Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children; Notice of Meeting, 55494 [06-8018]

Download as PDF 55494 Federal Register / Vol. 71, No. 184 / Friday, September 22, 2006 / Notices Send comments to Susan G. Queen, Ph.D., HRSA Reports Clearance Officer, Room 10–33, Parklawn Building, 5600 Fishers Lane, Rockville, MD 20857. Written comments should be received within 60 days of this notice. Dated: September 15, 2006. Cheryl R. Dammons, Director, Division of Policy Review and Coordination. [FR Doc. 06–8020 Filed 9–21–06; 8:45 am] BILLING CODE 4165–15–P DEPARTMENT OF HEALTH AND HUMAN SERVICES Dated: September 15, 2006. Cheryl R. Dammons, Director, Division of Policy Review and Coordination. [FR Doc. 06–8018 Filed 9–21–06; 8:45 am] Health Resources and Services Administration Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children; Notice of Meeting BILLING CODE 4165–15–P sroberts on PROD1PC70 with NOTICES In accordance with section 10(a)(2) of the Federal Advisory Committee Act (Pub. L. 92–463), notice is hereby given of the following meeting: Name: Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children (ACHDGDNC). Dates and Times: November 2, 2006, 9 a.m. to 5 p.m. November 3, 2006, 8:30 a.m. to 3 p.m. Place: Hilton Washington Hotel, Georgetown Room, 1919 Connecticut Avenue, NW., Washington, DC 20009. Status: The meeting will be open to the public with attendance limited to space availability. Purpose: The Committee was established specifically to advise and guide the Secretary regarding the most appropriate application of universal newborn screening tests, technologies, policies, guidelines and programs for effectively reducing morbidity and mortality in newborns and children having or at risk for heritable disorders. The Committee also provides advice and recommendations concerning the grants and projects authorized under the Heritable Disorders Program and technical information to develop policies and priorities for this program. The Heritable Disorders Program was established to enhance the ability of State and local health agencies to provide for newborn and child screening, counseling and health care services for newborns and children having or at risk for heritable disorders. Agenda: The meeting will include a report on the nomination process for newborn screening candidate conditions, as well as the continued work and reports by the Committee’s subcommittees on laboratory standards and procedures, follow-up and treatment, and education and training. Proposed agenda items are subject to change. Time will be provided each day for public comment. Individuals who wish to provide public comment or who plan to attend the VerDate Aug<31>2005 20:37 Sep 21, 2006 Jkt 208001 meeting and need special assistance, such as sign language interpretation or other reasonable accommodations, should notify the ACHDGDNC Executive Secretary, Michele A. Lloyd-Puryear, M.D., Ph.D. (contact information provided below). For Further Information Contact: Anyone interested in obtaining a roster of members or other relevant information should write or contact Michele A. Lloyd-Puryear, M.D., Ph.D., Maternal and Child Health Bureau, Health Resources and Services Administration, Room 18A–19, Parklawn Building, 5600 Fishers Lane, Rockville, Maryland 20857, Telephone (301) 443–1080. Information on the Advisory Committee is available at http://mchb.hrsa.gov/programs/ genetics/committee. DEPARTMENT OF HEALTH AND HUMAN SERVICES Health Resources and Services Administration Notice of Meeting of the Advisory Committee on Organ Transplantation Health Resources and Services Administration, HHS. SUMMARY: Pursuant to Public Law 92– 463, the Federal Advisory Committee Act, as amended (5 U.S.C. Appendix 2), notice is hereby given of the eleventh meeting of the Advisory Committee on Organ Transplantation (ACOT), Department of Health and Human Services (HHS). The meeting will be held from approximately 9 a.m. to 5:30 p.m. on November 2, 2006, and from 9 a.m. to 3 p.m. on November 3, 2006, at the Bethesda DoubleTree Hotel, 8120 Wisconsin Avenue, Bethesda, MD 20814. The meeting will be open to the public; however, seating is limited and pre-registration is encouraged (see below). SUPPLEMENTARY INFORMATION: Under the authority of 42 U.S.C. 217a, section 222 of the Public Health Service Act, as amended, and 42 CFR 121.12 (2000), ACOT was established to assist the Secretary in enhancing organ donation, ensuring that the system of organ transplantation is grounded in the best available medical science, and assuring the public that the system is as effective and equitable as possible, and, thereby, increasing public confidence in the integrity and effectiveness of the transplantation system. ACOT is composed of up to 25 members, including the Chair. Members are AGENCY: PO 00000 Frm 00079 Fmt 4703 Sfmt 4703 serving as Special Government Employees and have diverse backgrounds in fields such as organ donation, health care public policy, transplantation medicine and surgery, critical care medicine and other medical specialties involved in the identification and referral of donors, non-physician transplant professions, nursing, epidemiology, immunology, law and bioethics, behavioral sciences, economics and statistics, as well as representatives of transplant candidates, transplant recipients, organ donors, and family members. ACOT will hear presentations on the revised Uniform Anatomical Gift Act; the United Network for Organ Sharing Department of Evaluation and Quality; the Hollywood Health and Society Project; new developments in immunosuppression; and payment for organs. The draft meeting agenda will be available on October 16 on the Department’s donation Web site at http://www.organdonor.gov/acot.html. A registration form will be available on October 2 on the Department’s donation Web site at http:// www.organdonor.gov/acot.html. The completed registration form should be submitted by facsimile to Professional and Scientific Associates (PSA), the logistical support contractor for the meeting, at fax number (703) 234–1701. Individuals without access to the Internet who wish to register may call Sowjanya Kotakonda with PSA at (703) 234–1737. Registration can also be completed electronically at http:// www.psava.com/dot/acot2006/. Individuals who plan to attend the meeting and need special assistance, such as sign language interpretation or other reasonable accommodations, should notify the ACOT Executive Secretary, Remy Aronoff, in advance of the meeting. Mr. Aronoff may be reached by telephone at 301–443–3264, e-mail: Remy.Aronoff@hrsa.hhs.gov or in writing at the address provided below. Management and support services for ACOT functions are provided by the Division of Transplantation, Healthcare Systems Bureau, Health Resources and Services Administration, 5600 Fishers Lane, Parklawn Building, Room 12C–06, Rockville, Maryland 20857; telephone number 301–443–7577. After the presentations and ACOT discussions, members of the public will have an opportunity to provide comments. Because of the Committee’s full agenda and the timeframe in which to cover the agenda topics, public comment will be limited. All public E:\FR\FM\22SEN1.SGM 22SEN1

