Request for Information on Development of an Inventory of Comparative Effectiveness Research, 41867-41868 [2010-17244]
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Federal Register / Vol. 75, No. 137 / Monday, July 19, 2010 / Notices
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[FR Doc. 2010–17588 Filed 7–15–10; 11:15 am]
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DEPARTMENT OF HEALTH AND
HUMAN SERVICES
Request for Information on
Development of an Inventory of
Comparative Effectiveness Research
jlentini on DSKJ8SOYB1PROD with NOTICES
AGENCY: Office of the Assistant
Secretary for Planning and Evaluation.
ACTION: Request for Information.
SUMMARY: The Office of the Assistant
Secretary for Planning Evaluation
(ASPE) is developing a national
inventory of comparative effectiveness
research (CER) and CER-related
information. This initiative is driven by
the American Recovery and
VerDate Mar<15>2010
17:49 Jul 16, 2010
Jkt 220001
Reinvestment Act of 2009 (ARRA)
which provided $1.1 billion for research
and development in the area of CER.
ARRA allocated $400 million to the
Office of the Secretary (OS) in the U.S.
Department of Health and Human
Services (HHS), $400 million to the
National Institutes of Health (NIH), and
$300 million to the Agency for
Healthcare Research and Quality. ARRA
also established the Federal
Coordinating Council for CER, which,
after significant public input, developed
a strategic framework and recommended
high-level priorities for OS funds. While
the FCC’s Report to Congress drew on
an initial CER inventory focused on
federal investments, the process of
cataloguing CER activities and
infrastructure will be critical to tracking
ongoing and future investments in CER.
An important component of this effort is
creating an inventory of CER to ensure
that patients, clinicians, and other
decision makers can identify and locate
relevant CER in a timely manner.
ASPE seeks input on approaches to
developing a CER Inventory that capture
ongoing and existing CER in the United
States. This inventory will be accessible
to the public, including patients,
clinicians, and policymakers, through a
web-based system. Comments should
focus on appropriate resources and
approaches for developing the CER
Inventory, rather than the methodology
of CER or suggestions for particular CER
studies that should be included in the
CER Inventory. Requested information
includes suggestions regarding sources
of CER and ways to encourage
participation in the inventory;
comments related to categorizing
content; and approaches to ensure the
CER Inventory is useful and sustainable
over time.
DATES: Submit comments by 11:59 p.m.
Eastern Time on August 9, 2010.
ADDRESSES: Written or electronic
comments should be submitted to HHS
as directed below.
Comments should be identified by
referring to the ‘‘CER Inventory’’, and
may be submitted to the Department of
HHS by one of the following methods:
• Federal eRulemaking Portal: https://
www.regulations.gov. Follow the
instructions for submitting comments.
• Mail: Written comments (one
original and two copies) may be mailed
to: Department of Health and Human
Services, Attention: CER Inventory,
Hubert H. Humphrey Building, Room
447–D, 200 Independence Avenue, SW.,
Washington, DC 20201.
• Hand or courier delivery:
Comments may be delivered to Room
447–D, Department of Health and
Human Services, Attention: CER
PO 00000
Frm 00075
Fmt 4703
Sfmt 4703
41867
Inventory, Hubert H. Humphrey
Building, Room 447–D, 200
Independence Avenue, SW., and
Washington, DC 20201. Because access
to the interior of the HHH Building is
not readily available to persons without
Federal Government identification,
commenters are encouraged to leave
their comments in the CER Inventory
drop box located in the main lobby of
the building. A stamp-in clock is
available for persons wishing to retain
proof of filing by stamping in and
retaining an extra copy of the comments
being filed.
Written submissions should be brief (no
more than three pages per submission),
and should be in the form of a letter.
Please do not submit duplicate
comments. Please do not include any
personally identifiable information
(such as name, address, or other contact
information) or confidential business
information that you do not want
publicly disclosed. Consequently,
comments should not include any
sensitive health information from
medical records or other individually
identifiable health information, or any
non-public, corporate or trade
association information, such as trade
secrets or other proprietary information.
Comments may be submitted
anonymously.
