Request for Measures and Domains To Use in Development of a Standardized Instrument for Use in Public Reporting of the Quality of Transition From Child-focused to Adult-focused Care in Young Adults With Chronic Conditions, 23260-23261 [2013-08937]
Download as PDF
<![CDATA[
23260
Federal Register / Vol. 78, No. 75 / Thursday, April 18, 2013 / Notices
DEPARTMENT OF HEALTH AND
HUMAN SERVICES
Agency for Healthcare Research and
Quality
Request for Measures and Domains To
Use in Development of a Standardized
Instrument for Use in Public Reporting
of the Quality of Transition From Childfocused to Adult-focused Care in
Young Adults With Chronic Conditions
Agency for Healthcare Research
and Quality (AHRQ), HHS.
ACTION: Notice of request for measures
and domains.
AGENCY:
Section 401(a) of the
Children’s Health Insurance Program
Reauthorization Act of 2009 (CHIPRA),
Public Law 111–3, amended the Social
Security Act (the Act) to enact section
1139A (42 U.S.C. 1320b–9a). Section
1139A(b) charged the Department of
Health and Human Services with
improving pediatric health care quality
measures. The Agency for Healthcare
Research and Quality (AHRQ) is
requesting the submission of
instruments or domains (for example,
key concepts) measuring aspects of the
transition from child-focused to adultfocused care in young adults with
chronic health conditions from all
researchers, vendors, hospitals,
stakeholders, and other interested
parties. AHRQ is interested in
instruments and items through which
young adults or parent proxies may
assess experiences they have with the
health care system, including the
transition from pediatric to adult health
care. The goal is to develop a
standardized instrument for use in
assessing the quality of transition from
child-focused to adult-focused care in
young adults with chronic health
conditions.
DATES: Please submit materials May 20,
2013. AHRQ will not respond to
individual submissions, but will
consider all suggestions.
ADDRESSES: Electronic submissions are
encouraged, preferably as an email with
an electronic file in a standard word
processing format as an email
attachment. Submissions may also be in
the form of a letter to: Maushami
DeSoto, M.Sc., Ph.D., MHA. Office of
Extramural Research, Education and
Priority Populations, Agency for
Healthcare Research and Quality, 540
Gaither Rd., Rockville, MD 20850,
Phone: (301) 427–1546, Fax: (301) 427–
1238, Email:
Maushami.Desoto@AHRQ.hhs.gov.
All submissions must include a
written statement from the submitter
sroberts on DSK5SPTVN1PROD with NOTICES
SUMMARY:
VerDate Mar<15>2010
18:54 Apr 17, 2013
Jkt 229001
that it will grant AHRQ the necessary
rights to use, modify, and adapt the
submitted instruments, domains, items,
and their documentation for the
development of this survey and its
dissemination for AHRQ purposes. The
statement must also address the
instrument’s proprietary and/or
confidentiality status. In accordance
with CHIPRA’s charge to improve
pediatric quality care measures, and
consistent with AHRQ’s mandate to
disseminate research results, 42 U.S.C.
299c–3, AHRQ purposes include public
disclosure and dissemination (e.g., on
the AHRQ Web site) of AHRQ products
and the results of AHRQ-sponsored
research and activities. The written
statement must be signed by the
copyright holder or an individual
authorized to act for any holder of
copyright and/or data rights on each
submitted measure or instrument. The
authority of the signatory to provide
such authorization should be described
in the letter. If the submitted measure or
instrument is selected for further
development AHRQ will request that
the submitter execute a license granting
all of the above-referenced rights to the
Department of Health and Human
Services.
Submission Guidelines
When submitting instruments, please
include, to the extent that it is available:
—Name of the instrument;
—Copies of the full instrument, in all
languages available;
—Domains or key concepts included in
the instrument;
—Instrument reliability (internal
consistency, test-retest, etc) and
validity (content, construct, criterionrelated);
—Results of cognitive testing;
—Results of field-testing;
—Current use of the instrument (who is
using it, what it is being used for, how
instrument findings are reported, and
by whom the findings are used); and,
—Relevant peer-reviewed journal
articles or full citations.
