Notice of Meeting: Secretary's Advisory Committee on Genetics, Health, and Society, 41446 [E9-19583]

Download as PDF 41446 Federal Register / Vol. 74, No. 157 / Monday, August 17, 2009 / Notices DEPARTMENT OF HEALTH AND HUMAN SERVICES National Institutes of Health mstockstill on DSKH9S0YB1PROD with NOTICES Notice of Meeting: Secretary’s Advisory Committee on Genetics, Health, and Society Pursuant to Public Law 92–463, notice is hereby given of the twentieth meeting of the Secretary’s Advisory Committee on Genetics, Health, and Society (SACGHS), U.S. Public Health Service. The meeting will be held from 8:30 a.m. to approximately 6 p.m. on Thursday, October 8, 2009, and from 8 a.m. to approximately 3:30 p.m. on Friday, October 9, 2009, at the Hubert H. Humphrey Building, 200 Independence Avenue, SW., Washington, DC 20201. The meeting will be open to the public with attendance limited to space available. The meeting also will be Web cast. The main agenda items involve the review of three SACGHS draft reports: a final draft report and its recommendations on gene patents and licensing practices along with comments received on the public consultation draft circulated earlier this year; a public consultation draft report on genetics education and training; and a revised draft paper on direct-toconsumer genetic testing. The first day of the meeting will include an extended period of time for interested members of the public to provide their perspectives on gene patents and licensing practices and their effect on patient access to genetic tests. Members of the public are encouraged to contact the SACGHS Executive Secretary (see below) by September 15, 2009, if they wish to participate in this extended public comment period. Other agenda items include an update on regulations implementing the Genetic Information Nondiscrimination Act, a report on activities of the Clinical Utility and Comparative Effectiveness Task Force, and a brief discussion to initiate the Committee’s work on ethical issues related to genomic data sharing. As always, the Committee welcomes hearing from anyone wishing to provide public comment on any issue related to genetics, health and society. Individuals who would like to provide public comment should notify the SACGHS Executive Secretary, Ms. Sarah Carr, by telephone at 301–496–9838 or e-mail at carrs@od.nih.gov. The SACGHS office is located at 6705 Rockledge Drive, Suite 750, Bethesda, MD 20892. Anyone planning to attend the meeting who needs special assistance, such as sign language interpretation or other VerDate Nov<24>2008 17:55 Aug 14, 2009 Jkt 217001 reasonable accommodations, is also asked to contact the Executive Secretary. Under authority of 42 U.S.C. 217a, Section 222 of the Public Health Service Act, as amended, the Department of Health and Human Services established SACGHS to serve as a public forum for deliberations on the broad range of human health and societal issues raised by the development and use of genetic and genomic technologies and, as warranted, to provide advice on these issues. The draft meeting agenda and other information about SACGHS, including information about access to the Web cast, will be available at the following Web site: https:// oba.od.nih.gov/SACGHS/ sacghs_meetings.html. Dated: August 10, 2009. Jennifer Spaeth, Director, NIH Office of Federal Advisory Committee Policy. [FR Doc. E9–19583 Filed 8–14–09; 8:45 am] BILLING CODE 4140–01–P DEPARTMENT OF HEALTH AND HUMAN SERVICES National Institutes of Health National Institute of Neurological Disorders and Stroke; Notice of Meeting Pursuant to section 10(d) of the Federal Advisory Committee Act, as amended (5 U.S.C. App.), notice is hereby given of a meeting of the National Advisory Neurological Disorders and Stroke Council. The meeting will be open to the public as indicated below, with attendance limited to space available. Individuals who plan to attend and need special assistance, such as sign language interpretation or other reasonable accommodations, should notify the Contact Person listed below in advance of the meeting. The meeting will be closed to the public in accordance with the provisions set forth in sections 552b(c)(4) and 552b(c)(6), Title 5 U.S.C., as amended. The grant applications and the discussions could disclose confidential trade secrets or commercial property such as patentable material, and personal information concerning individuals associated with the grant applications, the disclosure of which would constitute a clearly unwarranted invasion of personal privacy. Name of Committee: National Advisory Neurological Disorders and Stroke Council. Date: September 17–18, 2009. PO 00000 Frm 00081 Fmt 4703 Sfmt 4703 Open: September 17, 2009, 10:30 a.m. to 5:00 p.m. Agenda: Report by the Director, NINDS; Report by the Associate Director for Extramural Research and other Administrative and Program Developments. Place: National Institutes of Health, Building 31, 31 Center Drive, C Wing, Conference Room 10, Bethesda, MD 20892. Closed: September 18, 2009, 8 a.m. to 11:30 a.m. Agenda: To review and evaluate grant applications. Place: National Institutes of Health, Building 31, 31 Center Drive, C Wing, Conference Room 10, Bethesda, MD 20892. Contact Person: Robert Finkelstein, PhD, Associate Director for Extramural Research, National Institute of Neurological Disorders and Stroke, NIH, 6001 Executive Blvd., Suite 3309, MSC 9531, Bethesda, MD 20892, (301) 496–9248. Any interested person may file written comments with the committee by forwarding the statement to the Contact Person listed on this notice. The statement should include the name, address, telephone number and when applicable, the business or professional affiliation of the interested person. In the interest of security, NIH has instituted stringent procedures for entrance onto the NIH campus. All visitor vehicles, including taxicabs, hotel, and airport shuttles will be inspected before being allowed on campus. Visitors will be asked to show one form of identification (for example, a government-issued photo ID, driver’s license, or passport) and to state the purpose of their visit. Information is also available on the Institute’s/Center’s home page: https:// www.ninds.nih.gov, where an agenda and any additional information for the meeting will be posted when available. (Catalogue of Federal Domestic Assistance Program Nos. 93.853, Clinical Research Related to Neurological Disorders; 93.854, Biological Basis Research in the Neurosciences, National Institutes of Health, HHS) Dated: August 10, 2009. Jennifer Spaeth, Director, Office of Federal Advisory Committee Policy. [FR Doc. E9–19578 Filed 8–14–09; 8:45 am] BILLING CODE 4140–01–P DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention Subcommittee for Dose Reconstruction Reviews (SDRR), Advisory Board on Radiation and Worker Health (ABRWH), National Institute for Occupational Safety and Health (NIOSH) In accordance with section 10(a)(2) of the Federal Advisory Committee Act (Pub. L. 92–463), the Centers for Disease E:\FR\FM\17AUN1.SGM 17AUN1