Inspection of Public Comments: All
comments received before the close of
the comment period are available for
viewing by the public, including any
personally identifiable or confidential
business information that is included in
a comment. All comments will be made
available publicly on the internet at
https://www.regulations.gov. Follow the
search instructions on that Web site to
view public comments.
FOR FURTHER INFORMATION CONTACT:
Pierre Yong, Office of the Assistant
Secretary for Planning and Evaluation,
Department of Health and Human
Services, (202) 690–8384, Pierre.Yong@
hhs.gov.
SUPPLEMENTARY INFORMATION:
I. Background
The American Recovery and
Reinvestment Act of 2009 (ARRA)
provided funding of $1.1 billion for CER
and related activities, and established
the Federal Coordinating Council for
Comparative Effectiveness Research,
which defined CER as the:
Conduct and synthesis of research
comparing the benefits and harms of different
interventions and strategies to prevent,
diagnose, treat and monitor health conditions
in ‘‘real world’’ settings. The purpose of CER
E:\FR\FM\19JYN1.SGM
19JYN1
41868
Federal Register / Vol. 75, No. 137 / Monday, July 19, 2010 / Notices
is to improve health outcomes by developing
and disseminating evidence-based
information to patients, clinicians, and other
decision-makers, responding to their
expressed needs, about which interventions
are most effective for which patients under
specific circumstances.
• To provide this information,
comparative effectiveness research must
assess a comprehensive array of healthrelated outcomes for diverse patient
populations and sub-groups.
• Defined interventions compared
may include medications, procedures,
medical and assistive devices and
technologies, diagnostic testing,
behavioral change, and delivery system
strategies.
• This research necessitates the
development, expansion, and use of a
variety of data sources and methods to
assess comparative effectiveness and
actively disseminate the results.1
The FCC Report to Congress
additionally described the criteria for
prioritization of potential CER
investments, a strategic framework for
CER activity, and high-level priority
recommendations for OS funds (https://
www.hhs.gov/recovery/programs/cer/
cerannualrpt.pdf). Because CER is
inherently multi-disciplinary, the
Department recognizes the importance
of highlighting research that informs
CER, including relevant published
literature as well as ongoing research
activity. To fulfill this goal the CER
Inventory is intended to be a living
document that will both facilitate access
to CER for interested stakeholders; and
assist in identifying priorities and gaps
for future research. The goal is to
routinize the inventory process, allow
for easy updating and identifying gaps,
and create a system that is sustainable.
Connecting users to CER information via
a publicly available, searchable online
tool is an efficient approach to
disseminating this breadth of
information.
jlentini on DSKJ8SOYB1PROD with NOTICES
II. Request for Information
The Department of HHS is inviting
public comment to aid in the
development of the content and
structure of the CER Inventory. This
notice specifically requests suggestions
for potential sources of information on
ongoing and completed CER; ways to
encourage participation in the
Inventory; approaches to categorizing
information; and ways to ensure that the
CER Inventory is useful and sustainable.
1 U.S. Department of Health and Human Services.
Federal Coordinating Council for Comparative
Effectiveness Research. Report to the President and
the Congress. June 30, 2009. https://www.hhs.gov/
recovery/programs/cer/cerannualrpt.pdf.
VerDate Mar<15>2010
16:24 Jul 16, 2010
Jkt 220001
ASPE is developing a system to
catalog CER activities including ongoing
and completed CER. The CER Inventory
will be publicly available, and will be
designed for a diverse community of
stakeholders including researchers,
policy makers, decision-makers, health
care providers, patients, and consumers.
The CER Inventory will include records
(e.g., abstracts and other summary
descriptive information) of CER and
information related to CER, including
research and resources on methods and
training for CER, data infrastructure and
databases to support CER, and methods
and approaches for translation and
dissemination of CER to help inform
healthcare decisions and policies.
The information provided in response
to this notice will be used to plan and
develop the CER Inventory in order to
ensure that it meets the needs of such
users as researchers, policy makers,
decision-makers, health care providers,
patients, and consumers. We are seeking
public comment on the following issues:
1. Sources for CER. The CER
Inventory will draw electronically on
existing sites (e.g., PubMed, HSRProj,
and Clinicaltrials.gov) and will also
permit direct entry of information.