Agencies

[Federal Register Volume 71, Number 184 (Friday, September 22, 2006)]
[Notices]
[Page 55494]
From the Federal Register Online via the Government Printing Office [www.gpo.gov]
[FR Doc No: 06-8018]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Advisory Committee on Heritable Disorders and Genetic Diseases in 
Newborns and Children; Notice of Meeting

    In accordance with section 10(a)(2) of the Federal Advisory 
Committee Act (Pub. L. 92-463), notice is hereby given of the following 
meeting:

    Name: Advisory Committee on Heritable Disorders and Genetic 
Diseases in Newborns and Children (ACHDGDNC).
    Dates and Times: November 2, 2006, 9 a.m. to 5 p.m.November 3, 
2006, 8:30 a.m. to 3 p.m.
    Place: Hilton Washington Hotel, Georgetown Room, 1919 
Connecticut Avenue, NW., Washington, DC 20009.
    Status: The meeting will be open to the public with attendance 
limited to space availability.
    Purpose: The Committee was established specifically to advise 
and guide the Secretary regarding the most appropriate application 
of universal newborn screening tests, technologies, policies, 
guidelines and programs for effectively reducing morbidity and 
mortality in newborns and children having or at risk for heritable 
disorders. The Committee also provides advice and recommendations 
concerning the grants and projects authorized under the Heritable 
Disorders Program and technical information to develop policies and 
priorities for this program. The Heritable Disorders Program was 
established to enhance the ability of State and local health 
agencies to provide for newborn and child screening, counseling and 
health care services for newborns and children having or at risk for 
heritable disorders.
    Agenda: The meeting will include a report on the nomination 
process for newborn screening candidate conditions, as well as the 
continued work and reports by the Committee's subcommittees on 
laboratory standards and procedures, follow-up and treatment, and 
education and training.
    Proposed agenda items are subject to change.
    Time will be provided each day for public comment. Individuals 
who wish to provide public comment or who plan to attend the meeting 
and need special assistance, such as sign language interpretation or 
other reasonable accommodations, should notify the ACHDGDNC 
Executive Secretary, Michele A. Lloyd-Puryear, M.D., Ph.D. (contact 
information provided below).
    For Further Information Contact: Anyone interested in obtaining 
a roster of members or other relevant information should write or 
contact Michele A. Lloyd-Puryear, M.D., Ph.D., Maternal and Child 
Health Bureau, Health Resources and Services Administration, Room 
18A-19, Parklawn Building, 5600 Fishers Lane, Rockville, Maryland 
20857, Telephone (301) 443-1080. Information on the Advisory 
Committee is available at http://mchb.hrsa.gov/programs/genetics/
committee.

    Dated: September 15, 2006.
Cheryl R. Dammons,
Director, Division of Policy Review and Coordination.
[FR Doc. 06-8018 Filed 9-21-06; 8:45 am]
BILLING CODE 4165-15-P