When submitting domains, please
include, to the extent available:
—Detailed descriptions of question
domain and specific purpose;
—Sample questions, in all languages
available; and,
—Relevant peer-reviewed journal
articles or full citations.
For all submissions, please also
include:
A brief cover letter summarizing the
information requested above for
submitted instruments and domains,
respectively;
PO 00000
Frm 00057
Fmt 4703
Sfmt 4703
Complete information about the
person submitting the material,
including:
(a) Name;
(b) Title;
(c) Organization;
(d) Mailing address;
(e) Telephone number;
(f) Email address; and,
(g) A written statement of intent that
the submitter will grant to AHRQ the
necessary rights to use, modify, and
adapt the submitted instruments, items,
and their supporting documentation for
the development of the survey and its
dissemination for AHRQ purposes, as
described above.
FOR FURTHER INFORMATION CONTACT:
Maushami DeSoto, M.Sc., Ph.D., MHA.
SUPPLEMENTARY INFORMATION: Section
401(a) of the Children’s Health
Insurance Program Reauthorization Act
of 2009 (CHIPRA), Public Law 111–3,
amended the Social Security Act (the
Act) to enact section 1139A (42 U.S.C.
1320b-9a). Since the law was passed,
the Agency for Healthcare Research and
Quality (AHRQ) and the Centers for
Medicare & Medicaid Services (CMS)
have been working together to
implement selected provisions of the
legislation related to children’s health
care quality. Section 1139A(b) of the Act
charged the Department of Health and
Human Services with improving
pediatric health care quality measures.
To implement the law, AHRQ and CMS
have established the CHIPRA Pediatric
Quality Measures Program (PQMP),
which is designed to enhance select
pediatric quality measures and develop
new measures as needed.
The information sought in this Notice
is being collected pursuant to the needs
of the Children’s Hospital Boston Center
of Excellence for Pediatric Quality
Measurement (CEPQM). It is one of the
seven CHIPRA Pediatric Quality
Measures Program (PQMP) Centers of
Excellence and has been assigned the
task of developing measures to assess
aspects of the transition from childfocused to adult-focused care in young
adults with chronic health conditions.
To thoroughly carry out this task, the
Center needs to identify and assess
instruments or domains which already
exist on this subject. Such measures will
be considered in the development of a
standardized instrument for voluntary
public reporting by State Medicaid and
CHIP programs and used by providers,
consumers, other public and private
purchasers, and others.
Existing instruments or domains
submitted should capture adolescents’
experiences with their health care,
including the transition from pediatric
E:\FR\FM\18APN1.SGM
18APN1
Federal Register / Vol. 78, No. 75 / Thursday, April 18, 2013 / Notices
to adult health care (for example,
preparation readiness or evaluation of
transfer). The survey development team
is looking for items for which young
adults or their parent proxies are
generally the best or only judge; for
example, the young adult or parent
proxy can best say if the provider spent
sufficient time with them or explained
things in ways they could understand.
Existing instruments that have been
tested should have a high degree of
reliability and validity; and evidence of
wide use will be helpful.
Dated: April 8, 2013.
Carolyn M. Clancy,
AHRQ Director.
[FR Doc. 2013–08937 Filed 4–17–13; 8:45 am]
BILLING CODE 4160–90–M
DEPARTMENT OF HEALTH AND
HUMAN SERVICES
Agency for Healthcare Research and
Quality
Solicitation for Nominations for
Members of the U.S. Preventive
Services Task Force (USPSTF)
Agency for Healthcare Research
and Quality (AHRQ), HHS.
ACTION: Solicits nominations for new
members of USPSTF.
AGENCY:
The Agency for Healthcare
Research and Quality (AHRQ) invites
nominations of individuals qualified to
serve as members of the U.S. Preventive
Services Task Force (USPSTF).
