disabling
severity for at least 12 consecutive months.
B. How do we consider medical opinions
about a person’s impairment? We consider
the nature of the treatment relationship
between the medical source 27 and the
claimant when we evaluate the source’s
medical opinions about a person’s
impairment(s). If we find that a treating
source’s medical opinion regarding the
nature and severity of a person’s
impairment(s) is well-supported by
medically acceptable clinical and laboratory
diagnostic techniques, and the opinion is not
inconsistent with the other substantial
evidence in the case record, we will give it
controlling weight.28 If a medical source
states that a person is ‘‘disabled’’ or ‘‘unable
to work,’’ or provides an opinion on issues
such as whether an impairment(s) meets or
is equivalent in severity to the requirements
of a listing, a person’s residual functional
capacity (RFC), or the application of
vocational factors, we consider these
statements to be opinions on issues reserved
to the Commissioner. We must still consider
such opinions in adjudicating a disability
claim; however, we will not give any special
significance to such an opinion because of its
source.29
C. Resolving conflicts. Conflicting evidence
in the medical record is not unusual in cases
of CFS due to the complicated diagnostic
process involved. We may seek clarification
of any such conflicts in the medical evidence
25 See 20 CFR 404.1512(d)(2) and 416.912(d)
concerning situations in which we would develop
an earlier period.
26 To meet the statutory requirement for
‘‘disability,’’ a person must have been unable to
engage in any substantial gainful activity by reason
of any medically determinable physical or mental
impairment which is expected to result in death or
which has lasted or can be expected to last for a
continuous period of not less than 12 months. See
42 U.S.C. 423(d)(1) and 1382c(a)(3)(A). Thus, the
existence of an impairment(s) for 12 continuous
months is not controlling; rather, it is the existence
of a disabling impairment which has lasted or can
be expected to last for at least 12 months that meets
the duration requirement of the Act.
27 See 20 CFR 404.1502 and 416.902 for the
definitions of ‘‘medical source’’ and ‘‘treating
source.’’
28 See 20 CFR 404.1527(c)(2) and 416.927(c)(2);
SSR 96–2p, Titles II and XVI: Giving Controlling
Weight to Treating Source/Medical Opinions, 61 FR
34492 (2006) (also available at: https://
www.socialsecurity.gov/OP_Home/rulings/di/01/
SSR96-02-di-01.html)
29 See SSR 96–5p, Titles II and XVI: Medical
Source Opinions on Issues Reserved to the
Commissioner, 61 FR 34471 (1996) (also available
at: https://www.socialsecurity.gov/OP_Home/rulings/
di/01/SSR96-05-di-01.html).
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18753
first from the person’s treating or other
medical sources, in accordance with our
rules.
D. What do we do if there is insufficient
evidence to determine whether the person
has an MDI of CFS or is disabled?
1. When there is insufficient evidence for
us to determine whether the person has an
MDI of CFS or is disabled, we may take one
or more actions to try to resolve the
insufficiency: 30
• We may recontact the person’s treating
or other source(s) to see if the information we
need is available;
• We may request additional existing
records;
• We may ask the person or others for
more information; or
• We may purchase a consultative
examination (CE) at our expense.31
2. When we are unable to resolve an
insufficiency in the evidence, and we need
to determine whether the person has an MDI
of CFS or is disabled, we may make a
determination or decision based on the
evidence we have.32
IV. How do we evaluate a person’s
statements about his or her symptoms and
functional limitations?
Generally, we follow a two-step process:
A. First step of the symptom-evaluation
process. There must be medical signs and
findings that show the person has an MDI(s)
which we could reasonably expect to
produce the fatigue or other symptoms
alleged.33 If we find that a person has an MDI
that we could reasonably expect to produce
the alleged symptoms, the first step of our
two-step process for evaluating symptoms is
satisfied.
B. Second step of the symptom-evaluation
process. After finding that the MDI could
reasonably be expected to produce the
alleged symptoms, we evaluate the intensity
and persistence of the person’s symptoms
and determine the extent to which they limit
the person’s capacity for work. If objective
medical evidence does not substantiate the
person’s statements about the intensity,
persistence, and functionally limiting effects
of symptoms, we consider all of the evidence
in the case record, including the person’s
daily activities; medications or other
treatments the person uses, or has used, to
alleviate symptoms; the nature and frequency
of the person’s attempts to obtain medical
treatment for symptoms; and statements by
other people about the person’s symptoms.
We will make a finding about the credibility
of the person’s statements regarding the
effects of his or her symptoms on
functioning.34 When we need additional
30 See
20 CFR 404.1520b(c) and 416.920b(c).
20 CFR 404.1520b(c)(3) and 416.920b(c)(3).
The type of CE we purchase will depend on the
nature of the person’s symptoms and the extent of
the evidence already in the case record. We may
purchase a CE without recontacting a person’s
treating or other source if the source cannot provide
the necessary information, or the information is not
available from the source. See 20 CFR 404.1519a(b)
and 416.919a(b).
32 See 20 CFR 404.1520b(d) and 416.920b(d).
33 See 20 CFR 404.1529(b) and 416.929(b).
34 See SSR 96–7p: Titles II and XVI: Evaluation
of Symptoms in Disability Claims: Assessing the
31 See
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information to assess the credibility of the
individual’s statements about symptoms and
their effects, we will make every reasonable
effort to obtain available information that
could shed light on the credibility of the
person’s statements.
pmangrum on DSK3VPTVN1PROD with NOTICES
V. How do we find a person disabled based
on an MDI of CFS?
Once we establish that a person has an
MDI of CFS, we will consider this MDI in the
sequential evaluation process to determine
whether the person is disabled.35 As we
explain in section VI below, we consider the
severity of the impairment, whether the
impairment medically equals the
requirements of a listed impairment, and
whether the impairment prevents the person
from doing his or her past relevant work or
other work that exists in significant numbers
in the national economy.
VI. How do we consider CFS in the sequential
evaluation process?
We adjudicate claims involving CFS using
the sequential evaluation process, just as we
do for any impairment. Once we find that an
MDI(s) exists (see section II), we must
establish the severity of the impairment(s).
