NIH State-of-the-Science Conference: Family History and Improving Health; Notice, 32948-32949 [E9-16191]

Download as PDF 32948 Federal Register / Vol. 74, No. 130 / Thursday, July 9, 2009 / Notices Suite 2C212, Bethesda, MD 20814, (Telephone Conference Call). Contact Person: Bita Nakhai, PhD, Scientific Review Officer, Scientific Review Branch, National Institute on Aging, Gateway Bldg., 2C212, 7201 Wisconsin Avenue, Bethesda, MD 20814, 301–402–7701, nakhaib@nia.nih.gov. This notice is being published less than 15 days prior to the meeting due to the timing limitations imposed by the review and funding cycle. (Catalogue of Federal Domestic Assistance Program Nos. 93.866, Aging Research; 93.701, ARRA Related Biomedical Research and Research Support Awards., National Institutes of Health, HHS) Dated: July 2, 2009. Jennifer Spaeth, Director, Office of Federal Advisory Committee Policy. [FR Doc. E9–16201 Filed 7–8–09; 8:45 am] BILLING CODE 4140–01–P DEPARTMENT OF HEALTH AND HUMAN SERVICES National Institutes of Health Center for Scientific Review; Notice of Closed Meetings rmajette on DSK29S0YB1 with NOTICES Pursuant to section 10(d) of the Federal Advisory Committee Act, as amended (5 U.S.C. App.), notice is hereby given of the following meetings. The meetings will be closed to the public in accordance with the provisions set forth in sections 552b(c)(4) and 552b(c)(6), Title 5 U.S.C., as amended. The grant applications and the discussions could disclose confidential trade secrets or commercial property such as patentable material, and personal information concerning individuals associated with the grant applications, the disclosure of which would constitute a clearly unwarranted invasion of personal privacy. Name of Committee: Center for Scientific Review Special Emphasis Panel; Small Business: Orthopaedics and Skeletal Biology. Date: July 13, 2009. Time: 8 a.m. to 3:30 p.m. Agenda: To review and evaluate grant applications. Place: Doubletree Hotel Washington, DC, 1515 Rhode Island Avenue, NW., Washington, DC 20005. Contact Person: John P. Holden, PhD, Scientific Review Officer, Center for Scientific Review, National Institutes of Health, 6701 Rockledge Drive, Room 4211, MSC 7814, Bethesda, MD 20892, 301–496– 8551. holdenjo@csr.nih.gov. This notice is being published less than 15 days prior to the meeting due to the timing limitations imposed by the review and funding cycle. Name of Committee: Center for Scientific Review Special Emphasis Panel; VerDate Nov<24>2008 15:49 Jul 08, 2009 Jkt 217001 Computational Modeling and Sciences for Biomedical and Clinical Applications. Date: July 13, 2009. Time: 8 a.m. to 5 p.m. Agenda: To review and evaluate grant applications. Place: Hyatt Regency Bethesda, One Bethesda Metro Center, 7400 Wisconsin Avenue, Bethesda, MD 20814. Contact Person: Guo Feng Xu, PhD, Scientific Review Officer, Center for Scientific Review, National Institutes of Health, 6701 Rockledge Drive, Room 5122, MSC 7854, Bethesda, MD 20892, 301–435– 1032. xuguofen@csr.nih.gov. This notice is being published less than 15 days prior to the meeting due to the timing limitations imposed by the review and funding cycle. Name of Committee: Center for Scientific Review Special Emphasis Panel; Orthopaedic Small Business ARRA. Date: July 13, 2009. Time: 3:30 p.m. to 5 p.m. Agenda: To review and evaluate grant applications. Place: Doubletree Hotel Washington, DC, 1515 Rhode Island Avenue, NW., Washington, DC 20005. Contact Person: John P. Holden, PhD, Scientific Review Officer, Center for Scientific Review, National Institutes of Health, 6701 Rockledge Drive, Room 4211, MSC 7814, Bethesda, MD 20892, 301–496– 8551, holdenjo@csr.nih.gov. This notice is being published less than 15 days prior to the meeting due to the timing limitations imposed by the review and funding cycle. Name of Committee: Center for Scientific Review Special Emphasis Panel; ZRG1 DKUS F 04 Member Conflict. Date: July 14, 2009. Time: 4 p.m. to 5 p.m. Agenda: To review and evaluate grant applications. Place: National Institutes of Health, 6701 Rockledge Drive, Bethesda, MD 20892, (Telephone Conference Call). Contact Person: Rass M. Shayiq, PhD, Scientific Review Officer, Center for Scientific Review, National Institutes of Health, 6701 Rockledge Drive, Room 2182, MSC 7818, Bethesda, MD 20892, (301) 435– 2359, shayiqr@csr.nih.gov. This notice is being published less than 15 days prior to the meeting due to the timing limitations imposed by the review and funding cycle. (Catalogue of Federal Domestic Assistance Program Nos. 93.306, Comparative Medicine; 93.333, Clinical Research, 93.306, 93.333, 93.337, 93.393–93.396, 93.837–93.844, 93.846–93.878, 93.892, 