Establishment of the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children, 23770-23771 [2013-09483]
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Federal Register / Vol. 78, No. 77 / Monday, April 22, 2013 / Notices
tkelley on DSK3SPTVN1PROD with NOTICES
teachers with requisite language
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Lillian A. Sparks,
Commissioner, Administration for Native
Americans.
[FR Doc. 2013–09330 Filed 4–19–13; 8:45 am]
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DEPARTMENT OF HEALTH AND
HUMAN SERVICES
Health Resources and Services
Administration
Establishment of the Discretionary
Advisory Committee on Heritable
Disorders in Newborns and Children
Health Resources and Services
Administration, HHS.
ACTION: Proposed Establishment of
Discretionary Advisory Committee on
Heritable Disorders in Newborns and
Children.
AGENCY:
The U.S. Department of
Health and Human Services announces
establishment of the Discretionary
Advisory Committee on Heritable
Disorders in Newborns and Children.
FOR FURTHER INFORMATION CONTACT: Debi
Sarkar, Public Health Analyst, Health
Resources and Services Administration,
Maternal and Child Health Bureau;
telephone: 301–443–1080; email:
dsarkar@hrsa.gov.
SUPPLEMENTARY INFORMATION: Under the
Public Health Service Act (PHS), 42
U.S.C. 217a, the Secretary of Health and
Human Services directed that the
Discretionary Advisory Committee on
Heritable Disorders in Newborns and
Children shall be established within the
Department of Health and Human
Services (HHS). To comply with the
authorizing directive and guidelines
under the Federal Advisory Committee
Act (FACA), a charter will be filed with
the Committee Management Secretariat
in the General Services Administration
(GSA), the appropriate committees in
the Senate and U.S. House of
Representatives, and the Library of
Congress to establish the Committee as
a discretionary federal advisory
committee.
Objectives and Scope of Activities.
The purpose of the Discretionary
Advisory Committee on Heritable
Disorders in Newborns and Children
(DACHDNC) is to advise the Secretary of
Health and Human Services about
aspects of newborn and childhood
screening and technical information for
the development of policies and
priorities that will enhance the ability of
the state and local health agencies to
provide for newborn and child
screening, counseling and health care
services for newborns and children
having, or at risk for, heritable
disorders. The DACHDNC will review
and report regularly on newborn and
childhood screening practices,
recommend improvements for newborn
and childhood screening programs, as
well as fulfill the list of requirements
SUMMARY:
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stated in the original authorizing
legislation.
Membership and Designation. The
Committee shall consist of up to fifteen
(15) voting members, including the
Chair. The members of the Committee
shall be appointed by the Secretary or
his/her designee. Membership will be
composed of the Chair, Special
Government Employees (SGEs), and
federal ex-officio members. Federal exofficio members shall include the
Administrator of the Health Resources
and Services Administration; the
Directors of the Centers for Disease
Control and Prevention; the National
Institutes of Health; the Agency for
Healthcare Research and Quality; and
the Commissioner of the Food and Drug
Administration—or their designees. The
Chair and other members shall be (a)
medical, technical, public health or
scientific professionals with special
expertise in the field of heritable
disorders or in providing screening,
counseling, testing, or specialty services
for newborns and children at risk for
heritable disorders; (b) experts in ethics
and heritable disorders who have
worked and published material in the
area of public health and genetic
conditions; and (c) members from the
public sector who have expertise, either
professional or personal, about or
concerning heritable disorders in order
to achieve a fairly balanced
membership.
Administrative Management and
Support. HHS will provide funding and
administrative support for the
Committee to the extent permitted by
law within existing appropriations.
Management and oversight for support
services provided to the Committee will
be the responsibility of the Health
Resources and Services Administration
(HRSA), Maternal and Child Health
Bureau (MCHB).
A copy of the Committee charter will
be made available through access to the
FACA database, maintained by the GSA
Committee Management Secretariat, or
from the designated contacts. The Web
site for the FACA database is https://
fido.gov/facadatabase/.