We determine the severity of a person’s
impairment(s) based on the totality of
medical signs, symptoms, and laboratory
findings, and the effects of the impairment(s),
including any related symptoms, on the
person’s ability to function. Additionally,
several other disorders (including, but not
limited to FM, multiple chemical sensitivity,
and Gulf War Syndrome, as well as various
forms of depression, and some neurological
and psychological disorders) may share
characteristics similar to those of CFS. When
there is evidence of the potential presence of
another disorder that may adequately explain
the person’s symptoms, it may be necessary
to pursue additional medical or other
development. As mentioned, if we cannot
find that the person has an MDI of CFS but
there is evidence of another MDI, we will not
evaluate the impairment under this SSR.
Instead, we will evaluate it under the rules
that apply for that impairment.
A. Step 1. We consider the person’s work
activity. If a person with CFS is doing
substantial gainful activity, we find that he
or she is not disabled.
B. Step 2. If we establish that a person has
an MDI that meets the duration
requirement,36 and the person alleges fatigue,
pain, symptoms of neurocognitive problems,
or other symptoms consistent with CFS, we
must consider these symptoms in deciding
whether the person’s impairment is ‘‘severe’’
in step 2 of the sequential evaluation process,
and at any later steps reached in the
sequential evaluation process. If we find
fatigue, pain, neurocognitive symptoms, or
other symptoms cause a limitation or
restriction, and they have more than a
minimal effect on a person’s ability to
Credibility of an Individual’s Statements, 61 FR
34483 (1996) (also available at: https://
www.socialsecurity.gov/OP_Home/rulings/di/01/
SSR96-07-di-01.html).
35 See 20 CFR 404.1520, 416.920 and 416.924.
36 See 20 CFR 404.1509 and 416.909.
VerDate Mar<15>2010
15:17 Apr 02, 2014
Jkt 232001
perform basic work activities, we must find
that the person has a ‘‘severe’’ impairment.37
C. Step 3. When we find that a person has
a severe MDI, we must proceed with the
sequential evaluation process and next
consider whether the person’s impairment is
of the severity contemplated by the Listing of
Impairments.38 CFS is not a listed
impairment; therefore, we cannot find that a
person with CFS alone has an impairment
that meets the requirements of a listed
impairment. However, we will compare the
specific findings in each case to any
pertinent listing (for example, listing 14.06B
in the listing for repeated manifestations of
undifferentiated or mixed connective tissue
disease) to determine whether medical
equivalence may exist.39 Further, in cases in
which a person with CFS has psychological
manifestations related to CFS, we must
consider whether the person’s impairment
meets or equals the severity of any
impairment in the mental disorders
listings.40
D. Steps 4 and 5. For those impairments
that do not meet or equal the severity of a
listing, we must make an assessment of the
person’s RFC. After we make our RFC
assessment, our evaluation must proceed to
the fourth step of the sequential evaluation
process, if we do not use an expedited
process.41 If necessary, we then proceed to
the fifth step of the sequential evaluation
process.42 In assessing RFC, we must
consider all of the person’s impairmentrelated symptoms in deciding how such
symptoms may affect functional capacities.43
The RFC assessment must be based on all the
relevant evidence in the record.44 If we do
not use an expedited process, we must
determine that the person’s impairment(s)
precludes the performance of past relevant
work (or if there was no past relevant work).
If we determine that the person’s impairment
precludes performance of past relevant work,
we must make a finding about the person’s
ability to perform other work.45 We must
apply the usual vocational considerations in
determining the person’s ability to perform
other work.46
37 See SSR 96–3p: Titles II and XVI: Considering
Allegations of Pain and Other Symptoms in
Determining Whether a Medically Determinable
Impairment Is Severe, 61 FR 34468 (1996) (also
available at: https://www.ssa.gov/OP_Home/rulings/
di/01/SSR96-03-di-01.html).
38 See 20 CFR 404, subpart P, appendix 1.
39 In evaluating title XVI claims for disability
benefits for people under age 18, we will consider
whether the impairment(s) functionally equals the
listings. See 20 CFR 416.926a.
40 See sections 12.00 and 112.00 of 20 CFR part
404, subpart P, appendix 1.
41 See 404.1520(h) and 416.920(h).
42 The fourth and fifth steps of the sequential
evaluation process are not applicable to claims for
benefits under title XVI for people under age 18.
See 20 CFR 416.924.
43 See 404.1529(d) and 416.929(d), and SSR 96–
7p.
44 See 20 CFR 404.1545(a) and 416.945(a).
45 See SSR 96–8p: Titles II and XVI: Assessing
Residual Functional Capacity in Initial claims, 61
FR 34474 (1996) (also available at https://
www.ba.ssa.gov/OP_Home/rulings/di/01/SSR96-08di-01.html.
46 See 20 CFR 404.1560–404.1569a and 416.960–
416.969a, and SSR 11–2p: Titles II and XVI:
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Sfmt 9990
E. Continuing disability reviews. In those
cases in which we find that a person is
disabled based on CFS, we will schedule an
appropriate continuing disability review.47
For this review, we take into account relevant
individual case facts, such as the combined
severity of other chronic or static
impairments and the person’s vocational
factors.
EFFECTIVE DATE: This SSR is effective on
April 3, 2014.
CROSS-REFERENCES: SSR 82–63: Titles II
and XVI: Medical-Vocational Profiles
Showing an Inability To Make an Adjustment
to Other Work; SSR 83–12: Title II and XVI:
Capability To Do Other Work—The MedicalVocational Rules as a Framework for
Evaluating Exertional Limitations Within a
Range of Work or Between Ranges of Work;
SSR 83–14: Titles II and XVI: Capability To
Do Other Work—The Medical-Vocational
Rules as a Framework for Evaluating a
Combination of Exertional and Nonexertional
Impairments; SSR 85–15: Titles II and XVI:
Capability To Do Other Work—The MedicalVocational Rules as a Framework for
Evaluating Solely Nonexertional
Impairments; SSR 96–2p, Titles II and XVI:
Giving Controlling Weight to Treating Source
Medical Opinions; SSR 96–3p, Titles II and
XVI: Considering Allegations of Pain and
Other Symptoms in Determining Whether a
Medically Determinable Impairment is
Severe; SSR 96–4p, Titles II and XVI:
Symptoms, Medically Determinable Physical
and Mental Impairments, and Exertional and
Nonexertional Limitations; SSR 96–5p, Titles
II and XVI: Medical Source Opinions on
Issues Reserved to the Commissioner; SSR
96–7p, Titles II and XVI: Evaluation of
Symptoms in Disability Claims: Assessing
the Credibility of an Individual’s Statements;
SSR 96–8p, Titles II and XVI: Assessing
Residual Functional Capacity in Initial
Claims; SSR 96–9p, Titles II and XVI:
Determining Capability to Do Other Work—
Implications of a Residual Functional
Capacity for Less Than a Full Range of
Sedentary Work; SSR 02–2p, Titles II and
XVI: Evaluation of Interstitial Cystitis; SSR
06–03p, Titles II and XVI: Considering
Opinions and Other Evidence from Sources
Who Are Not ‘‘Acceptable Medical Sources’’
in Disability Claims; Considering Decisions
on Disability by Other Governmental and
Nongovernmental Agencies; SSR 11–2p,
Titles II and XVI: Documenting and
Evaluating Disability in Young Adults; SSR
12–2p, Titles II and XVI: Evaluation of
Fibromyalgia; and Program Operations
Manual System (POMS) DI 22505.001, DI
22505.003, DI 24505.003, DI 24510.057, DI
24515.012, DI 24515.061–DI 24515.063, DI
24515.066–DI 24515.067, DI 24515.075, DI
24555.001, DI 25010.001, and DI 25025.001.