93.893, National Institutes of Health, HHS) Dated: July 1, 2009. Jennifer Spaeth, Director, Office of Federal Advisory Committee Policy. [FR Doc. E9–16198 Filed 7–8–09; 8:45 am] BILLING CODE 4140–01–P PO 00000 Frm 00073 Fmt 4703 Sfmt 4703 DEPARTMENT OF HEALTH AND HUMAN SERVICES National Institutes of Health NIH State-of-the-Science Conference: Family History and Improving Health; Notice Notice is hereby given of the National Institutes of Health (NIH) ‘‘NIH State-ofthe-Science Conference: Family History and Improving Health’’ to be held August 24–26, 2009, in the NIH Natcher Conference Center, 45 Center Drive, Bethesda, Maryland 20892. The conference will begin at 8:30 a.m. on August 24 and 25, at 9 a.m. on August 26, and will be open to the public. Many common diseases have genetic, environmental, and lifestyle causes that family members may share. An individual’s family health history captures information about shared factors that contribute to that individual’s risk for developing diseases such as diabetes, stroke, cancer, and heart disease. Family health history information collected from patients has long been used as a risk assessment tool by health care providers in the United States. Family history is also critical to determining who will benefit from genetic testing for both common and rare conditions and can facilitate interpretation of genetic test results. The combination of these attributes makes the collection of family history an important first step in personalized medicine. Recently there have been a number of national efforts to ensure that family history information is effectively incorporated into health information technology systems, including electronic health records and personal health record systems. An ultimate goal of these efforts will be to provide clinicians with automated clinical decision tools based on family history information; this will require a sound scientific foundation on which to develop such tools. Although most individuals are accustomed to providing some form of family history information when they visit health professionals, there is wide variation in the way family history is collected and used by health care providers. Moreover, the accuracy of a patient-gathered history may be limited by an individual’s awareness, understanding, and recollection of his or her family members’ health issues. Important questions remain regarding the effectiveness of family history information for disease prediction and improvement of patient health outcomes. E:\FR\FM\09JYN1.SGM 09JYN1 rmajette on DSK29S0YB1 with NOTICES Federal Register / Vol. 74, No. 130 / Thursday, July 9, 2009 / Notices There may also be adverse effects for both individuals and society, thus far not fully understood, of depending too heavily on a family history to assess disease risk. It is possible that emphasizing family history may have economic costs as well, as limited resources are allocated across a wide variety of health promotion activities in the primary care setting. In order to take a closer look at this important topic, the National Human Genome Research Institute and the Office of Medical Applications of Research of the National Institutes of Health will convene a State-of-theScience conference from August 24 to 26, 2009, to assess the available scientific evidence related to the following questions: • What are the key elements of a family history in a primary care setting for the purposes of risk assessment for common diseases? • What is the accuracy of the family history, and under what conditions does the accuracy vary? • What is the direct evidence that getting a family history will improve health outcomes for the patient and/or family? • What is the direct evidence that getting a family history will result in adverse outcomes for the patient and/or family? • What are the factors that encourage or discourage obtaining and using a family history? • What are future research directions for assessing the value of family history for common diseases in the primary care setting? An impartial, independent panel will be charged with reviewing the available published literature in advance of the conference, including a systematic literature review commissioned through the Agency for Healthcare Research and Quality. The first day and a half of the conference will consist of presentations by expert researchers and practitioners and open public discussions. On Wednesday, August 26, the panel will present a statement of its collective assessment of the evidence to answer each of the questions above. The panel will also hold a press conference to address questions from the media. The draft statement will be