DATES: All nominations submitted in
writing or electronically will be
considered for appointment to the
USPSTF. Nominations must be received
by May 15th of a given year to be
considered for appointment to begin in
January of the following year.
SUMMARY:
sroberts on DSK5SPTVN1PROD with NOTICES
Arrangement for Public Inspection
Nominations and applications are
kept on file at the Center for Primary
Care, Prevention, and Clinical
Partnerships, AHRQ, and are available
for review during business hours. AHRQ
does not reply to individual
nominations, but considers all
nominations in selecting members.
Information regarded as private and
personal, such as a nominee’s social
security number, home and email
addresses, home telephone and fax
numbers, or names of family members
will not be disclosed to the public (in
accord with the Freedom of Information
Act, 5 U.S.C. 552(b)(6); 45 CFR 5.67).
ADDRESSES: Submit your responses
either in writing or electronically to:
VerDate Mar<15>2010
18:54 Apr 17, 2013
Jkt 229001
Robert Cosby, ATTN: USPSTF
Nominations, Center for Primary Care,
Prevention, and Clinical Partnerships,
Agency for Healthcare Research and
Quality, 540 Gaither Road, Rockville,
Maryland 20850, USPSTFmember
nominations@ahrq.hhs.gov.
Nomination Submissions
Nominations may be submitted in
writing or electronically, but must
include:
(1) The applicant’s current curriculum
vitae and contact information, including
mailing address, email address, and
telephone number, and
(2) a letter explaining how this
individual meets the qualification
requirements and how he/she would
contribute to the USPSTF. The letter
should also attest to the nominee’s
willingness to serve as a member of the
USPSTF.
AHRQ will later ask persons under
serious consideration for USPSTF
membership to provide detailed
information that will permit evaluation
of possible significant conflicts of
interest. Such information will concern
matters such as financial holdings,
consultancies, and research grants or
contracts.
Nominee Selection
Appointments to the USPSTF will be
made on the basis of qualifications as
outlined below (see Qualification
Requirements) and the current expertise
needs of the USPSTF.
FOR FURTHER INFORMATION CONTACT:
Robert Cosby at USPSTFmember
nominations@ahrq.hhs.gov.
SUPPLEMENTARY INFORMATION:
Background
Under Title IX of the Public Health
Service Act, AHRQ is charged with
enhancing the quality, appropriateness,
and effectiveness of health care services
and access to such services. 42 U.S.C.
299(b). AHRQ accomplishes these goals
through scientific research and
promotion of improvements in clinical
practice, including clinical prevention
of diseases and other health conditions,
and improvements in the organization,
financing, and delivery of health care
services. See 42 U.S.C. 299(b).
The USPSTF, an independent body of
experts in prevention and evidencebased medicine, works to improve the
health of all Americans by making
evidence-based recommendations about
the effectiveness of clinical preventive
services and health promotion. The
recommendations made by the USPSTF
address clinical preventive services for
adults and children, and include
PO 00000
Frm 00058
Fmt 4703
Sfmt 4703
23261
screening tests, counseling services, and
preventive medications.
The USPSTF was first established in
1984 under the auspices of the U.S.
Public Health Service. Currently, the
USPSTF is convened by the Director of
AHRQ, and AHRQ provides ongoing
administrative, research and technical
support for the USPSTF’s operation.
USPSTF members serve for four year
terms. New members are selected each
year to replace those members who are
completing their appointments.
The USPSTF is charged with
rigorously evaluating the effectiveness,
cost-effectiveness and appropriateness
of clinical preventive services and
formulating or updating
recommendations regarding the
appropriate provision of preventive
services. See 42 U.S.C. 299b–4(a)(1).
AHRQ is charged with supporting the
dissemination of USPSTF
recommendations. In addition to hard
copy materials (that may be obtained
from the AHRQ Publications
Clearinghouse), current USPSTF
recommendations and associated
evidence reviews are available on the
Internet (www.uspreventiveservices
taskforce.org).