[FR Doc. 2014–07465 Filed 4–2–14; 8:45 am]
BILLING CODE 4191–02–P
Documenting and Evaluating Disability in Young
Adults, 76 FR 56263 (2011) (also available at
https://www.ba.ssa.gov/OP_Home/rulings/di/01/
SSR2011-02-di-01.html).
47 See 20 CFR 404.1593, 404.1594, 404.1579,
416.993, 416.994 and 416.994a.
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[Federal Register Volume 79, Number 64 (Thursday, April 3, 2014)]
[Notices]
[Pages 18750-18754]
From the Federal Register Online via the Government Printing Office [www.gpo.gov]
[FR Doc No: 2014-07465]
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SOCIAL SECURITY ADMINISTRATION
[Docket No. SSA-2013-0060]
Social Security Ruling, SSR 14-1p; Titles II and XVI: Evaluating
Claims Involving Chronic Fatigue Syndrome (CFS)
AGENCY: Social Security Administration.
ACTION: Notice of Social Security Ruling (SSR).
-----------------------------------------------------------------------
SUMMARY: We are providing notice of SSR 14-1p. This SSR provides
guidance on how we develop evidence to establish that a person has a
medically determinable impairment of chronic fatigue syndrome and how
we evaluate chronic fatigue syndrome in disability claims and
continuing disability reviews under titles II and XVI of the Social
Security Act.
DATES: Effective Date: April 3, 2014.
FOR FURTHER INFORMATION CONTACT: Cheryl A. Williams, Office of Medical
Listings Improvement, Social Security Administration, 6401 Security
Boulevard, Baltimore, Maryland 21235-6401, (410) 965-1020.
SUPPLEMENTARY INFORMATION: Although 5 U.S.C. 552(a)(1) and (a)(2) do
not require us to publish this SSR, we are doing so in accordance with
20 CFR 402.35(b)(1).
Through SSRs, we convey to the public, precedential decisions
relating to the Federal old-age, survivors, disability, supplemental
security income, and special veterans benefits programs. We may base
SSRs on determinations or decisions made at all levels of
administrative adjudication, Federal court decisions, Commissioner's
decisions, opinions of the Office of the General Counsel, or other
interpretations of the law and regulations.
Although SSRs do not have the same force and effect as statutes or
regulations, they are binding on all components of the Social Security
Administration. 20 CFR 402.35(b)(1).
[[Page 18751]]
This SSR will remain in effect until we publish a notice in the
Federal Register that rescinds it, or we publish a new SSR that
replaces or modifies it.
(Catalog of Federal Domestic Assistance, Programs Nos. 96.001,
Social Security--Disability Insurance; 96.002, Social Security--
Retirement Insurance; 96.004, Social Security--Survivors Insurance;
96.006--Supplemental Security Income.)
Dated: March 27, 2014.
Carolyn W. Colvin,
Acting Commissioner of Social Security.
POLICY INTERPRETATION RULING
TITLES II AND XVI: EVALUATING CASES INVOLVING CHRONIC FATIGUE SYNDROME
(CFS)
This Social Security Ruling (SSR) rescinds and replaces SSR 99-
2p: ``Titles II and XVI: Evaluating Cases Involving Chronic Fatigue
Syndrome (CFS).''
PURPOSE: This SSR clarifies our policy on how we develop
evidence to establish that a person has a medically determinable
impairment (MDI) of CFS and how we evaluate this impairment in
disability claims and continuing disability reviews under titles II
and XVI the Social Security Act (Act).\1\
---------------------------------------------------------------------------
\1\ For simplicity, we refer in this SSR only to initial adult
claims for disability benefits under titles II and XVI of the Act
and to the steps of the sequential evaluation process we use to
determine disability in those claims. 20 CFR 404.1520 and 416.920.
The policy interpretations in this SSR apply to all cases in which
we must make determinations about disability, including claims of
children (that is, people who have not attained age 18) who apply
for benefits based on disability under title XVI of the Act,
disability redeterminations for children who became eligible for
Supplemental Security Income under title XVI as a child and who were
eligible for such benefits for the month before the month in which
they attained age 18, and to continuing disability reviews of adults
and children under titles II and XVI of the Act. 20 CFR 404.1594,
416.924, 416.987, 416.994, and 416.994a.
---------------------------------------------------------------------------
CITATIONS: Sections 216(i), 223(d), 223(f), 1614(a)(3) and
1614(a)(4) of the Social Security Act, as amended; Regulations No.
4, subpart P, sections 404.1502, 404.1505, 404.1508-404.1513,
404.1519a, 404.1520, 404.1520a, 404.1521, 404.1523, 404.1526-
404.1529, 404.1545, 404.1560-404.1569a, 404.1593, 404.1594,
appendices 1 and 2; and Regulations No. 16, subpart I, sections
416.902, 416.905, 416.906, 416.908-416.913, 416.919a, 416.920,
416.920a, 416.921, 416.923, 416.924, 416.924a, 416.926, 416.926a,
416.927-416.929, 416.945, 416.960-416-969a, 416.987, 416.993,
416.994, and 416.994a.