Please identify any sources of
information, such as relevant sources of
gray literature or research databases
from private foundations, that would
help meet the goals of the CER
Inventory.
2. Encouraging participation/
submission. What incentives would
encourage the contribution of CER
research abstracts and other relevant
documents into the CER Inventory?
3. Categorization. CER projects and
resources should be categorized in a
manner that ensures that individuals
from diverse backgrounds with varying
levels of technical expertise (e.g.,
researchers, policy makers, clinicians,
and patients and consumers) can access
relevant information. How might such a
categorization scheme and approach be
designed? Please comment on the
rationale behind suggested
categorization schemes.
4. Data elements. Are there specific
types of data or information regarding
records or descriptions of CER entered
into the CER Inventory that should be
captured and available to users? Please
identify key data and information, if
any.
5. Features. Are there features of a
web-based CER Inventory that would
promote long-term use among the
intended audiences?
6. Sustainability. What approaches or
business models would provide for a
sustainable inventory over time?
PO 00000
Frm 00076
Fmt 4703
Sfmt 4703
7. Additional considerations. Are
there potential drawbacks, unintended
consequences, or other specific issues
that may limit participation in the CER
Inventory?
The information submitted in
response to this RFI will inform the
planning and development of the CER
Inventory to ensure that the resource
meets the needs of the intended users,
is accessible, and is easy to use.
Dated: July 9, 2010.
Sherry A. Glied,
Assistant Secretary for Planning and
Evaluation.
[FR Doc. 2010–17244 Filed 7–16–10; 8:45 am]
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DEPARTMENT OF HEALTH AND
HUMAN SERVICES
Health Resources and Services
Administration
Agency Information Collection
Activities: Proposed Collection:
Comment Request
In compliance with the requirement
for opportunity for public comment on
proposed data collection projects
(section 3506(c)(2)(A) of title 44, United
States Code, as amended by the
Paperwork Reduction Act of 1995, Pub.
L. 104–13), the Health Resources and
Services Administration (HRSA)
publishes periodic summaries of
proposed projects being developed for
submission to the Office of Management
and Budget (OMB) under the Paperwork
Reduction Act of 1995. To request more
information on the proposed project or
to obtain a copy of the data collection
plans and draft instruments, e-mail
paperwork@hrsa.gov or call the HRSA
Reports Clearance Officer at (301) 443–
1129.
Comments are invited on: (a) The
proposed collection of information for
the proper performance of the functions
of the agency; (b) the accuracy of the
agency’s estimate of the burden of the
proposed collection of information; (c)
ways to enhance the quality, utility, and
clarity of the information to be
collected; and (d) ways to minimize the
burden of the collection of information
on respondents, including through the
use of automated collection techniques
or other forms of information
technology.
Proposed Project: Black Lung Clinics
Program Database (OMB No. 0915–
0292)—Extension
The Office of Rural Health Policy
(ORHP), Health Resources and Services
Administration, conducts an annual
E:\FR\FM\19JYN1.SGM
19JYN1
Agencies
[Federal Register Volume 75, Number 137 (Monday, July 19, 2010)]
[Notices]
[Pages 41867-41868]
From the Federal Register Online via the Government Printing Office [www.gpo.gov]
[FR Doc No: 2010-17244]
=======================================================================
-----------------------------------------------------------------------
DEPARTMENT OF HEALTH AND HUMAN SERVICES
Request for Information on Development of an Inventory of
Comparative Effectiveness Research
AGENCY: Office of the Assistant Secretary for Planning and Evaluation.
ACTION: Request for Information.
-----------------------------------------------------------------------
SUMMARY: The Office of the Assistant Secretary for Planning Evaluation
(ASPE) is developing a national inventory of comparative effectiveness
research (CER) and CER-related information. This initiative is driven
by the American Recovery and Reinvestment Act of 2009 (ARRA) which
provided $1.1 billion for research and development in the area of CER.