published online later that day, and the final version will be released approximately six weeks later. The primary sponsors of this meeting are the NIH National Human Genome Research Institute and the NIH Office of Medical Applications of Research. Advance information about the conference and conference registration materials may be obtained from VerDate Nov<24>2008 15:49 Jul 08, 2009 Jkt 217001 American Institutes for Research of Silver Spring, Maryland, by calling 888– 644–2667, or by sending e-mail to consensus@mail.nih.gov. American Institutes for Research’s mailing address is 10720 Columbia Pike, Silver Spring, MD 20901. Registration information is also available on the NIH Consensus Development Program Web site at https://consensus.nih.gov. Please Note: The NIH has instituted security measures to ensure the safety of NIH employees, property, and guests. All visitors must be prepared to show a photo ID upon request. Visitors may be required to pass through a metal detector and have bags, backpacks, or purses inspected or x-rayed as they enter NIH buildings. For more information about the security measures at NIH, please visit the Web site at https:// www.nih.gov/about/visitorsecurity.htm. Dated: June 30, 2009. Lawrence A. Tabak, Acting Deputy Director, National Institutes of Health. [FR Doc. E9–16191 Filed 7–8–09; 8:45 am] BILLING CODE 4140–01–P DEPARTMENT OF HEALTH AND HUMAN SERVICES National Institutes of Health National Institute of Mental Health; Notice of Closed Meeting Pursuant to section 10(d) of the Federal Advisory Committee Act, as amended (5 U.S.C. App.), notice is hereby given of the following meeting. The meeting will be closed to the public in accordance with the provisions set forth in sections 552b(c)(4) and 552b(c)(6), Title 5 U.S.C., as amended. The grant applications and the discussions could disclose confidential trade secrets or commercial property such as patentable material, and personal information concerning individuals associated with the grant applications, the disclosure of which would constitute a clearly unwarranted invasion of personal privacy. Name of Committee: National Institute of Mental Health Special Emphasis Panel; Child Conflicts Review. Date: July 29, 2009. Time: 11 a.m. to 3 p.m. Agenda: To review and evaluate grant applications. Place: National Institutes of Health, Neuroscience Center, 6001 Executive Boulevard, Rockville, MD 20852 (Telephone Conference Call). Contact Person: Enid Light, PhD, Scientific Review Officer, Division of Extramural Activities, National Institute of Mental Health, NIH, Neuroscience Center, 6001 Executive Boulevard, Room 6132, MSC 9608, PO 00000 Frm 00074 Fmt 4703 Sfmt 4703 32949 Bethesda, MD 20852–9608, 301–443–0322, elight@mail.nih.gov. (Catalogue of Federal Domestic Assistance Program Nos. 93.242, Mental Health Research Grants; 93.281, Scientist Development Award, Scientist Development Award for Clinicians, and Research Scientist Award; 93.282, Mental Health National Research Service Awards for Research Training, National Institutes of Health, HHS) Dated: July 1, 2009. Jennifer Spaeth, Director, Office of Federal Advisory Committee Policy. [FR Doc. E9–16209 Filed 7–8–09; 8:45 am] BILLING CODE 4140–01–P DEPARTMENT OF THE INTERIOR Bureau of Land Management [LLAZ410– 09.L12320000.AL0000.LVRDAZ020000.241A] Final Supplementary Rules for the Hot Well Dunes Recreation Area, Public Lands Administered by the Bureau of Land Management Gila District and Safford Field Office, Graham County, AZ AGENCY: Bureau of Land Management, Interior. ACTION: Final supplementary rules. SUMMARY: The Bureau of Land Management (BLM) is issuing new supplementary rules for the Hot Well Dunes (HWD) Recreation Area, which is located in Graham County, Arizona, and is managed by the Gila District and Safford Field Office. The rules address vehicle rider capacity, clinging to or being towed by a vehicle, safety flags, vehicle use, public nudity, firearms, pets, speed limit, camping, waste disposal, and length of stay. All current supplementary rules for the HWD Recreation Area are rescinded and replaced by these revised rules. DATES: These rules will become effective August 10, 2009. ADDRESSES: Bureau of Land Management, Safford Field Office, 711 14th Avenue, Safford, Arizona 85546. FOR FURTHER INFORMATION CONTACT: Larry Ramirez, Law Enforcement Ranger, at the above address, telephone 928–348–4400, or Larry_Ramirez@blm.gov. SUPPLEMENTARY INFORMATION: I. Background and Purpose II. Public Comment III. Discussion of Supplementary Rules IV. Procedural Matters I. Background and Purpose The Hot Well Dunes Recreation Area is an off-highway vehicle (OHV) play E:\FR\FM\09JYN1.SGM 09JYN1