INTRODUCTION:
CFS is a systemic disorder consisting of a complex of symptoms
that may vary in frequency, duration, and severity. In 1994, an
international panel convened by the Centers for Disease Control and
Prevention (CDC) developed a case definition for CFS that serves as
an identification tool and research definition.\2\ In 2003, an
expert subcommittee of Health Canada, the Canadian health agency,
convened a consensus workshop that developed a clinical case
definition for CFS, known as the Canadian Consensus Criteria
(CCC).\3\ In 2011, a private international group developed
guidelines, known as the International Consensus Criteria (ICC),\4\
for diagnosing myalgic encephalomyelitis (ME).\5\ Members of this
international group and other medical experts consider ME to be a
subtype of CFS.\6\ We adapted the CDC criteria, and to some extent
the CCC and ICC, when we formulated the criteria in this SSR.\7\
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\2\ See Center for Disease Control and Prevention, ``Chronic
Fatigue Syndrome (CFS),'' available at: https://www.cdc.gov/cfs.
\3\ See Carruthers, B.M., et al. Myalgic Encephalomyelitis/
Chronic Fatigue Syndrome: Clinical Working Case Definition,
Diagnostic and Treatment Protocols, Journal of Chronic Fatigue
Syndrome, Jan; 11(1), 7-36 (2003); see also, Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome: A Clinical Case
Definition and Guidelines for Medical Practitioners, Canada:
Carruthers & van de Sande, 2005 (available at: https://sacfs.asn.au/download/consensus_overview_me_cfs.pdf).
\4\ See Carruthers, B.M., et al. Myalgic Encephalomyelitis:
International Consensus Criteria, Journal of Internal Medicine, Apr;
270(4), 327-338 (2011); also, Carruthers, B.M. & van de Sande,
M.I.,eds., Myalgic Encephalomyelitis--Adult & Pediatric:
International Consensus Primer for Medical Practitioners, Canada:
Carruthers & van de Sande, 2012 (available at: https://sacfs.asn.au/download/me_international_consensus_primer_for_medical_practitioners.pdf).
\5\ Although the panel that developed the ICC considers its
criteria appropriate for diagnosing only ME, we consider the ICC
helpful in establishing an MDI of CFS because of the similarities
between CFS and ME. For example, ME also is a systemic disorder that
manifests many of the same symptoms as CFS, including prolonged
fatigue.
\6\ Medical experts who consider ME to be a subtype of CFS may
use hybrid terms to describe the syndrome, such as CFS/ME and ME/
CFS.
\7\ We adapted the CDC criteria, CCC, and ICC because the Act
and our regulations require a claimant to establish by objective
medical evidence that he or she has a medically determinable
impairment. See 223(d)(5)(A) and 1614(a)(3)(D) of the Act, 20 CFR
404.1058 and 416.908, and SSR 96-4p: Titles II and XVI: Symptoms,
Medically Determinable Physical and Mental Impairments, and
Exertional and Nonexertional Limitations, 61 FR 34488 (1996) (also
available at https://www.ba.ssa.gov/OP_Home/rulings/di/01/SSR96-04-di-01.html.
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We consider a person to be ``disabled'' \8\ if he or she is
unable to engage in any substantial gainful activity by reason of
any medically determinable physical or mental impairment(s) \9\
which can be expected to result in death or which has lasted or can
be expected to last for a continuous period of not less than 12
months. We require that an MDI result from anatomical,
physiological, or psychological abnormalities, as shown by medically
acceptable clinical and laboratory diagnostic techniques.\10\ The
Act and our regulations further require that the impairment be
established by medical evidence that consists of signs, symptoms,
and laboratory findings; therefore, a claimant may not be found
disabled on the basis of a person's statement of symptoms alone.\11\
In this SSR, we explain that CFS, when accompanied by appropriate
medical signs or laboratory findings, is an MDI that can be the
basis for a finding of ``disability.'' We also explain how we
evaluate CFS claims.
\8\ Except for statutory blindness.
\9\ We use the term ``impairment(s)'' in this SSR to refer to an
``impairment or a combination of impairments.''
\10\ See sections 223(d)(3) and 1614(a)(3)(D) of the Act, and 20
CFR 404.1508 and 416.908.
\11\ See sections 223(d)(5)(A) and 1614(a)(3)(D) of the Act; 20
CFR 404.1508 and 416.908; and SSR 96-4p.
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POLICY INTERPRETATION
CFS constitutes an MDI when accompanied by medical signs or
laboratory findings, as discussed below. CFS may be a disabling
impairment. This policy interpretation clarifies how our
adjudicators should apply our regulations in determining whether a
person claiming benefits based on CFS is disabled under titles II
and XVI the Act. Adults and children may claim these benefits. As
mentioned, we include ME as a subtype of CFS. When we refer to CFS
in this SSR, we include ME.
I. What is CFS?
CFS is a systemic disorder that may vary in frequency, duration,
and severity. CFS can occur in children,\12\ particularly
adolescents, as well as in adults.
---------------------------------------------------------------------------
\12\ In children, symptoms may progress more gradually than in
adolescents or adults.
---------------------------------------------------------------------------
The CDC and other medical experts characterize CFS, in part, as
a syndrome that causes prolonged fatigue lasting 6 months or more,
resulting in a substantial reduction in previous levels of
occupational, educational, social, or personal activities. In
accordance with the CDC case definition of CFS, a physician should
make a diagnosis of CFS ``only after alternative medical and
psychiatric causes of chronic fatiguing illness have been
excluded.'' \13\
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\13\ See Fukuda, K. et al. The Chronic Fatigue Syndrome: A
Comprehensive Approach to a Definition and Study, Annals of Internal
Medicine, Dec. 121(12), 953-9596 (1994).
---------------------------------------------------------------------------
A. General. Under the CDC case definition, the hallmark of CFS
is the presence of clinically evaluated, persistent or relapsing
chronic fatigue that:
1. Is of new or definite onset (that is, has not been lifelong);
2. Cannot be explained by another physical or mental disorder;
3. Is not the result of ongoing exertion;
4. Is not substantially alleviated by rest; and
5. Results in substantial reduction in previous levels of
occupational, educational, social, or personal activities.
B. Additional indications of CFS. CFS results in additional
symptoms, some more common than others.