ARRA allocated $400 million to the Office of the Secretary (OS) in the
U.S. Department of Health and Human Services (HHS), $400 million to the
National Institutes of Health (NIH), and $300 million to the Agency for
Healthcare Research and Quality. ARRA also established the Federal
Coordinating Council for CER, which, after significant public input,
developed a strategic framework and recommended high-level priorities
for OS funds. While the FCC's Report to Congress drew on an initial CER
inventory focused on federal investments, the process of cataloguing
CER activities and infrastructure will be critical to tracking ongoing
and future investments in CER. An important component of this effort is
creating an inventory of CER to ensure that patients, clinicians, and
other decision makers can identify and locate relevant CER in a timely
manner.
ASPE seeks input on approaches to developing a CER Inventory that
capture ongoing and existing CER in the United States. This inventory
will be accessible to the public, including patients, clinicians, and
policymakers, through a web-based system. Comments should focus on
appropriate resources and approaches for developing the CER Inventory,
rather than the methodology of CER or suggestions for particular CER
studies that should be included in the CER Inventory. Requested
information includes suggestions regarding sources of CER and ways to
encourage participation in the inventory; comments related to
categorizing content; and approaches to ensure the CER Inventory is
useful and sustainable over time.
DATES: Submit comments by 11:59 p.m. Eastern Time on August 9, 2010.
ADDRESSES: Written or electronic comments should be submitted to HHS as
directed below.
Comments should be identified by referring to the ``CER
Inventory'', and may be submitted to the Department of HHS by one of
the following methods:
Federal eRulemaking Portal: https://www.regulations.gov.
Follow the instructions for submitting comments.
Mail: Written comments (one original and two copies) may
be mailed to: Department of Health and Human Services, Attention: CER
Inventory, Hubert H. Humphrey Building, Room 447-D, 200 Independence
Avenue, SW., Washington, DC 20201.
Hand or courier delivery: Comments may be delivered to
Room 447-D, Department of Health and Human Services, Attention: CER
Inventory, Hubert H. Humphrey Building, Room 447-D, 200 Independence
Avenue, SW., and Washington, DC 20201. Because access to the interior
of the HHH Building is not readily available to persons without Federal
Government identification, commenters are encouraged to leave their
comments in the CER Inventory drop box located in the main lobby of the
building. A stamp-in clock is available for persons wishing to retain
proof of filing by stamping in and retaining an extra copy of the
comments being filed.
Written submissions should be brief (no more than three pages per
submission), and should be in the form of a letter. Please do not
submit duplicate comments. Please do not include any personally
identifiable information (such as name, address, or other contact
information) or confidential business information that you do not want
publicly disclosed. Consequently, comments should not include any
sensitive health information from medical records or other individually
identifiable health information, or any non-public, corporate or trade
association information, such as trade secrets or other proprietary
information. Comments may be submitted anonymously.
Inspection of Public Comments: All comments received before the
close of the comment period are available for viewing by the public,
including any personally identifiable or confidential business
information that is included in a comment. All comments will be made
available publicly on the internet at https://www.regulations.gov.
Follow the search instructions on that Web site to view public
comments.
FOR FURTHER INFORMATION CONTACT: Pierre Yong, Office of the Assistant
Secretary for Planning and Evaluation, Department of Health and Human
Services, (202) 690-8384, Pierre.Yong@hhs.gov.
SUPPLEMENTARY INFORMATION:
I. Background
The American Recovery and Reinvestment Act of 2009 (ARRA) provided
funding of $1.1 billion for CER and related activities, and established
the Federal Coordinating Council for Comparative Effectiveness
Research, which defined CER as the:
Conduct and synthesis of research comparing the benefits and
harms of different interventions and strategies to prevent,
diagnose, treat and monitor health conditions in ``real world''
settings. The purpose of CER
[[Page 41868]]
is to improve health outcomes by developing and disseminating
evidence-based information to patients, clinicians, and other
decision-makers, responding to their expressed needs, about which
interventions are most effective for which patients under specific
circumstances.
To provide this information, comparative effectiveness
research must assess a comprehensive array of health-related outcomes
for diverse patient populations and sub-groups.