USPSTF members meet three times a
year for two days in the Washington, DC
area. A significant portion of the
USPSTF’s work occurs between
meetings during conference calls and
via email discussions. Member duties
include prioritizing topics, designing
research plans, reviewing and
commenting on systematic evidence
reviews of evidence, discussing and
making recommendations on
preventive-services, reviewing
stakeholder comments, drafting final
recommendation documents, and
participating in workgroups on specific
topics and methods. Members can
expect to receive frequent emails, can
expect to participate in multiple
conference calls each month, and can
expect to have periodic interaction with
stakeholders. AHRQ estimates that
members devote approximately 200
hours a year outside of in-person
meetings to their USPSTF duties. The
members are all volunteers and do not
receive any compensation beyond
support for travel to in person meetings.
Nominated individuals will be
selected for the USPSTF on the basis of
their qualifications (in particular, those
that address the required qualifications,
outlined below) and the current
expertise needs of the USPSTF. It is
anticipated that three to four
individuals will be invited to serve on
the USPSTF beginning in January 2014.
All individuals will be considered;
however, strongest consideration will be
E:\FR\FM\18APN1.SGM
18APN1
]]>Agencies
[Federal Register Volume 78, Number 75 (Thursday, April 18, 2013)]
[Notices]
[Pages 23260-23261]
From the Federal Register Online via the Government Printing Office [www.gpo.gov]
[FR Doc No: 2013-08937]
[[Page 23260]]
-----------------------------------------------------------------------
DEPARTMENT OF HEALTH AND HUMAN SERVICES
Agency for Healthcare Research and Quality
Request for Measures and Domains To Use in Development of a
Standardized Instrument for Use in Public Reporting of the Quality of
Transition From Child-focused to Adult-focused Care in Young Adults
With Chronic Conditions
AGENCY: Agency for Healthcare Research and Quality (AHRQ), HHS.
ACTION: Notice of request for measures and domains.
-----------------------------------------------------------------------
SUMMARY: Section 401(a) of the Children's Health Insurance Program
Reauthorization Act of 2009 (CHIPRA), Public Law 111-3, amended the
Social Security Act (the Act) to enact section 1139A (42 U.S.C. 1320b-
9a). Section 1139A(b) charged the Department of Health and Human
Services with improving pediatric health care quality measures. The
Agency for Healthcare Research and Quality (AHRQ) is requesting the
submission of instruments or domains (for example, key concepts)
measuring aspects of the transition from child-focused to adult-focused
care in young adults with chronic health conditions from all
researchers, vendors, hospitals, stakeholders, and other interested
parties. AHRQ is interested in instruments and items through which
young adults or parent proxies may assess experiences they have with
the health care system, including the transition from pediatric to
adult health care. The goal is to develop a standardized instrument for
use in assessing the quality of transition from child-focused to adult-
focused care in young adults with chronic health conditions.
DATES: Please submit materials May 20, 2013. AHRQ will not respond to
individual submissions, but will consider all suggestions.
ADDRESSES: Electronic submissions are encouraged, preferably as an
email with an electronic file in a standard word processing format as
an email attachment. Submissions may also be in the form of a letter
to: Maushami DeSoto, M.Sc., Ph.D., MHA. Office of Extramural Research,
Education and Priority Populations, Agency for Healthcare Research and
Quality, 540 Gaither Rd., Rockville, MD 20850, Phone: (301) 427-1546,
Fax: (301) 427-1238, Email: Maushami.Desoto@AHRQ.hhs.gov.
All submissions must include a written statement from the submitter
that it will grant AHRQ the necessary rights to use, modify, and adapt
the submitted instruments, domains, items, and their documentation for
the development of this survey and its dissemination for AHRQ purposes.