Agencies

[Federal Register Volume 74, Number 130 (Thursday, July 9, 2009)]
[Notices]
[Pages 32948-32949]
From the Federal Register Online via the Government Printing Office [www.gpo.gov]
[FR Doc No: E9-16191]


-----------------------------------------------------------------------

DEPARTMENT OF HEALTH AND HUMAN SERVICES

National Institutes of Health


NIH State-of-the-Science Conference: Family History and Improving 
Health; Notice

    Notice is hereby given of the National Institutes of Health (NIH) 
``NIH State-of-the-Science Conference: Family History and Improving 
Health'' to be held August 24-26, 2009, in the NIH Natcher Conference 
Center, 45 Center Drive, Bethesda, Maryland 20892. The conference will 
begin at 8:30 a.m. on August 24 and 25, at 9 a.m. on August 26, and 
will be open to the public.
    Many common diseases have genetic, environmental, and lifestyle 
causes that family members may share. An individual's family health 
history captures information about shared factors that contribute to 
that individual's risk for developing diseases such as diabetes, 
stroke, cancer, and heart disease. Family health history information 
collected from patients has long been used as a risk assessment tool by 
health care providers in the United States. Family history is also 
critical to determining who will benefit from genetic testing for both 
common and rare conditions and can facilitate interpretation of genetic 
test results. The combination of these attributes makes the collection 
of family history an important first step in personalized medicine.
    Recently there have been a number of national efforts to ensure 
that family history information is effectively incorporated into health 
information technology systems, including electronic health records and 
personal health record systems. An ultimate goal of these efforts will 
be to provide clinicians with automated clinical decision tools based 
on family history information; this will require a sound scientific 
foundation on which to develop such tools.
    Although most individuals are accustomed to providing some form of 
family history information when they visit health professionals, there 
is wide variation in the way family history is collected and used by 
health care providers. Moreover, the accuracy of a patient-gathered 
history may be limited by an individual's awareness, understanding, and 
recollection of his or her family members' health issues. Important 
questions remain regarding the effectiveness of family history 
information for disease prediction and improvement of patient health 
outcomes.

[[Page 32949]]

    There may also be adverse effects for both individuals and society, 
thus far not fully understood, of depending too heavily on a family 
history to assess disease risk. It is possible that emphasizing family 
history may have economic costs as well, as limited resources are 
allocated across a wide variety of health promotion activities in the 
primary care setting.
    In order to take a closer look at this important topic, the 
National Human Genome Research Institute and the Office of Medical 
Applications of Research of the National Institutes of Health will 
convene a State-of-the-Science conference from August 24 to 26, 2009, 
to assess the available scientific evidence related to the following 
questions:
     What are the key elements of a family history in a primary 
care setting for the purposes of risk assessment for common diseases?
     What is the accuracy of the family history, and under what 
conditions does the accuracy vary?
     What is the direct evidence that getting a family history 
will improve health outcomes for the patient and/or family?
     What is the direct evidence that getting a family history 
will result in adverse outcomes for the patient and/or family?
     What are the factors that encourage or discourage 
obtaining and using a family history?
     What are future research directions for assessing the 
value of family history for common diseases in the primary care 
setting?
    An impartial, independent panel will be charged with reviewing the 
available published literature in advance of the conference, including 
a systematic literature review commissioned through the Agency for 
Healthcare Research and Quality. The first day and a half of the 
conference will consist of presentations by expert researchers and 
practitioners and open public discussions. On Wednesday, August 26, the 
panel will present a statement of its collective assessment of the 
evidence to answer each of the questions above. The panel will also 
hold a press conference to address questions from the media. The draft 
statement will be published online later that day, and the final 
version will be released approximately six weeks later. The primary 
sponsors of this meeting are the NIH National Human Genome Research 
Institute and the NIH Office of Medical Applications of Research.
    Advance information about the conference and conference 
registration materials may be obtained from American Institutes for 
Research of Silver Spring, Maryland, by calling 888-644-2667, or by 
sending e-mail to consensus@mail.nih.gov. American Institutes for 
Research's mailing address is 10720 Columbia Pike, Silver Spring, MD 
20901. Registration information is also available on the NIH Consensus 
Development Program Web site at https://consensus.nih.gov.

    Please Note: The NIH has instituted security measures to ensure 
the safety of NIH employees, property, and guests. All visitors must 
be prepared to show a photo ID upon request. Visitors may be 
required to pass through a metal detector and have bags, backpacks, 
or purses inspected or x-rayed as they enter NIH buildings. For more 
information about the security measures at NIH, please visit the Web 
site at https://www.nih.gov/about/visitorsecurity.htm.


    Dated: June 30, 2009.
Lawrence A. Tabak,
Acting Deputy Director, National Institutes of Health.
[FR Doc. E9-16191 Filed 7-8-09; 8:45 am]
BILLING CODE 4140-01-P
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