1. Diagnostic Symptoms. The CDC case definition requires the
concurrence of 4 or more specific symptoms that persisted or
recurred during 6 or more consecutive months of illness and did not
pre-date the fatigue:
Postexertional malaise lasting more than 24 hours
(which may be the most common secondary symptom);
Self-reported impairment(s) in short-term memory or
concentration severe enough to cause substantial reduction in
previous
[[Page 18752]]
levels of occupational, educational, social, or personal activities;
\14\
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\14\ We may consider self-reported impairments in short-term
memory or concentration to be symptoms of CFS. As we explain in
section IIE, when these impairments are documented by mental status
examination or psychological testing, we may also consider them to
be medical signs or laboratory findings.
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Sore throat;
Tender cervical or axillary lymph nodes;
Muscle pain;
Multi-joint pain without joint swelling or redness;
Headaches of a new type, pattern, or severity; and
Waking unrefreshed.\15\
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\15\ ``Waking unrefreshed'' may be shown in the case record by a
person's reports that describe a history of non-restorative sleep,
such as statements about waking up tired or having difficulty
remaining awake during the day, or other statements or evidence in
the record reflecting that the person has a history of non-
restorative sleep.
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2. Other Symptoms. Within these parameters, the CDC case
definition, CCC, and ICC describe a wide range of other symptoms a
person with CFS may exhibit: \16\
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\16\ In addition, generalized pain and neurological symptoms
(for example, headaches, cognitive impairments, sleep disturbance,
and dyslexia evident when fatigued) may be common in children and
adolescents. Episodes of intense postexertional weakness may occur,
eventually causing a previously active child to reduce or avoid
physical activity.
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Muscle weakness;
Disturbed sleep patterns (for example, insomnia,
prolonged sleeping, frequent awakenings, or vivid dreams or
nightmares);
Visual difficulties (for example, trouble focusing,
impaired depth perception, severe photosensitivity, or eye pain);
Orthostatic intolerance (for example, lightheadedness,
fainting, dizziness, or increased fatigue with prolonged standing);
Respiratory difficulties (for example, labored
breathing or sudden breathlessness);
Cardiovascular abnormalities (for example, palpitations
with or without cardiac arrhythmias);
Gastrointestinal discomfort (for example, nausea,
bloating, or abdominal pain); and
Urinary or bladder problems (for example, urinary
frequency, nocturia, dysuria, or pain in the bladder region).
3. Co-occurring Conditions. People with CFS may have co-
occurring conditions, such as fibromyalgia (FM),\17\ myofascial pain
syndrome, temporomandibular joint syndrome, irritable bowel
syndrome, interstitial cystitis,\18\ Raynaud's phenomenon,
migraines, chronic lymphocytic thyroiditis, or Sjogren's syndrome.
Co-occurring conditions may also include new allergies or
sensitivities to foods, odors, chemicals, medications, noise,
vibrations, or touch, or the loss of thermostatic stability (for
example, chills, night sweats, or intolerance of extreme
temperatures).
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\17\ See SSR 12-2p: Titles II and XVI: Evaluation of
Fibromyalgia, 77 FR 43640(2012)(also available at: https://www.ssa.gov/OP_Home/rulings/di/01/SSR2012-02-di-01.html).
\18\ See SSR 02-2p: Titles II and XVI: Evaluation of
Interstitial Cystitis, 67 FR 67436 (2002) (also available at: https://www.ssa.gov/OP_Home/rulings/di/01/SSR2002-02-di-01.html).
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II. How does a person establish an MDI of CFS?
A. General.
1. A person can establish that he or she has an MDI of CFS by
providing appropriate evidence from an acceptable medical
source.\19\ A licensed physician (a medical or osteopathic doctor)
is the only acceptable medical source who can provide such evidence.
We cannot rely upon the physician's diagnosis alone. The evidence
must document that the physician reviewed the person's medical
history and conducted a physical exam. We will review the
physician's treatment notes to see if they are consistent with the
diagnosis of CFS; determine whether the person's symptoms have
improved, worsened, or remained stable; and establish the
physician's assessment of the person's physical strength and
functional abilities.
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\19\ See 20 CFR 404.1513(a) and 416.913(a).
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2. We will find that a person has an MDI of CFS if a licensed
physician diagnosed CFS, and this diagnosis is not inconsistent with
the other evidence in the person's case record. Under the CDC case
definition, a physician can make the diagnosis of CFS based on a
person's reported symptoms alone after ruling out other possible
causes for the person's symptoms.\20\ However, as mentioned,
statutory and regulatory provisions require that, for evaluation of
claims of disability under the Act, there must also be medical signs
or laboratory findings before we may find that a person has an MDI
of CFS. If we cannot find that the person has an MDI of CFS but
there is evidence of another MDI, we will not evaluate the
impairment under this SSR. Instead, we will evaluate it under the
rules that apply for that impairment.
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\20\ Some examples of other disorders that may have symptoms
that are the same or similar to those resulting from CFS include
Addison's disease, Cushing's syndrome, hypothyroidism, iron
deficiency, B12 deficiency, iron overload syndrome, diabetes
mellitus, cancer, upper airway resistance syndrome, sleep apnea,
rheumatologic disorders, multiple sclerosis, Parkinsonism,
myasthenia gravis, Lyme disease, and chronic hepatitis.
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B. Medical signs. For the purposes of Social Security disability
evaluation, one or more of the following medical signs clinically
documented over a period of at least 6 consecutive months help
establish the existence of an MDI of CFS:
Palpably swollen or tender lymph nodes on physical
examination;
Nonexudative pharyngitis;
Persistent, reproducible muscle tenderness on repeated
examinations, including the presence of positive tender points; \21\
or
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\21\ There is considerable overlap of symptoms between CFS and
FM, but people with CFS who also have tender points have an MDI.
People with impairments that fulfill the American College of
Rheumatology criteria for FM (which includes a minimum number of
tender points) may also fulfill the criteria for CFS. See SSR 12-2p.
However, we may still find that a person with CFS has an MDI if he
or she does not have the specified number of tender points to
establish FM.
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Any other medical signs that are consistent with
medically accepted clinical practice and are consistent with the
other evidence in the case record. For example, the CCC and ICC
explain that an acute infectious inflammatory event may precede the
onset of CFS, and that other medical signs may be present, including
the following:
[cir] Frequent viral infections with prolonged recovery;
[cir] Sinusitis;
[cir] Ataxia;
[cir] Extreme pallor; and
[cir] Pronounced weight change.
