Establishment of the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children, 23770-23771 [2013-09483]

Download as PDF 23770 Federal Register / Vol. 78, No. 77 / Monday, April 22, 2013 / Notices tkelley on DSK3SPTVN1PROD with NOTICES teachers with requisite language capabilities available to staff an ANA grant. In addition, the commenter stated that the by-laws are written so that teacher members do not have decisionmaking authority regarding personnel actions, nor to make financial decisions that are of personal benefit, thus insuring internal controls. Response: ANA offers no change in response to this comment. While ANA is sympathetic to the commenter’s concern, it is important that this policy remains as written. Under the standard terms and conditions for discretionary HHS awards (Grants Policy Statement, page II–7 at https://www.acf.hhs.gov/ grants/terms-and-conditions), grant recipients are required to establish safeguards to prevent employees, consultants, members of governing bodies, and others who may be involved in grant-supported activities, from using their positions for purposes that are, or give the appearance of being, motivated by a desire for private financial gain for themselves or others, such as those with whom they have family, business, or other ties. This has been a long-standing policy of the Administration for Children and Families. All prospective applicants are required to submit the SF–424B Assurances (Non-Construction) agreeing to these terms and conditions at the time of submission. ANA understands this can cause challenges for applicants but it is important that applicants are reminded of the requirement to establish safeguards that prohibit employees from using their position for a purpose that presents a conflict of interest or the appearance of a conflict of interest. B. Funding Opportunity Announcements For information on the types of projects funded by ANA, please refer to ANA’s Web site for information on our program areas and funding opportunity announcements: http:// www.acf.hhs.gov/programs/ana. Pre-publication information on ANA’s FOAs is available at the HHS Forecast Web site at http://www.acf.hhs.gov/ hhsgrantsforecast/. Once published, the 2013 FOAs can be accessed at: http://www.acf.hhs.gov/ grants/open/foa/office/ana or http:// www.acf.hhs.gov/grants/open/foa/. Synopses and application forms will be available on www.Grants.gov. Lillian A. Sparks, Commissioner, Administration for Native Americans. [FR Doc. 2013–09330 Filed 4–19–13; 8:45 am] BILLING CODE 4184–34–P VerDate Mar<15>2010 17:03 Apr 19, 2013 Jkt 229001 DEPARTMENT OF HEALTH AND HUMAN SERVICES Health Resources and Services Administration Establishment of the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children Health Resources and Services Administration, HHS. ACTION: Proposed Establishment of Discretionary Advisory Committee on Heritable Disorders in Newborns and Children. AGENCY: The U.S. Department of Health and Human Services announces establishment of the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children. FOR FURTHER INFORMATION CONTACT: Debi Sarkar, Public Health Analyst, Health Resources and Services Administration, Maternal and Child Health Bureau; telephone: 301–443–1080; email: dsarkar@hrsa.gov. SUPPLEMENTARY INFORMATION: Under the Public Health Service Act (PHS), 42 U.S.C. 217a, the Secretary of Health and Human Services directed that the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children shall be established within the Department of Health and Human Services (HHS). To comply with the authorizing directive and guidelines under the Federal Advisory Committee Act (FACA), a charter will be filed with the Committee Management Secretariat in the General Services Administration (GSA), the appropriate committees in the Senate and U.S. House of Representatives, and the Library of Congress to establish the Committee as a discretionary federal advisory committee. Objectives and Scope of Activities. The purpose of the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children (DACHDNC) is to advise the Secretary of Health and Human Services about aspects of newborn and childhood screening and technical information for the development of policies and priorities that will enhance the ability of the state and local health agencies to provide for newborn and child screening, counseling and health care services for newborns and children having, or at risk for, heritable disorders. The DACHDNC will