Provider Education and Public Awareness About Primary Immunodeficiency Disease; Notice of Intent To Fund Single Eligibility Award, 48135 [05-16169]

Agencies

• Centers for Disease Control and Prevention
• DEPARTMENT OF HEALTH AND HUMAN SERVICES

[Federal Register Volume 70, Number 157 (Tuesday, August 16, 2005)]
[Notices]
[Page 48135]
From the Federal Register Online via the Government Printing Office [www.gpo.gov]
[FR Doc No: 05-16169]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Centers for Disease Control and Prevention

[Program Announcement AA226]


Provider Education and Public Awareness About Primary 
Immunodeficiency Disease; Notice of Intent To Fund Single Eligibility 
Award

A. Purpose

    The Centers for Disease Control and Prevention (CDC) announces the 
intent to fund fiscal year (FY) 2005 funds for a grant program to the 
Jeffrey Modell Foundation for a National Campaign for Provider 
Education and Public Awareness about Primary Immunodeficiency (PI 
Disease). The purpose of the program is to strengthen the nation's 
capacity to carry out public health activities in the area of PI 
diseases by increasing physician education and public health awareness 
through the program for primary immune deficiency disease as 
implemented by the Jeffrey Modell Foundation. The objective is to 
disseminate educational information on a national level to public and 
private health care providers, educators, third-party payers, impacted 
families, and others who may help expedite clinical recognition and 
improve the health outcome for Americans with PI disease. The Catalog 
of Federal Domestic Assistance number for this program is 93.283.

B. Eligible Applicant

    Assistance will be provided only to the Jeffrey Modell Foundation 
(JMF) in accordance with language in the Conference Report to the 
fiscal year 2005 Appropriations (Pub. L. 108-447, H.R. Rep. No. 108-792 
2004)which explains congressional intent that CDC continue to provide 
funding to JMF. The specific language is as follows:

    ``In each of last three years, Congress has made available funds 
for CDC to support the national physician education and public 
awareness campaign developed by the Jeffrey Modell Foundation. The 
Committee understands that the Foundation has leveraged more than 
seven dollars from donors and the media for every federal dollar 
appropriated and is a model of public-private cooperation. The 
Committee encourages the CDC to expand the reach of the Foundation's 
campaign to underserved communities, including African-American and 
Hispanic populations, and has provided sufficient funding to reach 
that critical goal. The Committee also encourages CDC to expand its 
programmatic activity on primary immune deficiency diseases to 
include pilot programs focused on newborn screening and school 
wellness.''

    The Jeffrey Modell Foundation, Inc. (JMF) was established in 1987 
to address early and precise diagnosis, meaningful treatments, and 
ultimately cures for Primary Immunodeficiency Diseases in memory of 
Jeffrey Modell, who died from pneumonia due to Primary Immunodeficiency 
at the age of 15. It is a multi-faceted nonprofit research foundation 
devoted to the early and precise diagnosis, meaningful treatment, and 
ultimate cure of PI. The Jeffrey Modell Foundation is focused on the 
following Primary Immunodeficiency treatment, education, awareness and 
research areas: Clinical and basic research to better understand and 
treat Primary Immunodeficiencies; function as a national and 
international source for the dissemination of information and education 
into the diagnosis and treatment of genetic immunodeficiencies; 
advocates on behalf of patients and families to assure access to 
excellent and comprehensive care; promote awareness of Primary 
Immunodeficiency diseases through programs involving lay, scientific, 
and medical communities; and addressing quality of life concerns for 
patients with Primary Immunodeficiency diseases. The activities that 
are conducted to achieve the above objectives and focuses consist of 
but are not limited to the following: Sponsored symposiums and 
workshops; support for research and training; and the provision of 
diagnostic, clinical, and education services. The Foundation supports a 
24-hour-a-day national hotline, which offers information and referrals 
to immunologists at major medical centers around the country. We are 
not aware of another organization with a similar background, approach, 
and as broad a reach in the spectrum of issues related to Primary 
Immunodeficiency diseases such as the international focus, service 
delivery, and quality of life for PI patients and their families, and 
the other areas referenced above.
    No other applications are solicited.

C. Funding

    Approximately $2,458,778 is available in FY 2005 to fund this 
award. It is expected that the award will begin on or before August 31, 
2005, and will be made for a 12-month budget period within a project 
period of up to five years. Funding estimates may change.

D. Where To Obtain Additional Information

    For general comments or questions about this announcement, contact: 
Technical Information Management, CDC Procurement and Grants Office, 
2920 Brandywine Road, Atlanta, GA 30341-4146, telephone: (770) 488-
2700.
    For technical questions about this program, contact: Leah Simpson, 
M.B.A., Project Officer, 2877 Brandywine Road, Suite 4847, Atlanta, GA 
30341, telephone: (770) 488-8395, e-mail: LSimpson@cdc.gov.

    Dated: August 10, 2005.
Alan A. Kotch,
Deputy Director, Procurement and Grants Office, Centers for Disease 
Control and Prevention.
[FR Doc. 05-16169 Filed 8-15-05; 8:45 am]
BILLING CODE 4163-18-P