C. Laboratory findings. At this time, we cannot identify
specific laboratory findings that are widely accepted as being
associated with CFS. However, the absence of a definitive test does
not preclude our reliance upon certain laboratory findings to
establish the existence of an MDI in people with CFS. While standard
laboratory test results in the normal range are characteristic for
many people with CFS, and they should not be relied upon to the
exclusion of all other clinical evidence in decisions regarding the
presence and severity of an MDI, the following laboratory findings
establish the existence of an MDI in people with CFS:
An elevated antibody titer to Epstein-Barr virus (EBV)
capsid antigen equal to or greater than 1:5120, or early antigen
equal to or greater than 1:640;
An abnormal magnetic resonance imaging (MRI) brain
scan;
Neurally mediated hypotension as shown by tilt table
testing or another clinically accepted form of testing; or
Any other laboratory findings that are consistent with
medically accepted clinical practice and are consistent with the
other evidence in the case record (for example, an abnormal exercise
stress test or abnormal sleep studies, appropriately evaluated and
consistent with the other evidence in the case record).
D. Additional signs and laboratory findings. Because of the
ongoing research into the etiology and manifestations of CFS, the
medical criteria discussed above are only examples of physical and
mental signs and laboratory findings that can help us establish the
existence of an MDI; they are not all-inclusive. As medical research
advances regarding CFS, we may discover additional signs and
laboratory findings to establish that people have an MDI of CFS. For
example, scientific studies now suggest there may be subsets of CFS
with different causes, including viruses such as Human Herpesvirus
6. Thus, we may document the existence of CFS with medical signs and
laboratory findings other than those listed above provided such
evidence is consistent with medically accepted clinical practice,
and is consistent with the other evidence in the case record.
E. Mental limitations. Some people with CFS report ongoing
problems with short-term memory, information processing, visual-
spatial difficulties, comprehension, concentration, speech, word-
finding, calculation, and other symptoms suggesting persistent
neurocognitive impairment. When ongoing deficits in these areas have
been documented by mental status examination or
[[Page 18753]]
psychological testing, such findings may constitute medical signs or
(in the case of psychological testing) laboratory findings that
establish the presence of an MDI.\22\ When medical signs or
laboratory findings suggest a persistent neurological impairment or
other mental problems, and these signs or findings are appropriately
documented in the medical record, we may find that the person has an
MDI.
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\22\ See 20 CFR 404.1528 and 416.928.
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III. How do we document CFS?
A. General. In cases in which CFS is alleged, we generally need
longitudinal evidence because medical signs, symptoms, and
laboratory findings of CFS fluctuate in frequency and severity and
often continue over a period of many months or years.
1. Longitudinal clinical records reflecting ongoing medical
evaluation and treatment from the person's medical sources,
especially treating sources, are extremely helpful in documenting
the presence of any medical signs or laboratory findings, as well as
the person's functional status over time. The longitudinal record
should contain detailed medical observations, information about
treatment, the person's response to treatment, and a detailed
description of how the impairment limits the person's ability to
function.
2. In addition to obtaining evidence from a physician, we may
request evidence from other acceptable medical sources, such as
psychologists, both to determine whether the person has another
MDI(s) and to evaluate the severity and functional effects of CFS or
any of the person's other impairments. Under our regulations and SSR
06-03p, we also may consider evidence from medical sources we do not
consider ``acceptable medical sources'' to help us evaluate the
severity and functional effects of the impairment(s).\23\
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\23\ See 20 CFR 404.1513(d)(4), 416.913(d)(4); and SSR 06-03p:
Titles II and XVI: Considering Opinions and Other Evidence from
Sources Who Are Not ``Acceptable Medical Sources'' in Disability
Claims, 71 FR 45593 (2006) (also available at: https://www.ssa.gov/OP_Home/rulings/di/01/SSR2006-03-di-01.html).
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3. We may also consider information from nonmedical sources.\24\
This information may also help us assess the person's ability to
function day-to-day and over time. It may also assist us in
assessing the person's allegations about symptoms and their effects
(see section IV below). Examples of nonmedical sources include:
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\24\ See SSR 06-03p.
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Spouses, parents, siblings, other relatives, neighbors,
friends, and clergy;
Past employers, rehabilitation counselors, and
teachers; and
Statements from SSA personnel who interviewed the
person.
4. Before we make a determination that you are not disabled, we
will make every reasonable effort to develop your complete medical
history and help you get medical reports from your own medical
sources. Generally, we will request evidence from your medical
sources for the 12-month period preceding the month of application
unless there is reason to believe that development of an earlier
period is necessary, or unless the alleged onset of disability is
less than 12 months before the date of application.\25\
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\25\ See 20 CFR 404.1512(d)(2) and 416.912(d) concerning
situations in which we would develop an earlier period.
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5. When the alleged onset of disability secondary to CFS
occurred less than 12 months before adjudication, we must evaluate
the medical evidence and project the degree of impairment severity
that is likely to exist at the end of 12 months.\26\ Information
about the person's treatment and response to treatment, as well as
any medical source opinions about the person's prognosis at the end
of 12 months, helps us decide whether to expect the MDI to be of
disabling severity for at least 12 consecutive months.
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\26\ To meet the statutory requirement for ``disability,'' a
person must have been unable to engage in any substantial gainful
activity by reason of any medically determinable physical or mental
impairment which is expected to result in death or which has lasted
or can be expected to last for a continuous period of not less than
12 months. See 42 U.S.C. 423(d)(1) and 1382c(a)(3)(A). Thus, the
existence of an impairment(s) for 12 continuous months is not
controlling; rather, it is the existence of a disabling impairment
which has lasted or can be expected to last for at least 12 months
that meets the duration requirement of the Act.
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B. How do we consider medical opinions about a person's
impairment? We consider the nature of the treatment relationship
between the medical source \27\ and the claimant when we evaluate
the source's medical opinions about a person's impairment(s). If we
find that a treating source's medical opinion regarding the nature
and severity of a person's impairment(s) is well-supported by
medically acceptable clinical and laboratory diagnostic techniques,
and the opinion is not inconsistent with the other substantial
evidence in the case record, we will give it controlling weight.\28\
If a medical source states that a person is ``disabled'' or ``unable
to work,'' or provides an opinion on issues such as whether an
impairment(s) meets or is equivalent in severity to the requirements
of a listing, a person's residual functional capacity (RFC), or the
application of vocational factors, we consider these statements to
be opinions on issues reserved to the Commissioner. We must still
consider such opinions in adjudicating a disability claim; however,
we will not give any special significance to such an opinion because
of its source.\29\
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\27\ See 20 CFR 404.1502 and 416.902 for the definitions of
``medical source'' and ``treating source.''