Defined interventions compared may include medications,
procedures, medical and assistive devices and technologies, diagnostic
testing, behavioral change, and delivery system strategies.
This research necessitates the development, expansion, and
use of a variety of data sources and methods to assess comparative
effectiveness and actively disseminate the results.\1\
---------------------------------------------------------------------------
\1\ U.S. Department of Health and Human Services. Federal
Coordinating Council for Comparative Effectiveness Research. Report
to the President and the Congress. June 30, 2009. https://www.hhs.gov/recovery/programs/cer/cerannualrpt.pdf.
---------------------------------------------------------------------------
The FCC Report to Congress additionally described the criteria for
prioritization of potential CER investments, a strategic framework for
CER activity, and high-level priority recommendations for OS funds
(https://www.hhs.gov/recovery/programs/cer/cerannualrpt.pdf). Because
CER is inherently multi-disciplinary, the Department recognizes the
importance of highlighting research that informs CER, including
relevant published literature as well as ongoing research activity. To
fulfill this goal the CER Inventory is intended to be a living document
that will both facilitate access to CER for interested stakeholders;
and assist in identifying priorities and gaps for future research. The
goal is to routinize the inventory process, allow for easy updating and
identifying gaps, and create a system that is sustainable. Connecting
users to CER information via a publicly available, searchable online
tool is an efficient approach to disseminating this breadth of
information.
II. Request for Information
The Department of HHS is inviting public comment to aid in the
development of the content and structure of the CER Inventory. This
notice specifically requests suggestions for potential sources of
information on ongoing and completed CER; ways to encourage
participation in the Inventory; approaches to categorizing information;
and ways to ensure that the CER Inventory is useful and sustainable.
ASPE is developing a system to catalog CER activities including
ongoing and completed CER. The CER Inventory will be publicly
available, and will be designed for a diverse community of stakeholders
including researchers, policy makers, decision-makers, health care
providers, patients, and consumers. The CER Inventory will include
records (e.g., abstracts and other summary descriptive information) of
CER and information related to CER, including research and resources on
methods and training for CER, data infrastructure and databases to
support CER, and methods and approaches for translation and
dissemination of CER to help inform healthcare decisions and policies.
The information provided in response to this notice will be used to
plan and develop the CER Inventory in order to ensure that it meets the
needs of such users as researchers, policy makers, decision-makers,
health care providers, patients, and consumers. We are seeking public
comment on the following issues:
1. Sources for CER. The CER Inventory will draw electronically on
existing sites (e.g., PubMed, HSRProj, and Clinicaltrials.gov) and will
also permit direct entry of information. Please identify any sources of
information, such as relevant sources of gray literature or research
databases from private foundations, that would help meet the goals of
the CER Inventory.
2. Encouraging participation/submission. What incentives would
encourage the contribution of CER research abstracts and other relevant
documents into the CER Inventory?
3. Categorization. CER projects and resources should be categorized
in a manner that ensures that individuals from diverse backgrounds with
varying levels of technical expertise (e.g., researchers, policy
makers, clinicians, and patients and consumers) can access relevant
information. How might such a categorization scheme and approach be
designed? Please comment on the rationale behind suggested
categorization schemes.
4. Data elements. Are there specific types of data or information
regarding records or descriptions of CER entered into the CER Inventory
that should be captured and available to users? Please identify key
data and information, if any.
5. Features. Are there features of a web-based CER Inventory that
would promote long-term use among the intended audiences?
6. Sustainability. What approaches or business models would provide
for a sustainable inventory over time?
7. Additional considerations. Are there potential drawbacks,
unintended consequences, or other specific issues that may limit
participation in the CER Inventory?
The information submitted in response to this RFI will inform the
planning and development of the CER Inventory to ensure that the
resource meets the needs of the intended users, is accessible, and is
easy to use.
Dated: July 9, 2010.
Sherry A. Glied,
Assistant Secretary for Planning and Evaluation.
[FR Doc. 2010-17244 Filed 7-16-10; 8:45 am]
BILLING CODE 4154-05-P