Authority: The Discretionary Advisory
Committee on Heritable Disorders in
Newborns and Children is authorized in
accordance with the Public Health Service
Act (PHS), 42 U.S.C. 222 [217a]: Advisory
councils or committees. The Committee is
governed by provisions of Public Law 92–
463, as amended, (5 U.S.C. App.), which sets
forth standards for the formation and use of
advisory committees.
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Federal Register / Vol. 78, No. 77 / Monday, April 22, 2013 / Notices
Dated: April 16, 2013.
Mary K. Wakefield,
Administrator.
DEPARTMENT OF HEALTH AND
HUMAN SERVICES
National Institutes of Health
[FR Doc. 2013–09483 Filed 4–18–13; 11:15 am]
National Institute of Diabetes and
Digestive and Kidney Diseases; Notice
of Closed Meeting
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DEPARTMENT OF HEALTH AND
HUMAN SERVICES
National Institutes of Health
National Institute of Allergy and
Infectious Diseases; Notice of Closed
Meeting
Pursuant to section 10(d) of the
Federal Advisory Committee Act, as
amended (5 U.S.C. App.), notice is
hereby given of the following meeting.
The meeting will be closed to the
public in accordance with the
provisions set forth in sections
552b(c)(4) and 552b(c)(6), Title 5 U.S.C.,
as amended. The grant applications and
the discussions could disclose
confidential trade secrets or commercial
property such as patentable material,
and personal information concerning
individuals associated with the grant
applications, the disclosure of which
would constitute a clearly unwarranted
invasion of personal privacy.
tkelley on DSK3SPTVN1PROD with NOTICES
Name of Committee: National Institute of
Allergy and Infectious Diseases Special
Emphasis Panel; ‘‘Clinical Trails Units for
NIAID Network’’ (Meeting 1).
Date: May 16, 2013.
Time: 10:00 a.m. to 5:00 p.m.
Agenda: To review and evaluate grant
applications.
Place: National Institutes of Health,
Rockledge 6700, 6700B Rockledge Drive,
Bethesda, MD 20817, (Telephone Conference
Call).
Contact Person: Dharmendar Rathore,
Ph.D., Scientific Review Officer, Scientific
Review Program, Division of Extramural
Activities, National Institutes of Health/
NIAID, 6700B Rockledge Drive, MSC 7616,
Rm 3134, Bethesda, MD 20892–7616, 301–
435–2766, rathored@mail.nih.gov.
(Catalogue of Federal Domestic Assistance
Program Nos. 93.855, Allergy, Immunology,
and Transplantation Research; 93.856,
Microbiology and Infectious Diseases
Research, National Institutes of Health, HHS)
Dated: April 16, 2013.
David Clary,
Program Analyst, Office of Federal Advisory
Committee Policy.
[FR Doc. 2013–09311 Filed 4–19–13; 8:45 am]
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Pursuant to section 10(d) of the
Federal Advisory Committee Act, as
amended (5 U.S.C. App.), notice is
hereby given of the following meeting.
The meeting will be closed to the
public in accordance with the
provisions set forth in sections
552b(c)(4) and 552b(c)(6), Title 5 U.S.C.,
as amended. The grant applications and
the discussions could disclose
confidential trade secrets or commercial
property such as patentable material,
and personal information concerning
individuals associated with the grant
applications, the disclosure of which
would constitute a clearly unwarranted
invasion of personal privacy.
Name of Committee: National Institute of
Diabetes and Digestive and Kidney Diseases
Special Emphasis Panel; Artificial Pancreas.
Date: July 10–11, 2013.
Time: 5:00 p.m. to 5:00 p.m.
Agenda: To review and evaluate grant
applications.
Place: Bethesda Marriott Suites, 6711
Democracy Boulevard, Bethesda, MD 20817.