The statement must also address the instrument's proprietary and/or
confidentiality status. In accordance with CHIPRA's charge to improve
pediatric quality care measures, and consistent with AHRQ's mandate to
disseminate research results, 42 U.S.C. 299c-3, AHRQ purposes include
public disclosure and dissemination (e.g., on the AHRQ Web site) of
AHRQ products and the results of AHRQ-sponsored research and
activities. The written statement must be signed by the copyright
holder or an individual authorized to act for any holder of copyright
and/or data rights on each submitted measure or instrument. The
authority of the signatory to provide such authorization should be
described in the letter. If the submitted measure or instrument is
selected for further development AHRQ will request that the submitter
execute a license granting all of the above-referenced rights to the
Department of Health and Human Services.
Submission Guidelines
When submitting instruments, please include, to the extent that it
is available:
--Name of the instrument;
--Copies of the full instrument, in all languages available;
--Domains or key concepts included in the instrument;
--Instrument reliability (internal consistency, test-retest, etc) and
validity (content, construct, criterion-related);
--Results of cognitive testing;
--Results of field-testing;
--Current use of the instrument (who is using it, what it is being used
for, how instrument findings are reported, and by whom the findings are
used); and,
--Relevant peer-reviewed journal articles or full citations.
When submitting domains, please include, to the extent available:
--Detailed descriptions of question domain and specific purpose;
--Sample questions, in all languages available; and,
--Relevant peer-reviewed journal articles or full citations.
For all submissions, please also include:
A brief cover letter summarizing the information requested above
for submitted instruments and domains, respectively;
Complete information about the person submitting the material,
including:
(a) Name;
(b) Title;
(c) Organization;
(d) Mailing address;
(e) Telephone number;
(f) Email address; and,
(g) A written statement of intent that the submitter will grant to
AHRQ the necessary rights to use, modify, and adapt the submitted
instruments, items, and their supporting documentation for the
development of the survey and its dissemination for AHRQ purposes, as
described above.
FOR FURTHER INFORMATION CONTACT: Maushami DeSoto, M.Sc., Ph.D., MHA.
SUPPLEMENTARY INFORMATION: Section 401(a) of the Children's Health
Insurance Program Reauthorization Act of 2009 (CHIPRA), Public Law 111-
3, amended the Social Security Act (the Act) to enact section 1139A (42
U.S.C. 1320b-9a). Since the law was passed, the Agency for Healthcare
Research and Quality (AHRQ) and the Centers for Medicare & Medicaid
Services (CMS) have been working together to implement selected
provisions of the legislation related to children's health care
quality. Section 1139A(b) of the Act charged the Department of Health
and Human Services with improving pediatric health care quality
measures. To implement the law, AHRQ and CMS have established the
CHIPRA Pediatric Quality Measures Program (PQMP), which is designed to
enhance select pediatric quality measures and develop new measures as
needed.
The information sought in this Notice is being collected pursuant
to the needs of the Children's Hospital Boston Center of Excellence for
Pediatric Quality Measurement (CEPQM). It is one of the seven CHIPRA
Pediatric Quality Measures Program (PQMP) Centers of Excellence and has
been assigned the task of developing measures to assess aspects of the
transition from child-focused to adult-focused care in young adults
with chronic health conditions. To thoroughly carry out this task, the
Center needs to identify and assess instruments or domains which
already exist on this subject. Such measures will be considered in the
development of a standardized instrument for voluntary public reporting
by State Medicaid and CHIP programs and used by providers, consumers,
other public and private purchasers, and others.
Existing instruments or domains submitted should capture
adolescents' experiences with their health care, including the
transition from pediatric
[[Page 23261]]
to adult health care (for example, preparation readiness or evaluation
of transfer). The survey development team is looking for items for
which young adults or their parent proxies are generally the best or
only judge; for example, the young adult or parent proxy can best say
if the provider spent sufficient time with them or explained things in
ways they could understand. Existing instruments that have been tested
should have a high degree of reliability and validity; and evidence of
wide use will be helpful.
Dated: April 8, 2013.
Carolyn M. Clancy,
AHRQ Director.
[FR Doc. 2013-08937 Filed 4-17-13; 8:45 am]
BILLING CODE 4160-90-M