\28\ See 20 CFR 404.1527(c)(2) and 416.927(c)(2); SSR 96-2p,
Titles II and XVI: Giving Controlling Weight to Treating Source/
Medical Opinions, 61 FR 34492 (2006) (also available at: https://www.socialsecurity.gov/OP_Home/rulings/di/01/SSR96-02-di-01.html)
\29\ See SSR 96-5p, Titles II and XVI: Medical Source Opinions
on Issues Reserved to the Commissioner, 61 FR 34471 (1996) (also
available at: https://www.socialsecurity.gov/OP_Home/rulings/di/01/SSR96-05-di-01.html).
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C. Resolving conflicts. Conflicting evidence in the medical
record is not unusual in cases of CFS due to the complicated
diagnostic process involved. We may seek clarification of any such
conflicts in the medical evidence first from the person's treating
or other medical sources, in accordance with our rules.
D. What do we do if there is insufficient evidence to determine
whether the person has an MDI of CFS or is disabled?
1. When there is insufficient evidence for us to determine
whether the person has an MDI of CFS or is disabled, we may take one
or more actions to try to resolve the insufficiency: \30\
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\30\ See 20 CFR 404.1520b(c) and 416.920b(c).
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We may recontact the person's treating or other
source(s) to see if the information we need is available;
We may request additional existing records;
We may ask the person or others for more information;
or
We may purchase a consultative examination (CE) at our
expense.\31\
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\31\ See 20 CFR 404.1520b(c)(3) and 416.920b(c)(3). The type of
CE we purchase will depend on the nature of the person's symptoms
and the extent of the evidence already in the case record. We may
purchase a CE without recontacting a person's treating or other
source if the source cannot provide the necessary information, or
the information is not available from the source. See 20 CFR
404.1519a(b) and 416.919a(b).
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2. When we are unable to resolve an insufficiency in the
evidence, and we need to determine whether the person has an MDI of
CFS or is disabled, we may make a determination or decision based on
the evidence we have.\32\
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\32\ See 20 CFR 404.1520b(d) and 416.920b(d).
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IV. How do we evaluate a person's statements about his or her
symptoms and functional limitations?
Generally, we follow a two-step process:
A. First step of the symptom-evaluation process. There must be
medical signs and findings that show the person has an MDI(s) which
we could reasonably expect to produce the fatigue or other symptoms
alleged.\33\ If we find that a person has an MDI that we could
reasonably expect to produce the alleged symptoms, the first step of
our two-step process for evaluating symptoms is satisfied.
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\33\ See 20 CFR 404.1529(b) and 416.929(b).
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B. Second step of the symptom-evaluation process. After finding
that the MDI could reasonably be expected to produce the alleged
symptoms, we evaluate the intensity and persistence of the person's
symptoms and determine the extent to which they limit the person's
capacity for work. If objective medical evidence does not
substantiate the person's statements about the intensity,
persistence, and functionally limiting effects of symptoms, we
consider all of the evidence in the case record, including the
person's daily activities; medications or other treatments the
person uses, or has used, to alleviate symptoms; the nature and
frequency of the person's attempts to obtain medical treatment for
symptoms; and statements by other people about the person's
symptoms. We will make a finding about the credibility of the
person's statements regarding the effects of his or her symptoms on
functioning.\34\ When we need additional
[[Page 18754]]
information to assess the credibility of the individual's statements
about symptoms and their effects, we will make every reasonable
effort to obtain available information that could shed light on the
credibility of the person's statements.
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\34\ See SSR 96-7p: Titles II and XVI: Evaluation of Symptoms in
Disability Claims: Assessing the Credibility of an Individual's
Statements, 61 FR 34483 (1996) (also available at: https://www.socialsecurity.gov/OP_Home/rulings/di/01/SSR96-07-di-01.html).
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V. How do we find a person disabled based on an MDI of CFS?
Once we establish that a person has an MDI of CFS, we will
consider this MDI in the sequential evaluation process to determine
whether the person is disabled.\35\ As we explain in section VI
below, we consider the severity of the impairment, whether the
impairment medically equals the requirements of a listed impairment,
and whether the impairment prevents the person from doing his or her
past relevant work or other work that exists in significant numbers
in the national economy.
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\35\ See 20 CFR 404.1520, 416.920 and 416.924.
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VI. How do we consider CFS in the sequential evaluation process?
We adjudicate claims involving CFS using the sequential
evaluation process, just as we do for any impairment. Once we find
that an MDI(s) exists (see section II), we must establish the
severity of the impairment(s). We determine the severity of a
person's impairment(s) based on the totality of medical signs,
symptoms, and laboratory findings, and the effects of the
impairment(s), including any related symptoms, on the person's
ability to function. Additionally, several other disorders
(including, but not limited to FM, multiple chemical sensitivity,
and Gulf War Syndrome, as well as various forms of depression, and
some neurological and psychological disorders) may share
characteristics similar to those of CFS. When there is evidence of
the potential presence of another disorder that may adequately
explain the person's symptoms, it may be necessary to pursue
additional medical or other development. As mentioned, if we cannot
find that the person has an MDI of CFS but there is evidence of
another MDI, we will not evaluate the impairment under this SSR.
Instead, we will evaluate it under the rules that apply for that
impairment.
A. Step 1. We consider the person's work activity. If a person
with CFS is doing substantial gainful activity, we find that he or
she is not disabled.
B. Step 2. If we establish that a person has an MDI that meets
the duration requirement,\36\ and the person alleges fatigue, pain,
symptoms of neurocognitive problems, or other symptoms consistent
with CFS, we must consider these symptoms in deciding whether the
person's impairment is ``severe'' in step 2 of the sequential
evaluation process, and at any later steps reached in the sequential
evaluation process. If we find fatigue, pain, neurocognitive
symptoms, or other symptoms cause a limitation or restriction, and
they have more than a minimal effect on a person's ability to
perform basic work activities, we must find that the person has a
``severe'' impairment.\37\
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\36\ See 20 CFR 404.1509 and 416.909.