Contact Person: D.G. Patel, Ph.D.,
Scientific Review Officer, Review Branch,
DEA, NIDDK, National Institutes of Health,
Room 756, 6707 Democracy Boulevard,
Bethesda, MD 20892–5452, (301) 594–7682,
pateldg@niddk.nih.gov.
(Catalogue of Federal Domestic Assistance
Program Nos. 93.847, Diabetes,
Endocrinology and Metabolic Research;
93.848, Digestive Diseases and Nutrition
Research; 93.849, Kidney Diseases, Urology
and Hematology Research, National Institutes
of Health, HHS)
Dated: April 16, 2013.
David Clary,
Program Analyst, Office of Federal Advisory
Committee Policy.
[FR Doc. 2013–09320 Filed 4–19–13; 8:45 am]
BILLING CODE 4140–01–P
DEPARTMENT OF HEALTH AND
HUMAN SERVICES
National Institutes of Health
Eunice Kennedy Shriver National
Institute of Child Health & Human
Development; Notice of Closed
Meeting
Pursuant to section 10(d) of the
Federal Advisory Committee Act, as
amended (5 U.S.C. App.), notice is
hereby given of the following meeting.
The meeting will be closed to the
public in accordance with the
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23771
provisions set forth in sections
552b(c)(4) and 552b(c)(6), Title 5 U.S.C.,
as amended. The grant applications and
the discussions could disclose
confidential trade secrets or commercial
property such as patentable material,
and personal information concerning
individuals associated with the grant
applications, the disclosure of which
would constitute a clearly unwarranted
invasion of personal privacy.
Name of Committee: National Institute of
Child Health and Human Development
Special Emphasis Panel 1 RO1 HD078139–
01/Ronald M. Lazar, Ph.D.
Date: May 2, 2013.
Time: 3:00 p.m. to 4:00 p.m.
Agenda: To review and evaluate grant
applications.
Place: National Institutes of Health, 6100
Executive Boulevard, Rockville, MD 20852,
(Telephone Conference Call).
Contact Person: Anne Krey, Ph.D.,
Scientific Review Officer, Division of
Scientific Review, Eunice Kennedy Shriver
National Institute, of Child Health And
Human Development, NIH, 6100 Executive
Blvd., Room 5B01, Bethesda, MD 20892,
301–435–6908, ak41o@nih.gov.
This notice is being published less than 15
days prior to the meeting due to the timing
limitations imposed by the review and
funding cycle.
(Catalogue of Federal Domestic Assistance
Program Nos. 93.864, Population Research;
93.865, Research for Mothers and Children;
93.929, Center for Medical Rehabilitation
Research; 93.209, Contraception and
Infertility Loan Repayment Program, National
Institutes of Health, HHS)
Dated: April 16, 2013.
Michelle Trout,
Program Analyst, Office of Federal Advisory
Committee Policy.
[FR Doc. 2013–09312 Filed 4–19–13; 8:45 am]
BILLING CODE 4140–01–P
DEPARTMENT OF HEALTH AND
HUMAN SERVICES
National Institutes of Health
Eunice Kennedy Shriver National
Institute of Child Health & Human
Development; Notice of Closed
Meeting
Pursuant to section 10(d) of the
Federal Advisory Committee Act, as
amended (5 U.S.C. App.), notice is
hereby given of the following meeting.
The meeting will be closed to the
public in accordance with the
provisions set forth in sections
552b(c)(4) and 552b(c)(6), Title 5 U.S.C.,
as amended. The grant applications and
the discussions could disclose
confidential trade secrets or commercial
property such as patentable material,
and personal information concerning
E:\FR\FM\22APN1.SGM
22APN1
]]>Agencies
[Federal Register Volume 78, Number 77 (Monday, April 22, 2013)]
[Notices]
[Pages 23770-23771]
From the Federal Register Online via the Government Printing Office [www.gpo.gov]
[FR Doc No: 2013-09483]
-----------------------------------------------------------------------
DEPARTMENT OF HEALTH AND HUMAN SERVICES
Health Resources and Services Administration
Establishment of the Discretionary Advisory Committee on
Heritable Disorders in Newborns and Children
AGENCY: Health Resources and Services Administration, HHS.