review and report regularly on newborn and childhood screening practices, recommend improvements for newborn and childhood screening programs, as well as fulfill the list of requirements SUMMARY: PO 00000 Frm 00036 Fmt 4703 Sfmt 4703 stated in the original authorizing legislation. Membership and Designation. The Committee shall consist of up to fifteen (15) voting members, including the Chair. The members of the Committee shall be appointed by the Secretary or his/her designee. Membership will be composed of the Chair, Special Government Employees (SGEs), and federal ex-officio members. Federal exofficio members shall include the Administrator of the Health Resources and Services Administration; the Directors of the Centers for Disease Control and Prevention; the National Institutes of Health; the Agency for Healthcare Research and Quality; and the Commissioner of the Food and Drug Administration—or their designees. The Chair and other members shall be (a) medical, technical, public health or scientific professionals with special expertise in the field of heritable disorders or in providing screening, counseling, testing, or specialty services for newborns and children at risk for heritable disorders; (b) experts in ethics and heritable disorders who have worked and published material in the area of public health and genetic conditions; and (c) members from the public sector who have expertise, either professional or personal, about or concerning heritable disorders in order to achieve a fairly balanced membership. Administrative Management and Support. HHS will provide funding and administrative support for the Committee to the extent permitted by law within existing appropriations. Management and oversight for support services provided to the Committee will be the responsibility of the Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB). A copy of the Committee charter will be made available through access to the FACA database, maintained by the GSA Committee Management Secretariat, or from the designated contacts. The Web site for the FACA database is http:// fido.gov/facadatabase/. Authority: The Discretionary Advisory Committee on Heritable Disorders in Newborns and Children is authorized in accordance with the Public Health Service Act (PHS), 42 U.S.C. 222 [217a]: Advisory councils or committees. The Committee is governed by provisions of Public Law 92– 463, as amended, (5 U.S.C. App.), which sets forth standards for the formation and use of advisory committees. E:\FR\FM\22APN1.SGM 22APN1 Federal Register / Vol. 78, No. 77 / Monday, April 22, 2013 / Notices Dated: April 16, 2013. Mary K. Wakefield, Administrator. DEPARTMENT OF HEALTH AND HUMAN SERVICES National Institutes of Health [FR Doc. 2013–09483 Filed 4–18–13; 11:15 am] National Institute of Diabetes and Digestive and Kidney Diseases; Notice of Closed Meeting BILLING CODE 4165–15–P DEPARTMENT OF HEALTH AND HUMAN SERVICES National Institutes of Health National Institute of Allergy and Infectious Diseases; Notice of Closed Meeting Pursuant to section 10(d) of the Federal Advisory Committee Act, as amended (5 U.S.C. App.), notice is hereby given of the following meeting. The meeting will be closed to the public in accordance with the provisions set forth in sections 552b(c)(4) and 552b(c)(6), Title 5 U.S.C., as amended. The grant applications and the discussions could disclose confidential trade secrets or commercial property such as patentable material, and personal information concerning individuals associated with the grant applications, the disclosure of which would constitute a clearly unwarranted invasion of personal privacy. tkelley on DSK3SPTVN1PROD with NOTICES Name of Committee: National Institute of Allergy and Infectious Diseases Special Emphasis Panel; ‘‘Clinical Trails Units for NIAID Network’’ (Meeting 1). Date: May 16, 2013. Time: 10:00 a.m. to 5:00 p.m. Agenda: To review and evaluate grant applications. Place: National Institutes of Health, Rockledge 6700, 6700B Rockledge Drive, Bethesda, MD 20817, (Telephone Conference Call). Contact Person: Dharmendar Rathore, Ph.D., Scientific Review Officer, Scientific Review Program, Division of Extramural Activities, National Institutes of Health/ NIAID, 6700B Rockledge Drive, MSC 7616, Rm 3134, Bethesda, MD 20892–7616, 301– 435–2766, rathored@mail.nih.gov. (Catalogue of Federal Domestic Assistance Program Nos. 93.855, Allergy, Immunology, and Transplantation Research; 93.856, Microbiology and Infectious Diseases