\37\ See SSR 96-3p: Titles II and XVI: Considering Allegations
of Pain and Other Symptoms in Determining Whether a Medically
Determinable Impairment Is Severe, 61 FR 34468 (1996) (also
available at: https://www.ssa.gov/OP_Home/rulings/di/01/SSR96-03-di-01.html).
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C. Step 3. When we find that a person has a severe MDI, we must
proceed with the sequential evaluation process and next consider
whether the person's impairment is of the severity contemplated by
the Listing of Impairments.\38\ CFS is not a listed impairment;
therefore, we cannot find that a person with CFS alone has an
impairment that meets the requirements of a listed impairment.
However, we will compare the specific findings in each case to any
pertinent listing (for example, listing 14.06B in the listing for
repeated manifestations of undifferentiated or mixed connective
tissue disease) to determine whether medical equivalence may
exist.\39\ Further, in cases in which a person with CFS has
psychological manifestations related to CFS, we must consider
whether the person's impairment meets or equals the severity of any
impairment in the mental disorders listings.\40\
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\38\ See 20 CFR 404, subpart P, appendix 1.
\39\ In evaluating title XVI claims for disability benefits for
people under age 18, we will consider whether the impairment(s)
functionally equals the listings. See 20 CFR 416.926a.
\40\ See sections 12.00 and 112.00 of 20 CFR part 404, subpart
P, appendix 1.
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D. Steps 4 and 5. For those impairments that do not meet or
equal the severity of a listing, we must make an assessment of the
person's RFC. After we make our RFC assessment, our evaluation must
proceed to the fourth step of the sequential evaluation process, if
we do not use an expedited process.\41\ If necessary, we then
proceed to the fifth step of the sequential evaluation process.\42\
In assessing RFC, we must consider all of the person's impairment-
related symptoms in deciding how such symptoms may affect functional
capacities.\43\ The RFC assessment must be based on all the relevant
evidence in the record.\44\ If we do not use an expedited process,
we must determine that the person's impairment(s) precludes the
performance of past relevant work (or if there was no past relevant
work). If we determine that the person's impairment precludes
performance of past relevant work, we must make a finding about the
person's ability to perform other work.\45\ We must apply the usual
vocational considerations in determining the person's ability to
perform other work.\46\
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\41\ See 404.1520(h) and 416.920(h).
\42\ The fourth and fifth steps of the sequential evaluation
process are not applicable to claims for benefits under title XVI
for people under age 18. See 20 CFR 416.924.
\43\ See 404.1529(d) and 416.929(d), and SSR 96-7p.
\44\ See 20 CFR 404.1545(a) and 416.945(a).
\45\ See SSR 96-8p: Titles II and XVI: Assessing Residual
Functional Capacity in Initial claims, 61 FR 34474 (1996) (also
available at https://www.ba.ssa.gov/OP_Home/rulings/di/01/SSR96-08-di-01.html.
\46\ See 20 CFR 404.1560-404.1569a and 416.960-416.969a, and SSR
11-2p: Titles II and XVI: Documenting and Evaluating Disability in
Young Adults, 76 FR 56263 (2011) (also available at https://www.ba.ssa.gov/OP_Home/rulings/di/01/SSR2011-02-di-01.html).
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E. Continuing disability reviews. In those cases in which we
find that a person is disabled based on CFS, we will schedule an
appropriate continuing disability review.\47\ For this review, we
take into account relevant individual case facts, such as the
combined severity of other chronic or static impairments and the
person's vocational factors.
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\47\ See 20 CFR 404.1593, 404.1594, 404.1579, 416.993, 416.994
and 416.994a.
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EFFECTIVE DATE: This SSR is effective on April 3, 2014.
CROSS-REFERENCES: SSR 82-63: Titles II and XVI: Medical-
Vocational Profiles Showing an Inability To Make an Adjustment to
Other Work; SSR 83-12: Title II and XVI: Capability To Do Other
Work--The Medical-Vocational Rules as a Framework for Evaluating
Exertional Limitations Within a Range of Work or Between Ranges of
Work; SSR 83-14: Titles II and XVI: Capability To Do Other Work--The
Medical-Vocational Rules as a Framework for Evaluating a Combination
of Exertional and Nonexertional Impairments; SSR 85-15: Titles II
and XVI: Capability To Do Other Work--The Medical-Vocational Rules
as a Framework for Evaluating Solely Nonexertional Impairments; SSR
96-2p, Titles II and XVI: Giving Controlling Weight to Treating
Source Medical Opinions; SSR 96-3p, Titles II and XVI: Considering
Allegations of Pain and Other Symptoms in Determining Whether a
Medically Determinable Impairment is Severe; SSR 96-4p, Titles II
and XVI: Symptoms, Medically Determinable Physical and Mental
Impairments, and Exertional and Nonexertional Limitations; SSR 96-
5p, Titles II and XVI: Medical Source Opinions on Issues Reserved to
the Commissioner; SSR 96-7p, Titles II and XVI: Evaluation of
Symptoms in Disability Claims: Assessing the Credibility of an
Individual's Statements; SSR 96-8p, Titles II and XVI: Assessing
Residual Functional Capacity in Initial Claims; SSR 96-9p, Titles II
and XVI: Determining Capability to Do Other Work--Implications of a
Residual Functional Capacity for Less Than a Full Range of Sedentary
Work; SSR 02-2p, Titles II and XVI: Evaluation of Interstitial
Cystitis; SSR 06-03p, Titles II and XVI: Considering Opinions and
Other Evidence from Sources Who Are Not ``Acceptable Medical
Sources'' in Disability Claims; Considering Decisions on Disability
by Other Governmental and Nongovernmental Agencies; SSR 11-2p,
Titles II and XVI: Documenting and Evaluating Disability in Young
Adults; SSR 12-2p, Titles II and XVI: Evaluation of Fibromyalgia;
and Program Operations Manual System (POMS) DI 22505.001, DI
22505.003, DI 24505.003, DI 24510.057, DI 24515.012, DI 24515.061-DI
24515.063, DI 24515.066-DI 24515.067, DI 24515.075, DI 24555.001, DI
25010.001, and DI 25025.001.
[FR Doc. 2014-07465 Filed 4-2-14; 8:45 am]
BILLING CODE 4191-02-P