ACTION: Proposed Establishment of Discretionary Advisory Committee on
Heritable Disorders in Newborns and Children.
-----------------------------------------------------------------------
SUMMARY: The U.S. Department of Health and Human Services announces
establishment of the Discretionary Advisory Committee on Heritable
Disorders in Newborns and Children.
FOR FURTHER INFORMATION CONTACT: Debi Sarkar, Public Health Analyst,
Health Resources and Services Administration, Maternal and Child Health
Bureau; telephone: 301-443-1080; email: dsarkar@hrsa.gov.
SUPPLEMENTARY INFORMATION: Under the Public Health Service Act (PHS),
42 U.S.C. 217a, the Secretary of Health and Human Services directed
that the Discretionary Advisory Committee on Heritable Disorders in
Newborns and Children shall be established within the Department of
Health and Human Services (HHS). To comply with the authorizing
directive and guidelines under the Federal Advisory Committee Act
(FACA), a charter will be filed with the Committee Management
Secretariat in the General Services Administration (GSA), the
appropriate committees in the Senate and U.S. House of Representatives,
and the Library of Congress to establish the Committee as a
discretionary federal advisory committee.
Objectives and Scope of Activities. The purpose of the
Discretionary Advisory Committee on Heritable Disorders in Newborns and
Children (DACHDNC) is to advise the Secretary of Health and Human
Services about aspects of newborn and childhood screening and technical
information for the development of policies and priorities that will
enhance the ability of the state and local health agencies to provide
for newborn and child screening, counseling and health care services
for newborns and children having, or at risk for, heritable disorders.
The DACHDNC will review and report regularly on newborn and childhood
screening practices, recommend improvements for newborn and childhood
screening programs, as well as fulfill the list of requirements stated
in the original authorizing legislation.
Membership and Designation. The Committee shall consist of up to
fifteen (15) voting members, including the Chair. The members of the
Committee shall be appointed by the Secretary or his/her designee.
Membership will be composed of the Chair, Special Government Employees
(SGEs), and federal ex-officio members. Federal ex-officio members
shall include the Administrator of the Health Resources and Services
Administration; the Directors of the Centers for Disease Control and
Prevention; the National Institutes of Health; the Agency for
Healthcare Research and Quality; and the Commissioner of the Food and
Drug Administration--or their designees. The Chair and other members
shall be (a) medical, technical, public health or scientific
professionals with special expertise in the field of heritable
disorders or in providing screening, counseling, testing, or specialty
services for newborns and children at risk for heritable disorders; (b)
experts in ethics and heritable disorders who have worked and published
material in the area of public health and genetic conditions; and (c)
members from the public sector who have expertise, either professional
or personal, about or concerning heritable disorders in order to
achieve a fairly balanced membership.
Administrative Management and Support. HHS will provide funding and
administrative support for the Committee to the extent permitted by law
within existing appropriations. Management and oversight for support
services provided to the Committee will be the responsibility of the
Health Resources and Services Administration (HRSA), Maternal and Child
Health Bureau (MCHB).
A copy of the Committee charter will be made available through
access to the FACA database, maintained by the GSA Committee Management
Secretariat, or from the designated contacts. The Web site for the FACA
database is https://fido.gov/facadatabase/.
Authority: The Discretionary Advisory Committee on Heritable
Disorders in Newborns and Children is authorized in accordance with
the Public Health Service Act (PHS), 42 U.S.C. 222 [217a]: Advisory
councils or committees. The Committee is governed by provisions of
Public Law 92-463, as amended, (5 U.S.C. App.), which sets forth
standards for the formation and use of advisory committees.
[[Page 23771]]
Dated: April 16, 2013.
Mary K. Wakefield,
Administrator.
[FR Doc. 2013-09483 Filed 4-18-13; 11:15 am]
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