Agencies

[Federal Register Volume 74, Number 157 (Monday, August 17, 2009)]
[Notices]
[Page 41446]
From the Federal Register Online via the Government Printing Office [www.gpo.gov]
[FR Doc No: E9-19583]



[[Page 41446]]

-----------------------------------------------------------------------

DEPARTMENT OF HEALTH AND HUMAN SERVICES

National Institutes of Health


Notice of Meeting: Secretary's Advisory Committee on Genetics, 
Health, and Society

    Pursuant to Public Law 92-463, notice is hereby given of the 
twentieth meeting of the Secretary's Advisory Committee on Genetics, 
Health, and Society (SACGHS), U.S. Public Health Service. The meeting 
will be held from 8:30 a.m. to approximately 6 p.m. on Thursday, 
October 8, 2009, and from 8 a.m. to approximately 3:30 p.m. on Friday, 
October 9, 2009, at the Hubert H. Humphrey Building, 200 Independence 
Avenue, SW., Washington, DC 20201. The meeting will be open to the 
public with attendance limited to space available. The meeting also 
will be Web cast.
    The main agenda items involve the review of three SACGHS draft 
reports: a final draft report and its recommendations on gene patents 
and licensing practices along with comments received on the public 
consultation draft circulated earlier this year; a public consultation 
draft report on genetics education and training; and a revised draft 
paper on direct-to-consumer genetic testing. The first day of the 
meeting will include an extended period of time for interested members 
of the public to provide their perspectives on gene patents and 
licensing practices and their effect on patient access to genetic 
tests. Members of the public are encouraged to contact the SACGHS 
Executive Secretary (see below) by September 15, 2009, if they wish to 
participate in this extended public comment period. Other agenda items 
include an update on regulations implementing the Genetic Information 
Nondiscrimination Act, a report on activities of the Clinical Utility 
and Comparative Effectiveness Task Force, and a brief discussion to 
initiate the Committee's work on ethical issues related to genomic data 
sharing.
    As always, the Committee welcomes hearing from anyone wishing to 
provide public comment on any issue related to genetics, health and 
society. Individuals who would like to provide public comment should 
notify the SACGHS Executive Secretary, Ms. Sarah Carr, by telephone at 
301-496-9838 or e-mail at carrs@od.nih.gov. The SACGHS office is 
located at 6705 Rockledge Drive, Suite 750, Bethesda, MD 20892. Anyone 
planning to attend the meeting who needs special assistance, such as 
sign language interpretation or other reasonable accommodations, is 
also asked to contact the Executive Secretary.
    Under authority of 42 U.S.C. 217a, Section 222 of the Public Health 
Service Act, as amended, the Department of Health and Human Services 
established SACGHS to serve as a public forum for deliberations on the 
broad range of human health and societal issues raised by the 
development and use of genetic and genomic technologies and, as 
warranted, to provide advice on these issues. The draft meeting agenda 
and other information about SACGHS, including information about access 
to the Web cast, will be available at the following Web site: https://oba.od.nih.gov/SACGHS/sacghs_meetings.html.

    Dated: August 10, 2009.
Jennifer Spaeth,
Director, NIH Office of Federal Advisory Committee Policy.
[FR Doc. E9-19583 Filed 8-14-09; 8:45 am]
BILLING CODE 4140-01-P
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.