Research, National Institutes of Health, HHS) Dated: April 16, 2013. David Clary, Program Analyst, Office of Federal Advisory Committee Policy. [FR Doc. 2013–09311 Filed 4–19–13; 8:45 am] BILLING CODE 4140–01–P VerDate Mar<15>2010 17:03 Apr 19, 2013 Jkt 229001 Pursuant to section 10(d) of the Federal Advisory Committee Act, as amended (5 U.S.C. App.), notice is hereby given of the following meeting. The meeting will be closed to the public in accordance with the provisions set forth in sections 552b(c)(4) and 552b(c)(6), Title 5 U.S.C., as amended. The grant applications and the discussions could disclose confidential trade secrets or commercial property such as patentable material, and personal information concerning individuals associated with the grant applications, the disclosure of which would constitute a clearly unwarranted invasion of personal privacy. Name of Committee: National Institute of Diabetes and Digestive and Kidney Diseases Special Emphasis Panel; Artificial Pancreas. Date: July 10–11, 2013. Time: 5:00 p.m. to 5:00 p.m. Agenda: To review and evaluate grant applications. Place: Bethesda Marriott Suites, 6711 Democracy Boulevard, Bethesda, MD 20817. Contact Person: D.G. Patel, Ph.D., Scientific Review Officer, Review Branch, DEA, NIDDK, National Institutes of Health, Room 756, 6707 Democracy Boulevard, Bethesda, MD 20892–5452, (301) 594–7682, pateldg@niddk.nih.gov. (Catalogue of Federal Domestic Assistance Program Nos. 93.847, Diabetes, Endocrinology and Metabolic Research; 93.848, Digestive Diseases and Nutrition Research; 93.849, Kidney Diseases, Urology and Hematology Research, National Institutes of Health, HHS) Dated: April 16, 2013. David Clary, Program Analyst, Office of Federal Advisory Committee Policy. [FR Doc. 2013–09320 Filed 4–19–13; 8:45 am] BILLING CODE 4140–01–P DEPARTMENT OF HEALTH AND HUMAN SERVICES National Institutes of Health Eunice Kennedy Shriver National Institute of Child Health & Human Development; Notice of Closed Meeting Pursuant to section 10(d) of the Federal Advisory Committee Act, as amended (5 U.S.C. App.), notice is hereby given of the following meeting. The meeting will be closed to the public in accordance with the PO 00000 Frm 00037 Fmt 4703 Sfmt 4703 23771 provisions set forth in sections 552b(c)(4) and 552b(c)(6), Title 5 U.S.C., as amended. The grant applications and the discussions could disclose confidential trade secrets or commercial property such as patentable material, and personal information concerning individuals associated with the grant applications, the disclosure of which would constitute a clearly unwarranted invasion of personal privacy. Name of Committee: National Institute of Child Health and Human Development Special Emphasis Panel 1 RO1 HD078139– 01/Ronald M. Lazar, Ph.D. Date: May 2, 2013. Time: 3:00 p.m. to 4:00 p.m. Agenda: To review and evaluate grant applications. Place: National Institutes of Health, 6100 Executive Boulevard, Rockville, MD 20852, (Telephone Conference Call). Contact Person: Anne Krey, Ph.D., Scientific Review Officer, Division of Scientific Review, Eunice Kennedy Shriver National Institute, of Child Health And Human Development, NIH, 6100 Executive Blvd., Room 5B01, Bethesda, MD 20892, 301–435–6908, ak41o@nih.gov. This notice is being published less than 15 days prior to the meeting due to the timing limitations imposed by the review and funding cycle. (Catalogue of Federal Domestic Assistance Program Nos. 93.864, Population Research; 93.865, Research for Mothers and Children; 93.929, Center for Medical Rehabilitation Research; 93.209, Contraception and Infertility Loan Repayment Program, National Institutes of Health, HHS) Dated: April 16, 2013. Michelle Trout, Program Analyst, Office of Federal Advisory Committee Policy. [FR Doc. 2013–09312 Filed 4–19–13; 8:45 am] BILLING CODE 4140–01–P DEPARTMENT OF HEALTH AND HUMAN SERVICES National Institutes of Health Eunice Kennedy Shriver National Institute of Child Health & Human Development; Notice of Closed Meeting Pursuant to section 10(d) of the Federal Advisory Committee Act, as amended (5 U.S.C. App.), notice is hereby given of the following meeting. The meeting will be closed to the public in accordance with the provisions set forth in sections 552b(c)(4) and 552b(c)(6), Title 5 U.S.C., as amended. The grant applications and the discussions could disclose confidential trade secrets or commercial property such as patentable material, and personal information concerning E:\FR\FM\22APN1.SGM 22APN1

Agencies

[Federal Register Volume 78, Number 77 (Monday, April 22, 2013)]
[Notices]
[Pages 23770-23771]
From the Federal Register Online via the Government Printing Office [www.gpo.gov]
[FR Doc No: 2013-09483]


-----------------------------------------------------------------------

DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Establishment of the Discretionary Advisory Committee on 
Heritable Disorders in Newborns and Children

AGENCY: Health Resources and Services Administration, HHS.

ACTION: Proposed Establishment of Discretionary Advisory Committee on 
Heritable Disorders in Newborns and Children.

-----------------------------------------------------------------------

SUMMARY: The U.S. Department of Health and Human Services announces 
establishment of the Discretionary Advisory Committee on Heritable 
Disorders in Newborns and Children.

FOR FURTHER INFORMATION CONTACT: Debi Sarkar, Public Health Analyst, 
Health Resources and Services Administration, Maternal and Child Health 
Bureau; telephone: 301-443-1080; email: dsarkar@hrsa.gov.

SUPPLEMENTARY INFORMATION: Under the Public Health Service Act (PHS), 
42 U.S.C. 217a, the Secretary of Health and Human Services directed 
that the Discretionary Advisory Committee on Heritable Disorders in 
Newborns and Children shall be established within the Department of 
Health and Human Services (HHS). To comply with the authorizing 
directive and guidelines under the Federal Advisory Committee Act 
(FACA), a charter will be filed with the Committee Management 
Secretariat in the General Services Administration (GSA), the 
appropriate committees in the Senate and U.S. House of Representatives, 
and the Library of Congress to establish the Committee as a 
discretionary federal advisory committee.
    Objectives and Scope of Activities. The purpose of the 
Discretionary Advisory Committee on Heritable Disorders in Newborns and 
Children (DACHDNC) is to advise the Secretary of Health and Human 
Services about aspects of newborn and childhood screening and technical 
information for the development of policies and priorities that will 
enhance the ability of the state and local health agencies to provide 
for newborn and child screening, counseling and health care services 
for newborns and children having, or at risk for, heritable disorders. 
The DACHDNC will review and report regularly on newborn and childhood 
screening practices, recommend improvements for newborn and childhood 
screening programs, as well as fulfill the list of requirements stated 
in the original authorizing legislation.
    Membership and Designation. The Committee shall consist of up to 
fifteen (15) voting members, including the Chair. The members of the 
Committee shall be appointed by the Secretary or his/her designee. 
Membership will be composed of the Chair, Special Government Employees 
(SGEs), and federal ex-officio members. Federal ex-officio members 
shall include the Administrator of the Health Resources and Services 
Administration; the Directors of the Centers for Disease Control and 
Prevention; the National Institutes of Health; the Agency for 
Healthcare Research and Quality; and the Commissioner of the Food and 
Drug Administration--or their designees. The Chair and other members 
shall be (a) medical, technical, public health or scientific 
professionals with special expertise in the field of heritable 
disorders or in providing screening, counseling, testing, or specialty 
services for newborns and children at risk for heritable disorders; (b) 
experts in ethics and heritable disorders who have worked and published 
material in the area of public health and genetic conditions; and (c) 
members from the public sector who have expertise, either professional 
or personal, about or concerning heritable disorders in order to 
achieve a fairly balanced membership.
    Administrative Management and Support. HHS will provide funding and 
administrative support for the Committee to the extent permitted by law 
within existing appropriations. Management and oversight for support 
services provided to the Committee will be the responsibility of the 
Health Resources and Services Administration (HRSA), Maternal and Child 
Health Bureau (MCHB).
    A copy of the Committee charter will be made available through 
access to the FACA database, maintained by the GSA Committee Management 
Secretariat, or from the designated contacts. The Web site for the FACA 
database is http://fido.gov/facadatabase/.

    Authority: The Discretionary Advisory Committee on Heritable 
Disorders in Newborns and Children is authorized in accordance with 
the Public Health Service Act (PHS), 42 U.S.C. 222 [217a]: Advisory 
councils or committees. The Committee is governed by provisions of 
Public Law 92-463, as amended, (5 U.S.C. App.), which sets forth 
standards for the formation and use of advisory committees.


[[Page 23771]]


    Dated: April 16, 2013.
Mary K. Wakefield,
Administrator.
[FR Doc. 2013-09483 Filed 4-18-13; 11:15 am]
BILLING CODE 4165-15-P